What if restaurants, like hospitals, refused to share their prices?
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And you'll only receive a detailed copy of the bill four weeks later, when it arrives via fax machine.\u003c/p>\n\u003cp>Welcome to the U.S. health care system.\u003c/p>\n\u003cp>For physicians like Dr. Pat Basu, analogies like this one are far from perfect. But they are a useful way to describe to people how the U.S. health system really works.\u003c/p>\n\u003cp>Basu is no ordinary doctor. He works as the chief medical officer at \u003ca href=\"http://doctorondemand.com\">Doctor on Demand\u003c/a>, a startup that connects patients to doctors online. Previously, he \u003ca href=\"http://radiology.stanford.edu/blog/archives/2010/07/basu-named-whit.html\">advised \u003c/a>the White House on health care policy and reform. Given his background, he is often invited to speak at medical industry conferences.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>But unlike many of his peers, Basu gravitates to consumer-friendly analogies and tries to refrain from using jargon.\u003c/p>\n\u003cp>We met for coffee this week to chat about the lack of price transparency in health care, and how the average American would react to a restaurant that kept customers in the dark about its prices.\u003c/p>\n\u003cp>On a whim, I shared the analogy with my Twitter followers late Tuesday evening.\u003c/p>\n\u003cp>https://twitter.com/chrissyfarr/status/590724373478252544\u003c/p>\n\u003cp>I was floored by the volume and breadth of responses, which ranged from laugh-out-loud funny to downright depressing. I highlighted a few, although I recommend \u003ca href=\"https://twitter.com/chrissyfarr/status/590724373478252544\">perusing the thread\u003c/a> in its entirety.\u003c/p>\n\u003cp>https://twitter.com/djbressler/status/590824168674955264\u003c/p>\n\u003cp>https://twitter.com/matthewscd/status/590726687396126720\u003c/p>\n\u003cp>https://twitter.com/statesdj/status/590728967461699586\u003c/p>\n\u003cp>https://twitter.com/OnerousLetterLi/status/590725122908106753\u003c/p>\n\u003cp>\u003ca href=\"https://twitter.com/chrissyfarr/status/590724373478252544\">Read the rest here.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Why the Lack of Price Transparency?\u003c/strong>\u003c/p>\n\u003cp>As Dr. Basu explained, it's long been a struggle for consumers to find out in advance how much their doctor visits and procedures will cost. Unlike restaurants, health care institutions shy away from publishing their prices, as it depends on who's footing the bill.\u003c/p>\n\u003cp>Some web-based tools do a decent job of providing cost estimates (\u003ca href=\"http://blogs.kqed.org/stateofhealth/2014/06/23/share-your-bill-make-health-costs-transparent-in-california/\">\u003cem>KQED\u003c/em> launched its own service, \u003cem>PriceCheck\u003c/em>, which relies on data aggregated from California-based readers)\u003c/a>.\u003c/p>\n\u003cp>But for most patients, price is still a gamble. As one recent study found, \u003ca href=\"http://www.washingtonpost.com/national/health-science/a-blood-test-can-cost-from-10-to-10000-in-calif-hospitals-according-to-a-study/2014/08/16/aba02472-24ae-11e4-8593-da634b334390_story.html\">the price of a blood test in California\u003c/a> can range from $10 to $10,000, depending on the hospital.\u003c/p>\n\u003cp>https://twitter.com/RS_Flinn/status/590932990487728128\u003c/p>\n\u003cp>Unfortunately, improving price transparency isn't a simple proposition. The debate has raged for decades among health care policymakers and academics -- \u003ca href=\"http://www.thefiscaltimes.com/Articles/2014/09/18/Why-Health-Care-Price-Transparency-May-Not-Work\">some have argued that it may not work\u003c/a> well in practice.\u003c/p>\n\u003cp>But for most consumers, who aren't knee deep in D.C. politics, it is unclear why they can compare prices online for a steak dinner or a new television -- but not for a critical medical procedure.\u003c/p>\n\u003cp>\u003cstrong>The Trouble With Jargon \u003c/strong>\u003c/p>\n\u003cp>The health care industry needs to a better job of reaching people on social media, and helping them understand the status quo.\u003c/p>\n\u003cp>Much of the available literature on the price transparency topic is confusing and downright boring. And at health care conferences, which I frequently attend in the pursuit of clear answers, speakers spew out incomprehensible medical jargon.\u003c/p>\n\u003cp>I've often wondered: Do these \"industry insiders\" actually understand each other? Or are they nodding along for appearances sake?\u003c/p>\n\u003cfigure id=\"attachment_2231\" class=\"wp-caption alignright\" style=\"max-width: 366px\">\u003cimg class=\"wp-image-2231\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/money_2.jpg\" alt='I suggested renaming my panel to \"Show me the money!\"' width=\"366\" height=\"198\">\u003cfigcaption class=\"wp-caption-text\">Forget reimbursement. \"Show me the money!\" \u003ccite>(Proverbs66.com)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In 2014, I was asked to interview a panel of medical experts at a conference on the topic of \"reimbursement.\" Half-joking, I suggested that we would have done a better job of filling the room by amending the description to \"show me the money.\"\u003c/p>\n\u003cp>\"So...What even is reimbursement,?\" I asked the panel.\u003c/p>\n\u003cp>Crickets.\u003c/p>\n\u003cp>That opening question was met with a minute or so of excruciating silence. Eventually, several of the speakers piped up, each giving me a slightly different answer.\u003c/p>\n\u003cp>Dr. Jordan Shlain, a physician I bumped into at a recent health-tech conference, had a similar experience when he asked an audience of 400 people if they understood the meaning of the term \"patient engagement.\" Two hands went up.\u003c/p>\n\u003cp>I strongly agree with Shlain, \u003ca href=\"https://www.linkedin.com/pulse/20141028232337-30819-cracking-open-medical-jargon-case-1-patient-engagement\">who shared this experience in a blog post\u003c/a>, that if we want patients to participate in important, ongoing policy discussions about the future of health care, we need to cut down on our use of jargon.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>If analogies resonate with people and prompt a discussion about health care, bring 'em on.\u003c/p>\n\n","blocks":[],"excerpt":"At this hypothetical restaurant, you're told that the cost of the meal will fluctuate based on where you sit, and who happens to serve you. And you'll only receive a detailed copy of the bill four weeks later, when it arrives via fax machine.","status":"publish","parent":0,"modified":1434049021,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":29,"wordCount":816},"headData":{"title":"What if restaurants, like hospitals, refused to share their prices? | KQED","description":"At this hypothetical restaurant, you're told that the cost of the meal will fluctuate based on where you sit, and who happens to serve you. And you'll only receive a detailed copy of the bill four weeks later, when it arrives via fax machine.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"What if restaurants, like hospitals, refused to share their prices?","datePublished":"2015-04-22T21:03:41.000Z","dateModified":"2015-06-11T18:57:01.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"2224 http://ww2.kqed.org/futureofyou/?p=2224","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/04/22/what-if-restaurants-like-hospitals-refused-to-share-their-prices/","disqusTitle":"What if restaurants, like hospitals, refused to share their prices?","path":"/futureofyou/2224/what-if-restaurants-like-hospitals-refused-to-share-their-prices","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Imagine walking into a restaurant, and you're handed a menu with no prices.\u003c/p>\n\u003cp>At this hypothetical restaurant, you're told that the cost of the meal will fluctuate based on where you sit, and who happens to serve you. And you'll only receive a detailed copy of the bill four weeks later, when it arrives via fax machine.\u003c/p>\n\u003cp>Welcome to the U.S. health care system.\u003c/p>\n\u003cp>For physicians like Dr. Pat Basu, analogies like this one are far from perfect. But they are a useful way to describe to people how the U.S. health system really works.\u003c/p>\n\u003cp>Basu is no ordinary doctor. He works as the chief medical officer at \u003ca href=\"http://doctorondemand.com\">Doctor on Demand\u003c/a>, a startup that connects patients to doctors online. Previously, he \u003ca href=\"http://radiology.stanford.edu/blog/archives/2010/07/basu-named-whit.html\">advised \u003c/a>the White House on health care policy and reform. Given his background, he is often invited to speak at medical industry conferences.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>But unlike many of his peers, Basu gravitates to consumer-friendly analogies and tries to refrain from using jargon.\u003c/p>\n\u003cp>We met for coffee this week to chat about the lack of price transparency in health care, and how the average American would react to a restaurant that kept customers in the dark about its prices.\u003c/p>\n\u003cp>On a whim, I shared the analogy with my Twitter followers late Tuesday evening.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590724373478252544"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>I was floored by the volume and breadth of responses, which ranged from laugh-out-loud funny to downright depressing. I highlighted a few, although I recommend \u003ca href=\"https://twitter.com/chrissyfarr/status/590724373478252544\">perusing the thread\u003c/a> in its entirety.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590824168674955264"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590726687396126720"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590728967461699586"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590725122908106753"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>\u003ca href=\"https://twitter.com/chrissyfarr/status/590724373478252544\">Read the rest here.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Why the Lack of Price Transparency?\u003c/strong>\u003c/p>\n\u003cp>As Dr. Basu explained, it's long been a struggle for consumers to find out in advance how much their doctor visits and procedures will cost. Unlike restaurants, health care institutions shy away from publishing their prices, as it depends on who's footing the bill.\u003c/p>\n\u003cp>Some web-based tools do a decent job of providing cost estimates (\u003ca href=\"http://blogs.kqed.org/stateofhealth/2014/06/23/share-your-bill-make-health-costs-transparent-in-california/\">\u003cem>KQED\u003c/em> launched its own service, \u003cem>PriceCheck\u003c/em>, which relies on data aggregated from California-based readers)\u003c/a>.\u003c/p>\n\u003cp>But for most patients, price is still a gamble. As one recent study found, \u003ca href=\"http://www.washingtonpost.com/national/health-science/a-blood-test-can-cost-from-10-to-10000-in-calif-hospitals-according-to-a-study/2014/08/16/aba02472-24ae-11e4-8593-da634b334390_story.html\">the price of a blood test in California\u003c/a> can range from $10 to $10,000, depending on the hospital.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"590932990487728128"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Unfortunately, improving price transparency isn't a simple proposition. The debate has raged for decades among health care policymakers and academics -- \u003ca href=\"http://www.thefiscaltimes.com/Articles/2014/09/18/Why-Health-Care-Price-Transparency-May-Not-Work\">some have argued that it may not work\u003c/a> well in practice.\u003c/p>\n\u003cp>But for most consumers, who aren't knee deep in D.C. politics, it is unclear why they can compare prices online for a steak dinner or a new television -- but not for a critical medical procedure.\u003c/p>\n\u003cp>\u003cstrong>The Trouble With Jargon \u003c/strong>\u003c/p>\n\u003cp>The health care industry needs to a better job of reaching people on social media, and helping them understand the status quo.\u003c/p>\n\u003cp>Much of the available literature on the price transparency topic is confusing and downright boring. And at health care conferences, which I frequently attend in the pursuit of clear answers, speakers spew out incomprehensible medical jargon.\u003c/p>\n\u003cp>I've often wondered: Do these \"industry insiders\" actually understand each other? Or are they nodding along for appearances sake?\u003c/p>\n\u003cfigure id=\"attachment_2231\" class=\"wp-caption alignright\" style=\"max-width: 366px\">\u003cimg class=\"wp-image-2231\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/money_2.jpg\" alt='I suggested renaming my panel to \"Show me the money!\"' width=\"366\" height=\"198\">\u003cfigcaption class=\"wp-caption-text\">Forget reimbursement. \"Show me the money!\" \u003ccite>(Proverbs66.com)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In 2014, I was asked to interview a panel of medical experts at a conference on the topic of \"reimbursement.\" Half-joking, I suggested that we would have done a better job of filling the room by amending the description to \"show me the money.\"\u003c/p>\n\u003cp>\"So...What even is reimbursement,?\" I asked the panel.\u003c/p>\n\u003cp>Crickets.\u003c/p>\n\u003cp>That opening question was met with a minute or so of excruciating silence. Eventually, several of the speakers piped up, each giving me a slightly different answer.\u003c/p>\n\u003cp>Dr. Jordan Shlain, a physician I bumped into at a recent health-tech conference, had a similar experience when he asked an audience of 400 people if they understood the meaning of the term \"patient engagement.\" Two hands went up.\u003c/p>\n\u003cp>I strongly agree with Shlain, \u003ca href=\"https://www.linkedin.com/pulse/20141028232337-30819-cracking-open-medical-jargon-case-1-patient-engagement\">who shared this experience in a blog post\u003c/a>, that if we want patients to participate in important, ongoing policy discussions about the future of health care, we need to cut down on our use of jargon.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>If analogies resonate with people and prompt a discussion about health care, bring 'em on.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/2224/what-if-restaurants-like-hospitals-refused-to-share-their-prices","authors":["3252"],"categories":["futureofyou_1"],"tags":["futureofyou_233","futureofyou_34","futureofyou_138","futureofyou_232","futureofyou_177","futureofyou_234","futureofyou_80","futureofyou_174","futureofyou_179"],"featImg":"futureofyou_2229","label":"futureofyou"},"futureofyou_1261":{"type":"posts","id":"futureofyou_1261","meta":{"index":"posts_1591205157","site":"futureofyou","id":"1261","score":null,"sort":[1428951969000]},"guestAuthors":[],"slug":"9-fresh-ways-medicine-makes-use-of-social-media","title":"9 Fresh Ways Medicine Makes Use of Social Media","publishDate":1428951969,"format":"standard","headTitle":"Contributor | Future of You | KQED Future of You | KQED Science","labelTerm":{"term":54,"site":"futureofyou"},"content":"\u003cp>\u003cem>Author Emily F. Peters is founder of \u003ca href=\"http://www.uncommonbold.com/\">Uncommon Bold\u003c/a>, a San Francisco–based brand strategy studio. Reach her on Twitter: \u003ca href=\"https://twitter.com/EmilyFPeters\">@emilyfpeters\u003c/a>.\u003c/em>\u003c/p>\n\u003cp>Facebook has 1.3 billion users, more than 900 million people use Twitter, and an hour of video is uploaded to YouTube every single second. In the last decade, social networks have fundamentally changed the ways we connect, build communities and \u003ca href=\"http://giphy.com/search/ninja-cat\">share ninja cat GIFs\u003c/a>.\u003c/p>\n\u003cp>So much about health care seems perfectly matched for this modern landscape of social media: All those heart-wrenching stories of recovery against the odds, inspiring new robotic inventions, cases of doctors who just care too much and loads of “you’ll never believe” medical research.\u003c/p>\n\u003cp>But when it comes to social media, the health sector is just getting started.\u003c/p>\n\u003cp>\"Healthcare is habitually late to the party when it comes to marketing and communications, as it's a heavily regulated industry. Social media is no exception,\" said Amanda Changuris, a social media marketing analyst at Highmark and an advisor to the \u003ca href=\"http://network.socialmedia.mayoclinic.org/about-3/\">Mayo Clinic Center for Social Media.\u003c/a>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>\"The good news is that there are now some truly excellent minds putting the medium through its paces for the benefit of patients, physicians and the public in general,\" said Changuris.\u003c/p>\n\u003cp>What can social media and medicine do? From organ donations to #FOMO (which stands for \"fear of missing out\"), here are nine ingenious examples of health care making the most of social networks:\u003c/p>\n\u003cp>\u003cstrong>Opening Operating Rooms to the World\u003c/strong>\u003c/p>\n\u003cp>If blood and gore doesn't make you squeamish, tune into live hospital video streams. Health organizations are tapping into our fascination with medicine and human anatomy by broadcasting surgical procedures via social media.\u003c/p>\n\u003cp>\u003ca href=\"http://www.swedish.org/landing-pages/cochlear-implant-and-hearing-loss-web-series\">The Swedish Medical Center in Washington State\u003c/a> ran a live broadcast of a cochlear implant surgery and followed up with emotional video of the patient listening to music for the first time. \u003ca href=\"http://www.memorialhermann.org/body-of-experts/c-section-twittercast/\">Memorial Hermann Hospital in Texas \u003c/a>showed a six-pound baby boy being delivered via cesarean section live from the OR on Twitter. \u003ca href=\"http://newsroom.ucla.edu/stories/ucla-live-tweets-surgery-to-implant-246356\">UCLA broadcast live on Vine \u003c/a>during brain surgery, showing the Parkinson’s patient playing country music guitar mid-operation.\u003c/p>\n\u003cfigure id=\"attachment_1550\" class=\"wp-caption alignleft\" style=\"max-width: 1280px\">\u003cimg class=\"size-full wp-image-1550\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/456343289_1280x720.jpg\" alt='A screenshot from a video intended to reduce fears about the \"snip\"' width=\"1280\" height=\"720\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720.jpg 1280w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-400x225.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-800x450.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-1180x664.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-768x432.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-320x180.jpg 320w\" sizes=\"(max-width: 1280px) 100vw, 1280px\">\u003cfigcaption class=\"wp-caption-text\">A screenshot from a video intended to reduce fears about the \"snip\" \u003ccite>(YouTube/ World Vasectomy Day)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>And in 2014, the doctors behind \u003ca href=\"http://www.worldvasectomyday.org\">World Vasectomy Day\u003c/a> took it a step further with a single-day live broadcast of 25 vasectomies. Over 10,000 viewers tuned in to the video stream of surgeries, international video interviews and short documentaries -- all as part of advocacy efforts to reduce fear of “the snip.”\u003c/p>\n\u003cp>\u003cstrong>Crowdsourcing Tough Medical Diagnoses\u003c/strong>\u003c/p>\n\u003cp>The average patient who signs up to a website called \u003ca href=\"http://crowdmed.com\">CrowdMed\u003c/a> has been sick for about eight years, spent more than $55,000 on medical expenses and still doesn’t have a diagnosis for their disease. The crowdsourcing startup helps patients reach a network of “medical detectives”— mostly healthcare professionals and medical students across 23 countries—with their tough medical cases.\u003c/p>\n\u003cp>\u003ca href=\"https://www.crowdmed.com/our-stories/julietta\">One patient, Juliette (pseudonym), \u003c/a>found a diagnosis and cure in just two weeks for a painful swelling condition that had kept her bedridden and undergoing surgery for two decades.\u003c/p>\n\u003cp>“Our 'medical detectives' spend an average of 11 hours per month solving medical cases on the network, which is more time than the average user spends on any other online social media,” said Jessica Greenwalt, co-founder of CrowdMed.\u003c/p>\n\u003cp>“They devote a lot of time to researching diagnoses and communicating with patients.”\u003c/p>\n\u003cp>\u003cstrong>Raising Millions for Clinical Research\u003c/strong>\u003c/p>\n\u003cp>When four-year-old Eliza O’Neill was diagnosed with a rare pediatric disease, her parents turned to social media with a poignant video. \u003ca href=\"http://www.gofundme.com/ElizaONeill\">They’ve now raised more than $2 million for Sanfilippo Syndrome\u003c/a> from 30,000 donors and are working with Nationwide Children’s Hospital in Ohio to speed clinical trials for a promising cure.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe width=\"800\" height=\"425\" src=\"https://www.youtube.com/embed/G0IY8qG7J-I?rel=0\" frameborder=\"0\" scrolling=\"yes\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp> \u003c/p>\n\u003cp>Campaigns like Eliza's and\u003ca href=\"http://www.alsa.org/about-us/ice-bucket-challenge-faq.html\"> the ALS Ice Bucket Challenge\u003c/a> —which raised $115 million in just a few months -- prove just how potent a platform social media can be for raising funds and awareness. The social media model is now being used for everything from \u003ca href=\"http://fightcolorectalcancer.org/do-something/raise-awareness/strong-arm-selfie/\">#strongarmselfies\u003c/a> for colon cancer to \u003ca href=\"http://bigstory.ap.org/article/west-africans-get-creative-ebola-awareness\">buckets of soapy water for Ebola awareness.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Tapping into #FOMO for Public Health\u003c/strong>\u003c/p>\n\u003cp>UCLA studied using social networks to drive up peer pressure and combat the spread of AIDS. The Harnessing Online Peer Education \u003ca href=\"http://newsroom.ucla.edu/releases/combining-social-media-and-behavioral-psychology-could-lead-to-more-hiv-testing\">(HOPE) study\u003c/a> found that social media conversations could triple the request rate for at-home HIV tests in high-risk populations in just three weeks. The researchers are now focused on expanding the study’s lessons to combat substance abuse, depression and bullying.\u003c/p>\n\u003cp>“I think there’s a huge potential in social media—not necessarily because of social media itself, but because everyone uses it,” said Sean Young, executive director, UC Institute for Prediction Technology and UCLA Center for Digital Behavior and the primary investigator on the HOPE study.\u003c/p>\n\u003cp>“Researchers are typically behind the curve in terms of what people are using in technology. People who want to find sex partners, who want to find drugs, they’re going to use the most up-to-date technology to do that. Researchers need to stay ahead of the latest tech trends to keep up.”\u003c/p>\n\u003cp>\u003cstrong>Mining Social Data for Life-Saving Trends\u003c/strong>\u003c/p>\n\u003cp>The massive, real-time trove of public social media data is a potential gold mine for medical researchers. For example, University of Pennsylvania recently found that \u003ca href=\"http://pss.sagepub.com/content/26/2/159\">angry tweets were a strong predictor of fatal cardiac disease.\u003c/a> According to the study, the “model based only on Twitter language predicted [heart disease] mortality significantly better than did a model that combined 10 common demographic, socioeconomic and health risk factors, including smoking, diabetes, hypertension and obesity.”\u003c/p>\n\u003cfigure id=\"attachment_1551\" class=\"wp-caption alignright\" style=\"max-width: 432px\">\u003cimg class=\" wp-image-1551\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/EbolaTracking-1.jpg\" alt=\"Screenshot of a real-time Ebola tracking map from researchers at Northeastern \" width=\"432\" height=\"305\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1.jpg 1169w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-400x283.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-800x566.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-768x543.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-320x226.jpg 320w\" sizes=\"(max-width: 432px) 100vw, 432px\">\u003cfigcaption class=\"wp-caption-text\">Screenshot of a real-time Ebola tracking map from researchers at Northeastern \u003ccite>(Emily Peters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Researchers at Northeastern University created a real-time map tracking international \u003ca href=\"http://ebolatracking.org\">Ebola awareness\u003c/a> through tweets. In Italy, scientists improved on Google’s Flu Trends to create accurate \u003ca href=\"http://www.aiimjournal.com/article/S0933-3657(14)00004-9/abstract\">“syndromic surveillance”\u003c/a> of flu through Twitter. While the potential for social media in research is huge, there are emerging debates about the \u003ca href=\"http://sciencelife.uchospitals.edu/2014/10/21/a-tempting-source-of-data-social-media-is-uncharted-ethical-territory-for-medical-research/\">ethics and accuracy of using the data.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Direct Messaging Candidates for Clinical Trials\u003c/strong>\u003c/p>\n\u003cp>An estimated 30 percent of the work of a clinical trial is spent on patient recruiting, and difficulty finding patients is cited as the top reason that clinical research is delayed. Social media is changing this fast.\u003c/p>\n\u003cfigure id=\"attachment_1553\" class=\"wp-caption alignleft\" style=\"max-width: 385px\">\u003cimg class=\" wp-image-1553\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/2_other_patients.png\" alt=\"A graphic developed by PatientsLikeMe\" width=\"385\" height=\"385\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients.png 2048w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-400x400.png 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-600x600.png 600w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-1180x1180.png 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-768x768.png 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-320x320.png 320w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-32x32.png 32w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-64x64.png 64w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-96x96.png 96w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-128x128.png 128w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-75x75.png 75w\" sizes=\"(max-width: 385px) 100vw, 385px\">\u003cfigcaption class=\"wp-caption-text\">A graphic developed by PatientsLikeMe \u003ccite>(PatientsLikeMe)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In fact, \u003ca href=\"http://pediatrics.aappublications.org/content/early/2014/04/09/peds.2013-2966.abstract\">one study in the journal Pediatrics\u003c/a> found that 84 percent of patients for two recent pediatric rare disease trials were referred via social media. The patient social network \u003ca href=\"http://patientslikeme.com\">PatientsLikeMe\u003c/a> even has a tool to automatically match members to over 45,000 clinical trial opportunities. Patient recruitment via social networks could lead to quicker and more cost-effective research for cures.\u003c/p>\n\u003cp>\u003cstrong>Paging Doctors About the Conversation\u003c/strong>\u003c/p>\n\u003cfigure id=\"attachment_1554\" class=\"wp-caption alignleft\" style=\"max-width: 460px\">\u003cimg class=\"wp-image-1554\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/171497-INFO.jpeg\" alt=\"A heat map of salaries for general surgeons by U.S. country\" width=\"460\" height=\"230\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO.jpeg 2400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-400x200.jpeg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-800x400.jpeg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-1180x590.jpeg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-768x384.jpeg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-320x160.jpeg 320w\" sizes=\"(max-width: 460px) 100vw, 460px\">\u003cfigcaption class=\"wp-caption-text\">A heat map of salaries for general surgeons by region. \u003ccite>(Doximity)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Strict privacy restrictions made social media a dangerous territory for medical professionals early on, but the healthcare sector is adapting quickly.\u003c/p>\n\u003cp>Professional networks such as \u003ca href=\"http://sermo.com\">Sermo\u003c/a>, \u003ca href=\"http://doximity.com\">Doximity\u003c/a> and \u003ca href=\"https://figure1.com/\">Figure 1\u003c/a> have created physician-only social spaces for collaboration. Doximity has gone so far as to crowd-source information on medical training and salaries to provide back to its doctor membership. \u003ca href=\"http://network.socialmedia.mayoclinic.org/social-media-residency/\">Mayo Clinic’s Center for Social Media\u003c/a> has been a leader in helping doctors and medical organizations to dip their toes in the social waters.\u003c/p>\n\u003cp>\u003cstrong>What's Trending? Organ Donations\u003c/strong>\u003c/p>\n\u003cp>When Facebook added a single organ donation question to their timeline, over 57,000 people announced their intentions to be donors, and 13,000 officially joined their state registry in a single day— \u003ca href=\"http://www.hopkinsmedicine.org/news/media/releases/the_facebook_effect_social_media_dramatically_boosts_organ_donor_registration\">an increase of 21 times\u003c/a> over normal registration rates, according to Johns Hopkins researchers. The long-term impact of Facebook’s organ donation campaign is still being studied, but it’s a hopeful step for the over 100,000 Americans currently on organ waiting lists.\u003c/p>\n\u003cp>\u003cstrong>Making Disease Awareness Personal\u003c/strong>\u003c/p>\n\u003cp>Lastly, a social media campaign made use of Facebook’s unique features to cleverly raise awareness of a terrible disease. In Holland, health advocates photoshopped people into pictures of events they never attended and then tagged them on Facebook. A followup message said, “Confusing, right? You’re now experiencing what it’s like to have Alzheimer’s disease.” Skip to the bottom for \u003ca href=\"https://vimeo.com/85254361\">a video\u003c/a> with details of their ingenious social campaign.\u003c/p>\n\u003cp>All the examples above took place in the past few years, which suggests that this potent combination of social media and medicine is still in its early days. Despite concerns about consumer privacy and some reticence from healthcare leaders, researchers, doctors, and patients have found fresh new ways to make the most of the social networks that connect us all.\u003c/p>\n\u003cp>[vimeo 85254361 w=500 h=281]\u003c/p>\n\u003cp> \u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Disclosure: Peters is a shareholder in Doximity having worked with them until February of 2015. \u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"The health sector is leveraging social media in unexpected ways, whether it's live-streaming a surgery or \"crowdsourcing\" medical knowledge. ","status":"publish","parent":0,"modified":1428955257,"stats":{"hasAudio":false,"hasVideo":true,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":42,"wordCount":1522},"headData":{"title":"9 Fresh Ways Medicine Makes Use of Social Media | KQED","description":"The health sector is leveraging social media in unexpected ways, whether it's live-streaming a surgery or "crowdsourcing" medical knowledge. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"9 Fresh Ways Medicine Makes Use of Social Media","datePublished":"2015-04-13T19:06:09.000Z","dateModified":"2015-04-13T20:00:57.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"1261 http://ww2.kqed.org/futureofyou/?p=1261","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/04/13/9-fresh-ways-medicine-makes-use-of-social-media/","disqusTitle":"9 Fresh Ways Medicine Makes Use of Social Media","path":"/futureofyou/1261/9-fresh-ways-medicine-makes-use-of-social-media","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003cem>Author Emily F. Peters is founder of \u003ca href=\"http://www.uncommonbold.com/\">Uncommon Bold\u003c/a>, a San Francisco–based brand strategy studio. Reach her on Twitter: \u003ca href=\"https://twitter.com/EmilyFPeters\">@emilyfpeters\u003c/a>.\u003c/em>\u003c/p>\n\u003cp>Facebook has 1.3 billion users, more than 900 million people use Twitter, and an hour of video is uploaded to YouTube every single second. In the last decade, social networks have fundamentally changed the ways we connect, build communities and \u003ca href=\"http://giphy.com/search/ninja-cat\">share ninja cat GIFs\u003c/a>.\u003c/p>\n\u003cp>So much about health care seems perfectly matched for this modern landscape of social media: All those heart-wrenching stories of recovery against the odds, inspiring new robotic inventions, cases of doctors who just care too much and loads of “you’ll never believe” medical research.\u003c/p>\n\u003cp>But when it comes to social media, the health sector is just getting started.\u003c/p>\n\u003cp>\"Healthcare is habitually late to the party when it comes to marketing and communications, as it's a heavily regulated industry. Social media is no exception,\" said Amanda Changuris, a social media marketing analyst at Highmark and an advisor to the \u003ca href=\"http://network.socialmedia.mayoclinic.org/about-3/\">Mayo Clinic Center for Social Media.\u003c/a>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\"The good news is that there are now some truly excellent minds putting the medium through its paces for the benefit of patients, physicians and the public in general,\" said Changuris.\u003c/p>\n\u003cp>What can social media and medicine do? From organ donations to #FOMO (which stands for \"fear of missing out\"), here are nine ingenious examples of health care making the most of social networks:\u003c/p>\n\u003cp>\u003cstrong>Opening Operating Rooms to the World\u003c/strong>\u003c/p>\n\u003cp>If blood and gore doesn't make you squeamish, tune into live hospital video streams. Health organizations are tapping into our fascination with medicine and human anatomy by broadcasting surgical procedures via social media.\u003c/p>\n\u003cp>\u003ca href=\"http://www.swedish.org/landing-pages/cochlear-implant-and-hearing-loss-web-series\">The Swedish Medical Center in Washington State\u003c/a> ran a live broadcast of a cochlear implant surgery and followed up with emotional video of the patient listening to music for the first time. \u003ca href=\"http://www.memorialhermann.org/body-of-experts/c-section-twittercast/\">Memorial Hermann Hospital in Texas \u003c/a>showed a six-pound baby boy being delivered via cesarean section live from the OR on Twitter. \u003ca href=\"http://newsroom.ucla.edu/stories/ucla-live-tweets-surgery-to-implant-246356\">UCLA broadcast live on Vine \u003c/a>during brain surgery, showing the Parkinson’s patient playing country music guitar mid-operation.\u003c/p>\n\u003cfigure id=\"attachment_1550\" class=\"wp-caption alignleft\" style=\"max-width: 1280px\">\u003cimg class=\"size-full wp-image-1550\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/456343289_1280x720.jpg\" alt='A screenshot from a video intended to reduce fears about the \"snip\"' width=\"1280\" height=\"720\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720.jpg 1280w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-400x225.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-800x450.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-1180x664.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-768x432.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/456343289_1280x720-320x180.jpg 320w\" sizes=\"(max-width: 1280px) 100vw, 1280px\">\u003cfigcaption class=\"wp-caption-text\">A screenshot from a video intended to reduce fears about the \"snip\" \u003ccite>(YouTube/ World Vasectomy Day)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>And in 2014, the doctors behind \u003ca href=\"http://www.worldvasectomyday.org\">World Vasectomy Day\u003c/a> took it a step further with a single-day live broadcast of 25 vasectomies. Over 10,000 viewers tuned in to the video stream of surgeries, international video interviews and short documentaries -- all as part of advocacy efforts to reduce fear of “the snip.”\u003c/p>\n\u003cp>\u003cstrong>Crowdsourcing Tough Medical Diagnoses\u003c/strong>\u003c/p>\n\u003cp>The average patient who signs up to a website called \u003ca href=\"http://crowdmed.com\">CrowdMed\u003c/a> has been sick for about eight years, spent more than $55,000 on medical expenses and still doesn’t have a diagnosis for their disease. The crowdsourcing startup helps patients reach a network of “medical detectives”— mostly healthcare professionals and medical students across 23 countries—with their tough medical cases.\u003c/p>\n\u003cp>\u003ca href=\"https://www.crowdmed.com/our-stories/julietta\">One patient, Juliette (pseudonym), \u003c/a>found a diagnosis and cure in just two weeks for a painful swelling condition that had kept her bedridden and undergoing surgery for two decades.\u003c/p>\n\u003cp>“Our 'medical detectives' spend an average of 11 hours per month solving medical cases on the network, which is more time than the average user spends on any other online social media,” said Jessica Greenwalt, co-founder of CrowdMed.\u003c/p>\n\u003cp>“They devote a lot of time to researching diagnoses and communicating with patients.”\u003c/p>\n\u003cp>\u003cstrong>Raising Millions for Clinical Research\u003c/strong>\u003c/p>\n\u003cp>When four-year-old Eliza O’Neill was diagnosed with a rare pediatric disease, her parents turned to social media with a poignant video. \u003ca href=\"http://www.gofundme.com/ElizaONeill\">They’ve now raised more than $2 million for Sanfilippo Syndrome\u003c/a> from 30,000 donors and are working with Nationwide Children’s Hospital in Ohio to speed clinical trials for a promising cure.\u003c/p>\n\u003cp>\u003c!-- iframe plugin v.4.3 wordpress.org/plugins/iframe/ -->\u003cbr>\n\u003ciframe width=\"800\" height=\"425\" src=\"https://www.youtube.com/embed/G0IY8qG7J-I?rel=0\" frameborder=\"0\" scrolling=\"yes\" class=\"iframe-class\">\u003c/iframe>\u003c/p>\n\u003cp> \u003c/p>\n\u003cp>Campaigns like Eliza's and\u003ca href=\"http://www.alsa.org/about-us/ice-bucket-challenge-faq.html\"> the ALS Ice Bucket Challenge\u003c/a> —which raised $115 million in just a few months -- prove just how potent a platform social media can be for raising funds and awareness. The social media model is now being used for everything from \u003ca href=\"http://fightcolorectalcancer.org/do-something/raise-awareness/strong-arm-selfie/\">#strongarmselfies\u003c/a> for colon cancer to \u003ca href=\"http://bigstory.ap.org/article/west-africans-get-creative-ebola-awareness\">buckets of soapy water for Ebola awareness.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Tapping into #FOMO for Public Health\u003c/strong>\u003c/p>\n\u003cp>UCLA studied using social networks to drive up peer pressure and combat the spread of AIDS. The Harnessing Online Peer Education \u003ca href=\"http://newsroom.ucla.edu/releases/combining-social-media-and-behavioral-psychology-could-lead-to-more-hiv-testing\">(HOPE) study\u003c/a> found that social media conversations could triple the request rate for at-home HIV tests in high-risk populations in just three weeks. The researchers are now focused on expanding the study’s lessons to combat substance abuse, depression and bullying.\u003c/p>\n\u003cp>“I think there’s a huge potential in social media—not necessarily because of social media itself, but because everyone uses it,” said Sean Young, executive director, UC Institute for Prediction Technology and UCLA Center for Digital Behavior and the primary investigator on the HOPE study.\u003c/p>\n\u003cp>“Researchers are typically behind the curve in terms of what people are using in technology. People who want to find sex partners, who want to find drugs, they’re going to use the most up-to-date technology to do that. Researchers need to stay ahead of the latest tech trends to keep up.”\u003c/p>\n\u003cp>\u003cstrong>Mining Social Data for Life-Saving Trends\u003c/strong>\u003c/p>\n\u003cp>The massive, real-time trove of public social media data is a potential gold mine for medical researchers. For example, University of Pennsylvania recently found that \u003ca href=\"http://pss.sagepub.com/content/26/2/159\">angry tweets were a strong predictor of fatal cardiac disease.\u003c/a> According to the study, the “model based only on Twitter language predicted [heart disease] mortality significantly better than did a model that combined 10 common demographic, socioeconomic and health risk factors, including smoking, diabetes, hypertension and obesity.”\u003c/p>\n\u003cfigure id=\"attachment_1551\" class=\"wp-caption alignright\" style=\"max-width: 432px\">\u003cimg class=\" wp-image-1551\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/EbolaTracking-1.jpg\" alt=\"Screenshot of a real-time Ebola tracking map from researchers at Northeastern \" width=\"432\" height=\"305\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1.jpg 1169w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-400x283.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-800x566.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-768x543.jpg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/EbolaTracking-1-320x226.jpg 320w\" sizes=\"(max-width: 432px) 100vw, 432px\">\u003cfigcaption class=\"wp-caption-text\">Screenshot of a real-time Ebola tracking map from researchers at Northeastern \u003ccite>(Emily Peters)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Researchers at Northeastern University created a real-time map tracking international \u003ca href=\"http://ebolatracking.org\">Ebola awareness\u003c/a> through tweets. In Italy, scientists improved on Google’s Flu Trends to create accurate \u003ca href=\"http://www.aiimjournal.com/article/S0933-3657(14)00004-9/abstract\">“syndromic surveillance”\u003c/a> of flu through Twitter. While the potential for social media in research is huge, there are emerging debates about the \u003ca href=\"http://sciencelife.uchospitals.edu/2014/10/21/a-tempting-source-of-data-social-media-is-uncharted-ethical-territory-for-medical-research/\">ethics and accuracy of using the data.\u003c/a>\u003c/p>\n\u003cp>\u003cstrong>Direct Messaging Candidates for Clinical Trials\u003c/strong>\u003c/p>\n\u003cp>An estimated 30 percent of the work of a clinical trial is spent on patient recruiting, and difficulty finding patients is cited as the top reason that clinical research is delayed. Social media is changing this fast.\u003c/p>\n\u003cfigure id=\"attachment_1553\" class=\"wp-caption alignleft\" style=\"max-width: 385px\">\u003cimg class=\" wp-image-1553\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/2_other_patients.png\" alt=\"A graphic developed by PatientsLikeMe\" width=\"385\" height=\"385\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients.png 2048w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-400x400.png 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-600x600.png 600w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-1180x1180.png 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-768x768.png 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-320x320.png 320w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-32x32.png 32w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-64x64.png 64w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-96x96.png 96w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-128x128.png 128w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/2_other_patients-75x75.png 75w\" sizes=\"(max-width: 385px) 100vw, 385px\">\u003cfigcaption class=\"wp-caption-text\">A graphic developed by PatientsLikeMe \u003ccite>(PatientsLikeMe)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>In fact, \u003ca href=\"http://pediatrics.aappublications.org/content/early/2014/04/09/peds.2013-2966.abstract\">one study in the journal Pediatrics\u003c/a> found that 84 percent of patients for two recent pediatric rare disease trials were referred via social media. The patient social network \u003ca href=\"http://patientslikeme.com\">PatientsLikeMe\u003c/a> even has a tool to automatically match members to over 45,000 clinical trial opportunities. Patient recruitment via social networks could lead to quicker and more cost-effective research for cures.\u003c/p>\n\u003cp>\u003cstrong>Paging Doctors About the Conversation\u003c/strong>\u003c/p>\n\u003cfigure id=\"attachment_1554\" class=\"wp-caption alignleft\" style=\"max-width: 460px\">\u003cimg class=\"wp-image-1554\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/04/171497-INFO.jpeg\" alt=\"A heat map of salaries for general surgeons by U.S. country\" width=\"460\" height=\"230\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO.jpeg 2400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-400x200.jpeg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-800x400.jpeg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-1180x590.jpeg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-768x384.jpeg 768w, https://ww2.kqed.org/app/uploads/sites/13/2015/04/171497-INFO-320x160.jpeg 320w\" sizes=\"(max-width: 460px) 100vw, 460px\">\u003cfigcaption class=\"wp-caption-text\">A heat map of salaries for general surgeons by region. \u003ccite>(Doximity)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Strict privacy restrictions made social media a dangerous territory for medical professionals early on, but the healthcare sector is adapting quickly.\u003c/p>\n\u003cp>Professional networks such as \u003ca href=\"http://sermo.com\">Sermo\u003c/a>, \u003ca href=\"http://doximity.com\">Doximity\u003c/a> and \u003ca href=\"https://figure1.com/\">Figure 1\u003c/a> have created physician-only social spaces for collaboration. Doximity has gone so far as to crowd-source information on medical training and salaries to provide back to its doctor membership. \u003ca href=\"http://network.socialmedia.mayoclinic.org/social-media-residency/\">Mayo Clinic’s Center for Social Media\u003c/a> has been a leader in helping doctors and medical organizations to dip their toes in the social waters.\u003c/p>\n\u003cp>\u003cstrong>What's Trending? Organ Donations\u003c/strong>\u003c/p>\n\u003cp>When Facebook added a single organ donation question to their timeline, over 57,000 people announced their intentions to be donors, and 13,000 officially joined their state registry in a single day— \u003ca href=\"http://www.hopkinsmedicine.org/news/media/releases/the_facebook_effect_social_media_dramatically_boosts_organ_donor_registration\">an increase of 21 times\u003c/a> over normal registration rates, according to Johns Hopkins researchers. The long-term impact of Facebook’s organ donation campaign is still being studied, but it’s a hopeful step for the over 100,000 Americans currently on organ waiting lists.\u003c/p>\n\u003cp>\u003cstrong>Making Disease Awareness Personal\u003c/strong>\u003c/p>\n\u003cp>Lastly, a social media campaign made use of Facebook’s unique features to cleverly raise awareness of a terrible disease. In Holland, health advocates photoshopped people into pictures of events they never attended and then tagged them on Facebook. A followup message said, “Confusing, right? You’re now experiencing what it’s like to have Alzheimer’s disease.” Skip to the bottom for \u003ca href=\"https://vimeo.com/85254361\">a video\u003c/a> with details of their ingenious social campaign.\u003c/p>\n\u003cp>All the examples above took place in the past few years, which suggests that this potent combination of social media and medicine is still in its early days. Despite concerns about consumer privacy and some reticence from healthcare leaders, researchers, doctors, and patients have found fresh new ways to make the most of the social networks that connect us all.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"vimeo","attributes":{"named":{"w":"500","h":"281","label":"85254361"},"numeric":["85254361"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp> \u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Disclosure: Peters is a shareholder in Doximity having worked with them until February of 2015. \u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/1261/9-fresh-ways-medicine-makes-use-of-social-media","authors":["7236"],"programs":["futureofyou_54"],"series":["futureofyou_172"],"categories":["futureofyou_1","futureofyou_73"],"tags":["futureofyou_175","futureofyou_176","futureofyou_178","futureofyou_177","futureofyou_80","futureofyou_173","futureofyou_174","futureofyou_179"],"featImg":"futureofyou_1483","label":"futureofyou_54"}},"programsReducer":{"possible":{"id":"possible","title":"Possible","info":"Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. Together in Possible, Hoffman and Finger lead enlightening discussions about building a brighter collective future. The show features interviews with visionary guests like Trevor Noah, Sam Altman and Janette Sadik-Khan. Possible paints an optimistic portrait of the world we can create through science, policy, business, art and our shared humanity. It asks: What if everything goes right for once? How can we get there? 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You ask the questions. You decide what Bay Curious investigates. 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You can also visit the MindShift website for episodes and supplemental blog posts or tweet us \u003ca href=\"https://twitter.com/MindShiftKQED\">@MindShiftKQED\u003c/a> or visit us at \u003ca href=\"/mindshift\">MindShift.KQED.org\u003c/a>","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Mindshift-Podcast-Tile-703x703-1.jpg","imageAlt":"KQED MindShift: How We Will Learn","officialWebsiteLink":"/mindshift/","meta":{"site":"news","source":"kqed","order":"2"},"link":"/podcasts/mindshift","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/mindshift-podcast/id1078765985","google":"https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5tZWdhcGhvbmUuZm0vS1FJTkM1NzY0NjAwNDI5","npr":"https://www.npr.org/podcasts/464615685/mind-shift-podcast","stitcher":"https://www.stitcher.com/podcast/kqed/stories-teachers-share","spotify":"https://open.spotify.com/show/0MxSpNYZKNprFLCl7eEtyx"}},"morning-edition":{"id":"morning-edition","title":"Morning Edition","info":"\u003cem>Morning Edition\u003c/em> takes listeners around the country and the world with multi-faceted stories and commentaries every weekday. 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On Our Watch brings listeners into the rooms where officers are questioned and witnesses are interrogated to find out who this system is really protecting. 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