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Women's Health is Too Often Overlooked; Will Digital Health be the Exception?
The Promise and Potential Pitfalls of Apple's ResearchKit
The Doctor Will Video Chat With You Now: Insurer Covers Virtual Visits
Hospitals Increasingly Turn to Patients for Advice
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Elizabeth Holmes About Her Lack of Ethics","publishDate":1527789643,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{},"content":"\u003cp>\u003cem>The following is excerpted from the recently-published BAD BLOOD: Secrets and Lies in a Silicon Valley Startup © 2018 by John Carreyrou.\u003c/em>\u003c/p>\n\u003cp>\u003cspan style=\"font-size: 4.6875em;float: left;line-height: 0.733em;padding: 0.05em 0.1em 0 0;font-family: times, serif, georgia\">T\u003c/span>im Kemp had good news for his team.\u003cem>[contextly_sidebar id=\"MdP7Z5lMJu96zwzUX7Ow2dONi1afUDKE\"]\u003c/em>\u003c/p>\n\u003cp>The former IBM executive was in charge of bioinformatics at Theranos, a startup with a cutting-edge blood-testing system. The company had just completed its first big live demonstration for a pharmaceutical company. Elizabeth Holmes, Theranos’s twenty-two-year old founder, had flown to Switzerland and shown off the system’s capabilities to executives at Novartis, the European drug giant.\u003c/p>\n\u003cp>“Elizabeth called me this morning,” Kemp wrote in an email to his fifteen-person team. “She expressed her thanks and said that, ‘it was perfect!’ She specifically asked me to thank you and let you all know her appreciation. She additionally mentioned that Novartis was so impressed that they have asked for a proposal and have expressed interest in a financial arrangement for a project. We did what we came to do!”\u003c/p>\n\u003cp>This was a pivotal moment for Theranos. The three-year-old startup had progressed from an ambitious idea Holmes had dreamed up in her Stanford dorm room to an actual product a huge multi-national corporation was interested in using.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Word of the demo’s success made its way upstairs to the second floor, where senior executives’ offices were located.\u003c/p>\n\u003cp>One of those executives was Henry Mosley, Theranos’s chief financial officer. Mosley had joined Theranos eight months earlier, in March 2006. A rumpled dresser with piercing green eyes and a laid- back personality, he was a veteran of Silicon Valley’s technology scene. After growing up in the Washington, D.C., area and getting his [contextly_sidebar id=\"1p7vzNl8SjhutYJJpE2M25rqOAG9XY2h\"]MBA at the University of Utah, he’d come out to California in the late 1970s and never left. His first job was at chipmaker Intel, one of the Valley’s pioneers. He’d later gone on to run the finance departments of four different tech companies, taking two of them public. Theranos was far from his first rodeo. What had drawn Mosley to Theranos was the talent and experience gathered around Elizabeth. She might be young, but she was surrounded by an all-star cast. The chairman of her board was Donald L. Lucas, the venture capitalist who had groomed billionaire software entrepreneur Larry Ellison and helped him take Oracle Corporation public in the mid-1980s.\u003c/p>\n\u003cp>Lucas and Ellison had both put some of their own money into Theranos.\u003c/p>\n\u003cp>Another board member with a sterling reputation was Channing Robertson, the associate dean of Stanford’s School of Engineering. Robertson was one of the stars of the Stanford faculty. His expert testimony about the addictive properties of cigarettes had forced the tobacco industry to enter into a landmark $6.5 billion settlement with the state of Minnesota in the late 1990s. Based on the few interactions Mosley had had with him, it was clear Robertson thought the world of Elizabeth.\u003c/p>\n\u003cp>Theranos also had a strong management team. Kemp had spent thirty years at IBM. Diane Parks, Theranos’s chief commercial officer, had twenty five years of experience at pharmaceutical and biotechnology companies.\u003c/p>\n\u003caside class=\"pullquote alignright\">'Henry, you’re not a team player. I think you should leave right now’\u003ccite>Elizabeth Holmes, Theranos\u003c/cite>\u003c/aside>\n\u003cp>John Howard, the senior vice president for products, had overseen Panasonic’s chip-making subsidiary. It wasn’t often that you found executives of that caliber at a small startup.\u003c/p>\n\u003cp>It wasn’t just the board and the executive team that had sold Mosley on Theranos, though. The market it was going after was huge.\u003c/p>\n\u003cp>Pharmaceutical companies spent tens of billions of dollars on clinical trials to test new drugs each year. If Theranos could make itself indispensable to them and capture a fraction of that spending, it could make a killing.\u003c/p>\n\u003cp>Elizabeth had asked him to put together some financial projections she could show investors. The first set of numbers he’d come up with hadn’t been to her liking, so he’d revised them upward. He was a little uncomfortable with the revised numbers, but he figured they were in the realm of the plausible if the company executed perfectly. Besides, the venture capitalists startups courted for funding knew that startup founders overstated these forecasts. It was part of the game. VCs even had a term for it: the hockey-stick forecast. It showed revenue stagnating for a few years and then magically shooting up in a straight line.\u003c/p>\n\u003cp>The one thing Mosley wasn’t sure he completely understood was how the Theranos technology worked. When prospective investors came by, he took them to see Shaunak Roy, Theranos’s cofounder. Shaunak had a Ph.D. in chemical engineering. He and Elizabeth had worked together in Robertson’s research lab at Stanford.\u003c/p>\n\u003cp>Shaunak would prick his finger and milk a few drops of blood from it. Then he would transfer the blood to a white plastic cartridge the size of a credit card. The cartridge would slot into a rectangular box the size of a toaster. The box was called a reader. It extracted a data signal from the cartridge and beamed it wirelessly to a server that analyzed the data and beamed back a result. That was the gist of it.\u003c/p>\n\u003cp>When Shaunak demonstrated the system to investors, he pointed them to a computer screen that showed the blood flowing through the cartridge inside the reader. Mosley didn’t really grasp the physics or chemistries at play. But that wasn’t his role. He was the finance guy. As long as the system showed a result, he was happy.\u003c/p>\n\u003cp>And it always did.\u003c/p>\n\u003cp>Elizabeth was back from Switzerland a few days later. She sauntered around with a smile on her face, more evidence that the trip had gone well, Mosley figured. Not that that was unusual. Elizabeth was often upbeat. She had an entrepreneur’s boundless optimism. She liked to use the term “extra-ordinary,” with “extra” written in italics and a hyphen for emphasis, to describe the Theranos mission in her emails to staff. It was a bit over the top, but she seemed sincere and Mosley knew that evangelizing was what successful startup founders did in Silicon Valley.\u003c/p>\n\u003cp>You didn’t change the world by being cynical.[contextly_sidebar id=\"OjldKTPAMjrDXS0GaZJlsXZZX69Swx0l\"]\u003c/p>\n\u003cp>What was odd, though, was that the handful of colleagues who’d accompanied Elizabeth on the trip didn’t seem to share her enthusiasm.\u003c/p>\n\u003cp>Some of them looked outright downcast.\u003c/p>\n\u003cp>Did someone’s puppy get run over? Mosley wondered half jokingly. He wandered downstairs, where most of the company’s sixty employees sat in clusters of cubicles, and looked for Shaunak. Surely Shaunak would know if there was any problem he hadn’t been told about.\u003c/p>\n\u003cp>At first, Shaunak professed not to know anything. But Mosley sensed he was holding back and kept pressing him. Shaunak gradually let down his guard and allowed that the Theranos 1.0, as Elizabeth had christened the blood-testing system, didn’t always work. It was kind of a crapshoot, actually, he said. Sometimes you could coax a result from it and sometimes you couldn’t.\u003c/p>\n\u003cp>This was news to Mosley. He thought the system was reliable. Didn’t it always seem to work when investors came to view it? Well, there was a reason it always seemed to work, Shaunak said. The image on the computer screen showing the blood flowing through the cartridge and settling into the little wells was real. But you never knew whether you were going to get a result or not. So they’d recorded a result from one of the times it worked. It was that recorded result that was displayed at the end of each demo.\u003c/p>\n\u003cp>Mosley was stunned. He thought the results were extracted in real time from the blood inside the cartridge. That was certainly what the investors he brought by were led to believe. What Shaunak had just described sounded like a sham. It was OK to be optimistic and aspirational when you pitched investors, but there was a line not to cross. And this, in Mosley’s view, crossed it.\u003c/p>\n\u003cp>So, what exactly had happened with Novartis?\u003c/p>\n\u003cp>Mosley couldn’t get a straight answer from anyone, but he now suspected some similar sleight of hand. And he was right. One of the two readers Elizabeth took to Switzerland had malfunctioned when they got there. The employees she brought with her had stayed up all night trying to get it to work. To mask the problem during the demo the next morning, Tim Kemp’s team in California had beamed over a fake result.[contextly_sidebar id=\"LgKmjgtchbnjv1Yna43eEkENgagVpah6\"]\u003c/p>\n\u003cp>Mosley had a weekly meeting with Elizabeth scheduled for that afternoon. When he entered her office, he was immediately reminded of her charisma. She had the presence of someone much older than she was. The way she trained her big blue eyes on you without blinking made you feel like the center of the world. It was almost hypnotic. Her voice added to the mesmerizing effect: she spoke in an unusually deep baritone.\u003c/p>\n\u003cp>Mosley decided to let the meeting run its natural course before bringing up his concerns. Theranos had just closed its third round of funding. By any measure, it was a resounding success: the company had raised another $32 million from investors, on top of the $15 million raised in its first two funding rounds. The most impressive number was its new valuation: one hundred and sixty-five million dollars. There weren’t many three-year-old startups that could say they were worth that much.\u003c/p>\n\u003cp>One big reason for the rich valuation was the agreements Theranos told investors it had reached with pharmaceutical partners. A slide deck listed six deals with five companies that would generate revenues of $120 million to $300 million over the next eighteen months. It listed another fifteen deals under negotiation. If those came to fruition, revenues could eventually reach $1.5 billion, according to the PowerPoint presentation.\u003c/p>\n\u003cp>The pharmaceutical companies were going to use Theranos’s blood-testing system to monitor patients’ response to new drugs. The cartridges and readers would be placed in patients’ homes during clinical trials. Patients would prick their fingers several times a day and the readers would beam their blood-test results to the trial’s sponsor. If the results indicated a bad reaction to the drug, the drug’s maker would be able to lower the dosage immediately rather than wait until the end of the trial. This would reduce pharmaceutical companies’ research costs by as much as 30 percent. Or so the slide deck said. Mosley’s unease with all these claims had grown since that morning’s discovery. For one thing, in his eight months at Theranos, he’d never laid eyes on the pharmaceutical contracts. Every time he inquired about them, he was told they were “under legal review.” More important, he’d agreed to those ambitious revenue forecasts because he thought the Theranos system worked reliably.[contextly_sidebar id=\"Lmew1OcyGEzSf57m7nLOV03v5I8juePH\"]\u003c/p>\n\u003cp>If Elizabeth shared any of these misgivings, she showed no signs of it. She was the picture of a relaxed and happy leader. The new valuation, in particular, was a source of great pride. New directors might join the board to reflect the growing roster of investors, she told him. Mosley saw an opening to broach the trip to Switzerland and the office rumors that something had gone wrong. When he did, Elizabeth admitted that there had been a problem, but she shrugged it off.\u003c/p>\n\u003cp>It would easily be fixed, she said.\u003c/p>\n\u003cp>Mosley was dubious given what he now knew. He brought up what Shaunak had told him about the investor demos. They should stop doing them if they weren’t completely real, he said. “We’ve been fooling investors. We can’t keep doing that.”\u003c/p>\n\u003cp>Elizabeth’s expression suddenly changed. Her cheerful demeanor of just moments ago vanished and gave way to a mask of hostility. It was like a switch had been flipped. She leveled a cold stare at her chief financial officer.\u003c/p>\n\u003cp>“Henry, you’re not a team player,” she said in an icy tone. “I think you should leave right now.”\u003c/p>\n\u003cp>There was no mistaking what had just happened. Elizabeth wasn’t merely asking him to get out of her office. She was telling him to leave the company—immediately. Mosley had just been fired.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>BAD BLOOD: Secrets and Lies in a Silicon Valley Startup © 2018 by John Carreyrou.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Author John Carreyrou gets inside the sordid rise and fall of a biotech flameout.","status":"publish","parent":0,"modified":1535389088,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":41,"wordCount":2163},"headData":{"title":"Book Excerpt: What Happened When Theranos Exec Confronted Elizabeth Holmes About Her Lack of Ethics | KQED","description":"Author John Carreyrou gets inside the sordid rise and fall of a biotech flameout.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Book Excerpt: What Happened When Theranos Exec Confronted Elizabeth Holmes About Her Lack of Ethics","datePublished":"2018-05-31T18:00:43.000Z","dateModified":"2018-08-27T16:58:08.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"442098 https://ww2.kqed.org/futureofyou/?p=442098","disqusUrl":"https://ww2.kqed.org/futureofyou/2018/05/31/book-excerpt-one-execs-tumultuous-last-day-at-theranos/","disqusTitle":"Book Excerpt: What Happened When Theranos Exec Confronted Elizabeth Holmes About Her Lack of Ethics","source":"Hope/Hype","nprByline":"John Carreyrou","path":"/futureofyou/442098/book-excerpt-one-execs-tumultuous-last-day-at-theranos","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003cem>The following is excerpted from the recently-published BAD BLOOD: Secrets and Lies in a Silicon Valley Startup © 2018 by John Carreyrou.\u003c/em>\u003c/p>\n\u003cp>\u003cspan style=\"font-size: 4.6875em;float: left;line-height: 0.733em;padding: 0.05em 0.1em 0 0;font-family: times, serif, georgia\">T\u003c/span>im Kemp had good news for his team.\u003cem>\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/em>\u003c/p>\n\u003cp>The former IBM executive was in charge of bioinformatics at Theranos, a startup with a cutting-edge blood-testing system. The company had just completed its first big live demonstration for a pharmaceutical company. Elizabeth Holmes, Theranos’s twenty-two-year old founder, had flown to Switzerland and shown off the system’s capabilities to executives at Novartis, the European drug giant.\u003c/p>\n\u003cp>“Elizabeth called me this morning,” Kemp wrote in an email to his fifteen-person team. “She expressed her thanks and said that, ‘it was perfect!’ She specifically asked me to thank you and let you all know her appreciation. She additionally mentioned that Novartis was so impressed that they have asked for a proposal and have expressed interest in a financial arrangement for a project. We did what we came to do!”\u003c/p>\n\u003cp>This was a pivotal moment for Theranos. The three-year-old startup had progressed from an ambitious idea Holmes had dreamed up in her Stanford dorm room to an actual product a huge multi-national corporation was interested in using.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Word of the demo’s success made its way upstairs to the second floor, where senior executives’ offices were located.\u003c/p>\n\u003cp>One of those executives was Henry Mosley, Theranos’s chief financial officer. Mosley had joined Theranos eight months earlier, in March 2006. A rumpled dresser with piercing green eyes and a laid- back personality, he was a veteran of Silicon Valley’s technology scene. After growing up in the Washington, D.C., area and getting his \u003c/p>\u003cp>\u003c/p>\u003cp>MBA at the University of Utah, he’d come out to California in the late 1970s and never left. His first job was at chipmaker Intel, one of the Valley’s pioneers. He’d later gone on to run the finance departments of four different tech companies, taking two of them public. Theranos was far from his first rodeo. What had drawn Mosley to Theranos was the talent and experience gathered around Elizabeth. She might be young, but she was surrounded by an all-star cast. The chairman of her board was Donald L. Lucas, the venture capitalist who had groomed billionaire software entrepreneur Larry Ellison and helped him take Oracle Corporation public in the mid-1980s.\u003c/p>\n\u003cp>Lucas and Ellison had both put some of their own money into Theranos.\u003c/p>\n\u003cp>Another board member with a sterling reputation was Channing Robertson, the associate dean of Stanford’s School of Engineering. Robertson was one of the stars of the Stanford faculty. His expert testimony about the addictive properties of cigarettes had forced the tobacco industry to enter into a landmark $6.5 billion settlement with the state of Minnesota in the late 1990s. Based on the few interactions Mosley had had with him, it was clear Robertson thought the world of Elizabeth.\u003c/p>\n\u003cp>Theranos also had a strong management team. Kemp had spent thirty years at IBM. Diane Parks, Theranos’s chief commercial officer, had twenty five years of experience at pharmaceutical and biotechnology companies.\u003c/p>\n\u003caside class=\"pullquote alignright\">'Henry, you’re not a team player. I think you should leave right now’\u003ccite>Elizabeth Holmes, Theranos\u003c/cite>\u003c/aside>\n\u003cp>John Howard, the senior vice president for products, had overseen Panasonic’s chip-making subsidiary. It wasn’t often that you found executives of that caliber at a small startup.\u003c/p>\n\u003cp>It wasn’t just the board and the executive team that had sold Mosley on Theranos, though. The market it was going after was huge.\u003c/p>\n\u003cp>Pharmaceutical companies spent tens of billions of dollars on clinical trials to test new drugs each year. If Theranos could make itself indispensable to them and capture a fraction of that spending, it could make a killing.\u003c/p>\n\u003cp>Elizabeth had asked him to put together some financial projections she could show investors. The first set of numbers he’d come up with hadn’t been to her liking, so he’d revised them upward. He was a little uncomfortable with the revised numbers, but he figured they were in the realm of the plausible if the company executed perfectly. Besides, the venture capitalists startups courted for funding knew that startup founders overstated these forecasts. It was part of the game. VCs even had a term for it: the hockey-stick forecast. It showed revenue stagnating for a few years and then magically shooting up in a straight line.\u003c/p>\n\u003cp>The one thing Mosley wasn’t sure he completely understood was how the Theranos technology worked. When prospective investors came by, he took them to see Shaunak Roy, Theranos’s cofounder. Shaunak had a Ph.D. in chemical engineering. He and Elizabeth had worked together in Robertson’s research lab at Stanford.\u003c/p>\n\u003cp>Shaunak would prick his finger and milk a few drops of blood from it. Then he would transfer the blood to a white plastic cartridge the size of a credit card. The cartridge would slot into a rectangular box the size of a toaster. The box was called a reader. It extracted a data signal from the cartridge and beamed it wirelessly to a server that analyzed the data and beamed back a result. That was the gist of it.\u003c/p>\n\u003cp>When Shaunak demonstrated the system to investors, he pointed them to a computer screen that showed the blood flowing through the cartridge inside the reader. Mosley didn’t really grasp the physics or chemistries at play. But that wasn’t his role. He was the finance guy. As long as the system showed a result, he was happy.\u003c/p>\n\u003cp>And it always did.\u003c/p>\n\u003cp>Elizabeth was back from Switzerland a few days later. She sauntered around with a smile on her face, more evidence that the trip had gone well, Mosley figured. Not that that was unusual. Elizabeth was often upbeat. She had an entrepreneur’s boundless optimism. She liked to use the term “extra-ordinary,” with “extra” written in italics and a hyphen for emphasis, to describe the Theranos mission in her emails to staff. It was a bit over the top, but she seemed sincere and Mosley knew that evangelizing was what successful startup founders did in Silicon Valley.\u003c/p>\n\u003cp>You didn’t change the world by being cynical.\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003cp>What was odd, though, was that the handful of colleagues who’d accompanied Elizabeth on the trip didn’t seem to share her enthusiasm.\u003c/p>\n\u003cp>Some of them looked outright downcast.\u003c/p>\n\u003cp>Did someone’s puppy get run over? Mosley wondered half jokingly. He wandered downstairs, where most of the company’s sixty employees sat in clusters of cubicles, and looked for Shaunak. Surely Shaunak would know if there was any problem he hadn’t been told about.\u003c/p>\n\u003cp>At first, Shaunak professed not to know anything. But Mosley sensed he was holding back and kept pressing him. Shaunak gradually let down his guard and allowed that the Theranos 1.0, as Elizabeth had christened the blood-testing system, didn’t always work. It was kind of a crapshoot, actually, he said. Sometimes you could coax a result from it and sometimes you couldn’t.\u003c/p>\n\u003cp>This was news to Mosley. He thought the system was reliable. Didn’t it always seem to work when investors came to view it? Well, there was a reason it always seemed to work, Shaunak said. The image on the computer screen showing the blood flowing through the cartridge and settling into the little wells was real. But you never knew whether you were going to get a result or not. So they’d recorded a result from one of the times it worked. It was that recorded result that was displayed at the end of each demo.\u003c/p>\n\u003cp>Mosley was stunned. He thought the results were extracted in real time from the blood inside the cartridge. That was certainly what the investors he brought by were led to believe. What Shaunak had just described sounded like a sham. It was OK to be optimistic and aspirational when you pitched investors, but there was a line not to cross. And this, in Mosley’s view, crossed it.\u003c/p>\n\u003cp>So, what exactly had happened with Novartis?\u003c/p>\n\u003cp>Mosley couldn’t get a straight answer from anyone, but he now suspected some similar sleight of hand. And he was right. One of the two readers Elizabeth took to Switzerland had malfunctioned when they got there. The employees she brought with her had stayed up all night trying to get it to work. To mask the problem during the demo the next morning, Tim Kemp’s team in California had beamed over a fake result.\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003cp>Mosley had a weekly meeting with Elizabeth scheduled for that afternoon. When he entered her office, he was immediately reminded of her charisma. She had the presence of someone much older than she was. The way she trained her big blue eyes on you without blinking made you feel like the center of the world. It was almost hypnotic. Her voice added to the mesmerizing effect: she spoke in an unusually deep baritone.\u003c/p>\n\u003cp>Mosley decided to let the meeting run its natural course before bringing up his concerns. Theranos had just closed its third round of funding. By any measure, it was a resounding success: the company had raised another $32 million from investors, on top of the $15 million raised in its first two funding rounds. The most impressive number was its new valuation: one hundred and sixty-five million dollars. There weren’t many three-year-old startups that could say they were worth that much.\u003c/p>\n\u003cp>One big reason for the rich valuation was the agreements Theranos told investors it had reached with pharmaceutical partners. A slide deck listed six deals with five companies that would generate revenues of $120 million to $300 million over the next eighteen months. It listed another fifteen deals under negotiation. If those came to fruition, revenues could eventually reach $1.5 billion, according to the PowerPoint presentation.\u003c/p>\n\u003cp>The pharmaceutical companies were going to use Theranos’s blood-testing system to monitor patients’ response to new drugs. The cartridges and readers would be placed in patients’ homes during clinical trials. Patients would prick their fingers several times a day and the readers would beam their blood-test results to the trial’s sponsor. If the results indicated a bad reaction to the drug, the drug’s maker would be able to lower the dosage immediately rather than wait until the end of the trial. This would reduce pharmaceutical companies’ research costs by as much as 30 percent. Or so the slide deck said. Mosley’s unease with all these claims had grown since that morning’s discovery. For one thing, in his eight months at Theranos, he’d never laid eyes on the pharmaceutical contracts. Every time he inquired about them, he was told they were “under legal review.” More important, he’d agreed to those ambitious revenue forecasts because he thought the Theranos system worked reliably.\u003c/p>\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003cp>If Elizabeth shared any of these misgivings, she showed no signs of it. She was the picture of a relaxed and happy leader. The new valuation, in particular, was a source of great pride. New directors might join the board to reflect the growing roster of investors, she told him. Mosley saw an opening to broach the trip to Switzerland and the office rumors that something had gone wrong. When he did, Elizabeth admitted that there had been a problem, but she shrugged it off.\u003c/p>\n\u003cp>It would easily be fixed, she said.\u003c/p>\n\u003cp>Mosley was dubious given what he now knew. He brought up what Shaunak had told him about the investor demos. They should stop doing them if they weren’t completely real, he said. “We’ve been fooling investors. We can’t keep doing that.”\u003c/p>\n\u003cp>Elizabeth’s expression suddenly changed. Her cheerful demeanor of just moments ago vanished and gave way to a mask of hostility. It was like a switch had been flipped. She leveled a cold stare at her chief financial officer.\u003c/p>\n\u003cp>“Henry, you’re not a team player,” she said in an icy tone. “I think you should leave right now.”\u003c/p>\n\u003cp>There was no mistaking what had just happened. Elizabeth wasn’t merely asking him to get out of her office. She was telling him to leave the company—immediately. Mosley had just been fired.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>BAD BLOOD: Secrets and Lies in a Silicon Valley Startup © 2018 by John Carreyrou.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/442098/book-excerpt-one-execs-tumultuous-last-day-at-theranos","authors":["byline_futureofyou_442098"],"categories":["futureofyou_1060","futureofyou_1062","futureofyou_1"],"tags":["futureofyou_1508","futureofyou_814","futureofyou_1275","futureofyou_34","futureofyou_617"],"featImg":"futureofyou_145322","label":"source_futureofyou_442098"},"futureofyou_52162":{"type":"posts","id":"futureofyou_52162","meta":{"index":"posts_1591205157","site":"futureofyou","id":"52162","score":null,"sort":[1445019684000]},"guestAuthors":[],"slug":"no-jeb-bush-money-for-games-to-combat-childhood-obesity-is-no-waste","title":"No, Jeb Bush: Money for Games to Combat Childhood Obesity is No Waste","publishDate":1445019684,"format":"standard","headTitle":"Contributor | KQED Future of You | KQED Science","labelTerm":{},"content":"\u003cfigure id=\"attachment_53085\" class=\"wp-caption alignright\" style=\"max-width: 236px\">\u003cimg class=\" wp-image-53085\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-480x600.jpg\" alt=\"Thea Runyan, a Bay Area-based health educator. \" width=\"236\" height=\"295\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-480x600.jpg 480w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-400x500.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-944x1180.jpg 944w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-1920x2400.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-1180x1475.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-960x1200.jpg 960w\" sizes=\"(max-width: 236px) 100vw, 236px\">\u003cfigcaption class=\"wp-caption-text\">Thea Runyan, a Bay Area-based health educator specializing in weight loss programs for kids. \u003ccite>(Thea Runyan)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cem>\u003cstrong>Editor's Note:\u003c/strong> Thea Runyan, MPH, is a health educator and behavioral coach specializing in weight loss programs for obese and overweight children. I asked Runyan to share her views as she has spent over a decade developing both online and offline weight loss programs for kids. Runyan has developed a coaching app, which is based on principles she learned as a health educator, but she hasn't used federal funding.\u003c/em>\u003c/p>\n\u003cp>Earlier this week, presidential candidate \u003ca href=\"http://www.bostonglobe.com/news/politics/2015/10/13/jeb-bush-goes-after-anti-obesity-video-game-that-conservatives-love-hate/XJyPwoZcT17CNxnLI4VXLI/story.html\" target=\"_blank\">Jeb Bush described \u003c/a>a game that teaches children about healthy eating as a waste of \"scarce [federal] resources.\" The game, called “Mommio” is being developed with a $2 million grant from the National Institutes of Health.\u003c/p>\n\u003cp>I disagree with this assessment. In my fifteen years as a behavioral coach and health educator, I've seen a lot of inefficiency and waste. But I believe technology represents an opportunity to help us teach children healthy eating habits.\u003c/p>\n\u003cp>I applaud the government in supporting an initiative that is relevant, may be used by families, and is relatively cost-effective compared with the millions upon millions of dollars in grant money spent on \u003ca href=\"http://www.ncbi.nlm.nih.gov/books/NBK148737/\" target=\"_blank\">childhood obesity initiatives\u003c/a> across the country. Many of these programs are poorly coordinated (if at all), unmeasured and cannot be implemented at scale. And that's without counting the long-term medical costs linked to childhood obesity, which include Type 2 diabetes, heart disease and cancer.\u003c/p>\n\u003cp>\u003ca href=\"http://www.cdc.gov/healthyschools/obesity/facts.htm\" target=\"_blank\">According to the CDC,\u003c/a> the percentage of young children, aged 6 to 11, who are obese in the U.S. increased from 7 percent in 1980 to nearly 18 percent in 2012. And in 2012, fully one-third of all children and adolescents were overweight or obese.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>For 12 years, I worked as a behavioral coach at the Lucile Packard Children's Hospital at Stanford. A large part of my job was to work with parents to create healthy environments for kids and teens. It was a major challenge for families to make healthy choices about food and exercise. Nutrition, in particular, proved to be very confusing for adults and kids.\u003c/p>\n\u003cp>There was clearly a need for a tool that would make it easier for families to access information that would support the healthy lifestyle changes they were making. We predicted that a mobile app with health education and behavior modification tools, combined with a brief weekly check-in with a coach, would be a fun and engaging way for families to make these changes.\u003c/p>\n\u003cp>After licensing the program from Stanford University, we secured private funding to create a mobile and online weight management program for kids, teens and their families.\u003c/p>\n\u003cp>When I started a mobile coaching app to help obese children and teens lose weight, called Kurbo, I saw first-hand that technology, including apps and games, can make it easier for families to navigate these challenging concepts. At Kurbo, we created a learning game called Red Raisins that teaches families which foods are healthy or not by labeling them as \"green,\" \"yellow\" and \"red.\" It also teaches how to count portion sizes and read labels. This is one of the most popular features of the app.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Others [critics] have referred to me as a \"crazy nutrition mom\" or the \"food police.\"\u003cbr>\n\u003ccite>Thea Runyan, health educator and behavioral coach \u003c/cite>\u003c/aside>\n\u003cp>In my view, today's parents are far more likely to use a technology tool like Mommio than read a medical textbook, enroll in an expensive healthy eating program, or even seek advice from a doctor or dietician.\u003c/p>\n\u003cp>Still, like the CEO of Mommio, I've heard many criticisms over the years.\u003c/p>\n\u003cp>Some have argued that video games, app trackers and the rest are additional screen-time that contribute to a sedentary lifestyle. This is a silly and outdated view. Kids and parents are on their phones. Health educators need to meet them where they are. Others [critics] have referred to me as a \"crazy nutrition mom\" or the \"food police.\"\u003c/p>\n\u003cp>Unfortunately, the field is still nascent and we lack conclusive research to prove that technology can make a difference in the childhood obesity epidemic. But that makes it imperative for games like Mommio to get the funding they need, so we can track the impact.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>The bottom line is that $2 million is a very small price to pay if the game is able to improve health behaviors in millions of people.\u003c/p>\n\n","blocks":[],"excerpt":"Jeb Bush says a game that aims to help kids eat vegetables is a waste of tax dollars. As a veteran behavioral health coach, I believe his view is short-sighted. ","status":"publish","parent":0,"modified":1514571565,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":16,"wordCount":780},"headData":{"title":"No, Jeb Bush: Money for Games to Combat Childhood Obesity is No Waste | KQED","description":"Jeb Bush says a game that aims to help kids eat vegetables is a waste of tax dollars. As a veteran behavioral health coach, I believe his view is short-sighted. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"No, Jeb Bush: Money for Games to Combat Childhood Obesity is No Waste","datePublished":"2015-10-16T18:21:24.000Z","dateModified":"2017-12-29T18:19:25.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"52162 http://ww2.kqed.org/futureofyou/?p=52162","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/10/16/no-jeb-bush-money-for-games-to-combat-childhood-obesity-is-no-waste/","disqusTitle":"No, Jeb Bush: Money for Games to Combat Childhood Obesity is No Waste","source":"Op-Ed","nprByline":"Thea Runyan, MPH","path":"/futureofyou/52162/no-jeb-bush-money-for-games-to-combat-childhood-obesity-is-no-waste","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cfigure id=\"attachment_53085\" class=\"wp-caption alignright\" style=\"max-width: 236px\">\u003cimg class=\" wp-image-53085\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-480x600.jpg\" alt=\"Thea Runyan, a Bay Area-based health educator. \" width=\"236\" height=\"295\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-480x600.jpg 480w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-400x500.jpg 400w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-944x1180.jpg 944w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-1920x2400.jpg 1920w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-1180x1475.jpg 1180w, https://ww2.kqed.org/app/uploads/sites/13/2015/10/DSC_8404-Edit-Edit-3-3-960x1200.jpg 960w\" sizes=\"(max-width: 236px) 100vw, 236px\">\u003cfigcaption class=\"wp-caption-text\">Thea Runyan, a Bay Area-based health educator specializing in weight loss programs for kids. \u003ccite>(Thea Runyan)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003cem>\u003cstrong>Editor's Note:\u003c/strong> Thea Runyan, MPH, is a health educator and behavioral coach specializing in weight loss programs for obese and overweight children. I asked Runyan to share her views as she has spent over a decade developing both online and offline weight loss programs for kids. Runyan has developed a coaching app, which is based on principles she learned as a health educator, but she hasn't used federal funding.\u003c/em>\u003c/p>\n\u003cp>Earlier this week, presidential candidate \u003ca href=\"http://www.bostonglobe.com/news/politics/2015/10/13/jeb-bush-goes-after-anti-obesity-video-game-that-conservatives-love-hate/XJyPwoZcT17CNxnLI4VXLI/story.html\" target=\"_blank\">Jeb Bush described \u003c/a>a game that teaches children about healthy eating as a waste of \"scarce [federal] resources.\" The game, called “Mommio” is being developed with a $2 million grant from the National Institutes of Health.\u003c/p>\n\u003cp>I disagree with this assessment. In my fifteen years as a behavioral coach and health educator, I've seen a lot of inefficiency and waste. But I believe technology represents an opportunity to help us teach children healthy eating habits.\u003c/p>\n\u003cp>I applaud the government in supporting an initiative that is relevant, may be used by families, and is relatively cost-effective compared with the millions upon millions of dollars in grant money spent on \u003ca href=\"http://www.ncbi.nlm.nih.gov/books/NBK148737/\" target=\"_blank\">childhood obesity initiatives\u003c/a> across the country. Many of these programs are poorly coordinated (if at all), unmeasured and cannot be implemented at scale. And that's without counting the long-term medical costs linked to childhood obesity, which include Type 2 diabetes, heart disease and cancer.\u003c/p>\n\u003cp>\u003ca href=\"http://www.cdc.gov/healthyschools/obesity/facts.htm\" target=\"_blank\">According to the CDC,\u003c/a> the percentage of young children, aged 6 to 11, who are obese in the U.S. increased from 7 percent in 1980 to nearly 18 percent in 2012. And in 2012, fully one-third of all children and adolescents were overweight or obese.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>For 12 years, I worked as a behavioral coach at the Lucile Packard Children's Hospital at Stanford. A large part of my job was to work with parents to create healthy environments for kids and teens. It was a major challenge for families to make healthy choices about food and exercise. Nutrition, in particular, proved to be very confusing for adults and kids.\u003c/p>\n\u003cp>There was clearly a need for a tool that would make it easier for families to access information that would support the healthy lifestyle changes they were making. We predicted that a mobile app with health education and behavior modification tools, combined with a brief weekly check-in with a coach, would be a fun and engaging way for families to make these changes.\u003c/p>\n\u003cp>After licensing the program from Stanford University, we secured private funding to create a mobile and online weight management program for kids, teens and their families.\u003c/p>\n\u003cp>When I started a mobile coaching app to help obese children and teens lose weight, called Kurbo, I saw first-hand that technology, including apps and games, can make it easier for families to navigate these challenging concepts. At Kurbo, we created a learning game called Red Raisins that teaches families which foods are healthy or not by labeling them as \"green,\" \"yellow\" and \"red.\" It also teaches how to count portion sizes and read labels. This is one of the most popular features of the app.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Others [critics] have referred to me as a \"crazy nutrition mom\" or the \"food police.\"\u003cbr>\n\u003ccite>Thea Runyan, health educator and behavioral coach \u003c/cite>\u003c/aside>\n\u003cp>In my view, today's parents are far more likely to use a technology tool like Mommio than read a medical textbook, enroll in an expensive healthy eating program, or even seek advice from a doctor or dietician.\u003c/p>\n\u003cp>Still, like the CEO of Mommio, I've heard many criticisms over the years.\u003c/p>\n\u003cp>Some have argued that video games, app trackers and the rest are additional screen-time that contribute to a sedentary lifestyle. This is a silly and outdated view. Kids and parents are on their phones. Health educators need to meet them where they are. Others [critics] have referred to me as a \"crazy nutrition mom\" or the \"food police.\"\u003c/p>\n\u003cp>Unfortunately, the field is still nascent and we lack conclusive research to prove that technology can make a difference in the childhood obesity epidemic. But that makes it imperative for games like Mommio to get the funding they need, so we can track the impact.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>The bottom line is that $2 million is a very small price to pay if the game is able to improve health behaviors in millions of people.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/52162/no-jeb-bush-money-for-games-to-combat-childhood-obesity-is-no-waste","authors":["byline_futureofyou_52162"],"series":["futureofyou_172"],"categories":["futureofyou_1060","futureofyou_1062"],"tags":["futureofyou_618","futureofyou_34","futureofyou_619","futureofyou_615","futureofyou_562"],"featImg":"futureofyou_52163","label":"source_futureofyou_52162"},"futureofyou_28721":{"type":"posts","id":"futureofyou_28721","meta":{"index":"posts_1591205157","site":"futureofyou","id":"28721","score":null,"sort":[1440176405000]},"guestAuthors":[],"slug":"scientists-create-vomiting-machine-to-learn-how-norovirus-spreads","title":"Scientists Create Vomiting Machine to Learn How Norovirus Spreads","publishDate":1440176405,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{"site":"futureofyou"},"content":"\u003cp>Norovirus is a huge public health problem, sickening \u003ca href=\"http://www.cdc.gov/norovirus/trends-outbreaks.html\">as many as 21 million people a year\u003c/a> in the U.S. But for all the gastric distress it causes, there are still some basic, unanswered questions about the virus.\u003c/p>\n\u003cp>One biggie: When an ill person vomits, does norovirus become aerosolized? That is, can an ill person's vomiting launch tiny viral particles into the air, where they might waft into your mouth or onto surfaces that you would later touch?\u003c/p>\n\u003caside class=\"pullquote alignright\">A person sick with norovirus can spread billions of infectious particles, and only 18 are enough to make another person ill.\u003ccite>Centers for Disease Prevention and Control\u003c/cite>\u003c/aside>\n\u003cp>If you're now grossed out, you have good reason. Studies of the infection patterns that occur in outbreaks suggest that norovirus can indeed be aerosolized. And now there's some experimental evidence to add to that.\u003c/p>\n\u003cp>Researchers at North Carolina State and Wake Forest universities wanted to know what happens to norovirus when it's vomited out.\u003c/p>\n\u003cp>\"We first talked to a gastroenterologist and looked through the literature about what's known about vomiting,\" says \u003ca href=\"http://fbns.ncsu.edu/faculty-directory/lee-ann-jaykus/\">Lee-Ann Jaykus\u003c/a>, a food microbiologist at N.C. State and an author of the study. Not as much as you might think, it turns out. So the researchers worked with a civil engineer to construct a one-quarter scale vomiting device based on what \u003cem>is\u003c/em> known about pressure, volume and other vomit metrics.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>The device allowed the researchers to control the volume, viscosity and pressure of the simulated vomiting incidents. Jell-O instant pudding was added to make the lab vomit thicker.\u003c/p>\n\u003cp>Then they ran a series of experiments, changing the variables to simulate a range of vomiting behavior. They even ran one series of incidents with post-vomit retches.\u003c/p>\n\u003cfigure id=\"attachment_28726\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"size-medium wp-image-28726\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85-800x495.jpg\" alt=\"The vomit machine and vomit chamber.\" width=\"800\" height=\"495\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85-400x248.jpg 400w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The vomit machine and vomit chamber. \u003ccite>(Courtesy of Grace Tung-Thompson)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Though they conducted the experiments in a sealed Plexiglas box under a biosafety hood, norovirus was still too dangerous to use. A person sick with norovirus can spread billions of infectious particles, and only 18 are enough to make another person ill, the Centers for Disease Control and Prevention \u003ca href=\"http://www.cdc.gov/norovirus/hcp/clinical-overview.html\">says\u003c/a>.\u003c/p>\n\u003cp>So the researchers enlisted a harmless stand-in, a bacteriophage that is often used in place of norovirus in experiments. Only a fraction of virus particles were aerosolized during a typical vomiting incident. But there were definitely enough to make you sick.\u003c/p>\n\u003cp>The results \u003ca href=\"http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0134277\">appear\u003c/a> in the journal \u003cem>PLOS ONE\u003c/em>.\u003c/p>\n\u003cp>Another \u003ca href=\"http://www.ncbi.nlm.nih.gov/pubmed/25900175\">recent study\u003c/a> collected air samples from eight health care facilities during norovirus outbreaks and found viral particles outside patient rooms.\u003c/p>\n\u003cp>\"Taken together, they start to paint a pretty good picture of why norovirus is so atrociously infectious,\" says \u003ca href=\"http://healthcare.utah.edu/fad/mddetail.php?physicianID=u0028338\">Andrew Pavia\u003c/a>, chief of the division of pediatric infectious diseases at the University of Utah and a spokesman for the Infectious Diseases Society of America.\u003c/p>\n\u003cp>Of course, though the researchers did their best to simulate human vomiting, they didn't do a complete mock-up of the human digestive system. (A robot named \u003ca href=\"http://www.npr.org/sections/health-shots/2013/01/04/168608466/as-norovirus-rages-a-robot-named-vomiting-larry-gets-a-closeup\">Vomiting Larry\u003c/a> is more anatomically accurate, but is less precise with regard to pressure, says Pavia.) And while the bacteriophage was chosen because of its similarity to norovirus, it may not behave the same way when aerosolized, he says.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>Katherine Hobson is a freelance health and science writer based in Brooklyn, N.Y. She's on Twitter: \u003c/em>\u003ca href=\"https://twitter.com/katherinehobson\">@katherinehobson\u003c/a>\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Scientists+Create+Vomiting+Machine+To+Learn+How+Norovirus+Spreads&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/div>\n\n","blocks":[],"excerpt":"To investigate whether norovirus particles might form an infectious aerosol spray when a sick person vomits, researchers built a simulator that uses Jell-O instant pudding in explosive experiments.","status":"publish","parent":0,"modified":1477279802,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":16,"wordCount":567},"headData":{"title":"Scientists Create Vomiting Machine to Learn How Norovirus Spreads | KQED","description":"To investigate whether norovirus particles might form an infectious aerosol spray when a sick person vomits, researchers built a simulator that uses Jell-O instant pudding in explosive experiments.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Scientists Create Vomiting Machine to Learn How Norovirus Spreads","datePublished":"2015-08-21T17:00:05.000Z","dateModified":"2016-10-24T03:30:02.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"28721 http://ww2.kqed.org/futureofyou/?p=28721","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/08/21/scientists-create-vomiting-machine-to-learn-how-norovirus-spreads/","disqusTitle":"Scientists Create Vomiting Machine to Learn How Norovirus Spreads","nprByline":"Katherine Hobson","nprStoryId":"432770292","nprApiLink":"http://api.npr.org/query?id=432770292&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"http://www.npr.org/sections/health-shots/2015/08/19/432770292/scientists-create-vomiting-machine-to-learn-how-norovirus-spreads?ft=nprml&f=432770292","nprRetrievedStory":"1","nprPubDate":"Thu, 20 Aug 2015 16:58:00 -0400","nprStoryDate":"Wed, 19 Aug 2015 14:04:00 -0400","nprLastModifiedDate":"Thu, 20 Aug 2015 16:58:33 -0400","path":"/futureofyou/28721/scientists-create-vomiting-machine-to-learn-how-norovirus-spreads","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Norovirus is a huge public health problem, sickening \u003ca href=\"http://www.cdc.gov/norovirus/trends-outbreaks.html\">as many as 21 million people a year\u003c/a> in the U.S. But for all the gastric distress it causes, there are still some basic, unanswered questions about the virus.\u003c/p>\n\u003cp>One biggie: When an ill person vomits, does norovirus become aerosolized? That is, can an ill person's vomiting launch tiny viral particles into the air, where they might waft into your mouth or onto surfaces that you would later touch?\u003c/p>\n\u003caside class=\"pullquote alignright\">A person sick with norovirus can spread billions of infectious particles, and only 18 are enough to make another person ill.\u003ccite>Centers for Disease Prevention and Control\u003c/cite>\u003c/aside>\n\u003cp>If you're now grossed out, you have good reason. Studies of the infection patterns that occur in outbreaks suggest that norovirus can indeed be aerosolized. And now there's some experimental evidence to add to that.\u003c/p>\n\u003cp>Researchers at North Carolina State and Wake Forest universities wanted to know what happens to norovirus when it's vomited out.\u003c/p>\n\u003cp>\"We first talked to a gastroenterologist and looked through the literature about what's known about vomiting,\" says \u003ca href=\"http://fbns.ncsu.edu/faculty-directory/lee-ann-jaykus/\">Lee-Ann Jaykus\u003c/a>, a food microbiologist at N.C. State and an author of the study. Not as much as you might think, it turns out. So the researchers worked with a civil engineer to construct a one-quarter scale vomiting device based on what \u003cem>is\u003c/em> known about pressure, volume and other vomit metrics.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The device allowed the researchers to control the volume, viscosity and pressure of the simulated vomiting incidents. Jell-O instant pudding was added to make the lab vomit thicker.\u003c/p>\n\u003cp>Then they ran a series of experiments, changing the variables to simulate a range of vomiting behavior. They even ran one series of incidents with post-vomit retches.\u003c/p>\n\u003cfigure id=\"attachment_28726\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg class=\"size-medium wp-image-28726\" src=\"http://ww2.kqed.org/futureofyou/wp-content/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85-800x495.jpg\" alt=\"The vomit machine and vomit chamber.\" width=\"800\" height=\"495\" srcset=\"https://ww2.kqed.org/app/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85.jpg 800w, https://ww2.kqed.org/app/uploads/sites/13/2015/08/vomit-machine-1_custom-aa79d2130a323c615c415048d9e664e284beeeea-s800-c85-400x248.jpg 400w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The vomit machine and vomit chamber. \u003ccite>(Courtesy of Grace Tung-Thompson)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Though they conducted the experiments in a sealed Plexiglas box under a biosafety hood, norovirus was still too dangerous to use. A person sick with norovirus can spread billions of infectious particles, and only 18 are enough to make another person ill, the Centers for Disease Control and Prevention \u003ca href=\"http://www.cdc.gov/norovirus/hcp/clinical-overview.html\">says\u003c/a>.\u003c/p>\n\u003cp>So the researchers enlisted a harmless stand-in, a bacteriophage that is often used in place of norovirus in experiments. Only a fraction of virus particles were aerosolized during a typical vomiting incident. But there were definitely enough to make you sick.\u003c/p>\n\u003cp>The results \u003ca href=\"http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0134277\">appear\u003c/a> in the journal \u003cem>PLOS ONE\u003c/em>.\u003c/p>\n\u003cp>Another \u003ca href=\"http://www.ncbi.nlm.nih.gov/pubmed/25900175\">recent study\u003c/a> collected air samples from eight health care facilities during norovirus outbreaks and found viral particles outside patient rooms.\u003c/p>\n\u003cp>\"Taken together, they start to paint a pretty good picture of why norovirus is so atrociously infectious,\" says \u003ca href=\"http://healthcare.utah.edu/fad/mddetail.php?physicianID=u0028338\">Andrew Pavia\u003c/a>, chief of the division of pediatric infectious diseases at the University of Utah and a spokesman for the Infectious Diseases Society of America.\u003c/p>\n\u003cp>Of course, though the researchers did their best to simulate human vomiting, they didn't do a complete mock-up of the human digestive system. (A robot named \u003ca href=\"http://www.npr.org/sections/health-shots/2013/01/04/168608466/as-norovirus-rages-a-robot-named-vomiting-larry-gets-a-closeup\">Vomiting Larry\u003c/a> is more anatomically accurate, but is less precise with regard to pressure, says Pavia.) And while the bacteriophage was chosen because of its similarity to norovirus, it may not behave the same way when aerosolized, he says.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>Katherine Hobson is a freelance health and science writer based in Brooklyn, N.Y. She's on Twitter: \u003c/em>\u003ca href=\"https://twitter.com/katherinehobson\">@katherinehobson\u003c/a>\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Scientists+Create+Vomiting+Machine+To+Learn+How+Norovirus+Spreads&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/28721/scientists-create-vomiting-machine-to-learn-how-norovirus-spreads","authors":["byline_futureofyou_28721"],"categories":["futureofyou_1062"],"tags":["futureofyou_34","futureofyou_80","futureofyou_568","futureofyou_125"],"featImg":"futureofyou_28722","label":"futureofyou"},"futureofyou_22981":{"type":"posts","id":"futureofyou_22981","meta":{"index":"posts_1591205157","site":"futureofyou","id":"22981","score":null,"sort":[1439220729000]},"guestAuthors":[],"slug":"think-twice-before-you-bargain-hunt-for-health-care-procedures","title":"Think Twice Before You Bargain Hunt for Health Procedures Online","publishDate":1439220729,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{"site":"futureofyou"},"content":"\u003cp>\u003ca href=\"http://www.scpr.org/blogs/health/2015/08/05/18054/bargain-hunt-for-health-care-procedures-but-use-ca/\">This post originally appeared on KPCC’s consumer health blog, Impatient.\u003c/a>\u003c/p>\n\u003cp>Shopping for things like hotel reservations is pretty easy these days.\u003c/p>\n\u003cp>There are a lot of websites that allow you to compare options by price and other factors. Some sites – like \u003ca href=\"http://www.priceline.com/home/\">Priceline \u003c/a>- even let you do the online version of haggling: You name the price you're willing to pay and the site matches you with a hotel willing to accept your bid.\u003c/p>\n\u003cp>Some entrepreneurs are now trying to adapt this approach to the health care field, where it's been notoriously difficult to shop around. It's a development that's being welcomed – with some caution – by people who advocate for transparency in the health care marketplace.\u003c/p>\n\u003cp>\"This approach is the type of thing that the health care market needs,\" says Dr. Peter Ubel, a professor at Duke University. \"With more and more people in the U.S. paying more and more out of pocket for their health care, they need to be more like regular consumers, where they're looking around for price and quality.\"\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Overall, these new sites that bill themselves as being like Priceline for health care \"give consumers more power,\" Ubel says. But, he and others warn, with more power comes more responsibility on the part of the consumer.\u003c/p>\n\u003cp>\u003cstrong>A Win-Win\u003c/strong>\u003c/p>\n\u003cp>Take the Los Angeles-based start-up company\u003ca href=\"https://www.zendyhealth.com/\"> ZendyHealth\u003c/a>.\u003c/p>\n\u003cp>The site allows you to choose a procedure from a list of medical services, like CT or MRI scans. It will tell you the average price for that procedure. You can then suggest the price that you're willing to pay, and providers can choose whether to accept the bid. If you undergo the procedure, you can either pay in cash or use funds from your health savings account, if you have a high-deductible health plan.\u003c/p>\n\u003cp>Another site, \u003ca href=\"http://www.medibid.com/\">MediBid\u003c/a>, lets you post a request for a procedure. Doctors and facilities can then bid on your request.\u003c/p>\n\u003cp>Dr. Vish Banthia, with more than 10 years of experience in head and neck surgery, as well as facial, plastic and reconstructive surgery, is ZendyHealth's chief medical officer. He says he developed the site in response to two problems he'd repeatedly witnessed: Patients were sometimes\u003ca href=\"http://www.scpr.org/blogs/health/2015/05/14/18029/high-deductibles-force-people-to-skip-care-study-f/\"> skipping recommended tests or treatments\u003c/a> because they couldn't afford them. Meanwhile, he says, providers were facing the high costs of staying in business.\u003c/p>\n\u003cp>ZendyHealth, then, is a win-win for patients and providers, he says: Patients can get a deal on certain procedures and providers can try to fill their appointment slots.\u003c/p>\n\u003cp>\"A patient can't input a ridiculously low amount, and of course providers have the right to not accept these prices if it doesn't make sense for them,\" Banthia says. But \"for most of the requests that are being made by the customers on our site, we're able to fulfill them because it makes sense for the provider to accept.\"\u003c/p>\n\u003cp>\u003cstrong>Comparison Shopping \u003c/strong>\u003c/p>\n\u003cp>The experts I spoke with for this story agree that consumers should be cautious when using these types of tools to shop for health care. In fact, they say, there are several steps consumers should take before using one of these sites.\u003c/p>\n\u003cp>Say your doctor is recommending you get an MRI scan. First, experts say, it's worth finding out how much the procedure should cost in your area.\u003c/p>\n\u003cp>If you have insurance, start by checking with your insurance company how much the procedure would cost if you went through your plan. It's also a good idea to check sites like \u003ca href=\"https://www.healthcarebluebook.com/page_Default.aspx\">Healthcare Bluebook\u003c/a>, which estimate the price of procedures in your area, or KPCC's and KQED's \u003ca href=\"http://www.scpr.org/price-check\">PriceCheck\u003c/a>, which shows the range of prices charged by facilities in your area, what patients have paid and what insurers have covered.\u003c/p>\n\u003cp>After doing that research, you could check out sites like ZendyHealth or MediBid to see if they offer deeper discounts.\u003c/p>\n\u003cp>\"If it really looks like from one of these sites that the deal might be better, then you might be able to go in with eyes wider open,\" says Suzanne Delbanco, executive director of\u003ca href=\"http://www.catalyzepaymentreform.org/\"> Catalyst for Payment Reform\u003c/a>, which works on behalf of large employers and other health care purchasers to promote higher-value care in the U.S.\u003c/p>\n\u003cp>\"I would certainly do some comparison shopping before assuming that these sites are offering something better than you might get through the normal means,\" she adds.\u003c/p>\n\u003cp>\u003cstrong>'Price Isn't Everything' \u003c/strong>\u003c/p>\n\u003cp>Experts stress that bargain hunting for medical care is a complex endeavor: When shopping for health care, consumers should not just consider price, but also the quality of the facility, its doctors and the services provided.\u003c/p>\n\u003cp>\"Price isn't everything,\" Ubel says. \"Sometimes you can pay too little for something and end up with something that's very low quality.\"\u003c/p>\n\u003cp>So how do you know if that bargain MRI is worth it?\u003c/p>\n\u003cp>Leah Binder, president and CEO of the \u003ca href=\"http://www.leapfroggroup.org/\">Leapfrog Group\u003c/a>, recommends doing your due diligence by asking for a facility's infection rates, requesting documentation of its board certification and licensure, and researching other quality measures.\u003c/p>\n\u003cp>\"Try to get some confirmation that this provider is good,\" Binder says. \"That's a very critical element – you're entrusting your health and life to this person, so you need to know that they can do a good job for you.\"\u003c/p>\n\u003cp>On its website, ZendyHealth says it has a Medical Advisory Board that screens for top class, highly rated, certified providers and selectively adds them to its provider network.\u003c/p>\n\u003cp>Binder still has concerns about who might end up being listed on these types of sites.\u003c/p>\n\u003cp>\"We don't know who is going to put their services out into a market like this - it could be some fraudulent providers, it could be some very bad providers who can't get business elsewhere, so we certainly have to be afraid of that,\" Binder says.\u003c/p>\n\u003cp>\"On the other hand, I'm hopeful that it's a sign that we're going to change the way consumers access health care,\" she says. \"As soon as consumers are out there looking at both price and quality and making deliberate decisions about providers based on those things, we will change the way health care is delivered. It will change everything.\"\u003c/p>\n\u003cp>Banthia of ZendyHealth points out that his company isn't trying to encourage people to shop around for cheaper prices for care, \"we're just simply taking the entire process of what's been going on between patients and providers and making it more efficient.\"\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Have you tried negotiating the cost of your health care? Tell us about your experience in the comments section below or email Impatient@scpr.org.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Consumers should be cautious when using new online tools to shop for health care, experts say. ","status":"publish","parent":0,"modified":1477280067,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":34,"wordCount":1124},"headData":{"title":"Think Twice Before You Bargain Hunt for Health Procedures Online | KQED","description":"Consumers should be cautious when using new online tools to shop for health care, experts say. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Think Twice Before You Bargain Hunt for Health Procedures Online","datePublished":"2015-08-10T15:32:09.000Z","dateModified":"2016-10-24T03:34:27.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"22981 http://ww2.kqed.org/futureofyou/?p=22981","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/08/10/think-twice-before-you-bargain-hunt-for-health-care-procedures/","disqusTitle":"Think Twice Before You Bargain Hunt for Health Procedures Online","nprByline":"Rebecca Plevin, KPCC","path":"/futureofyou/22981/think-twice-before-you-bargain-hunt-for-health-care-procedures","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003ca href=\"http://www.scpr.org/blogs/health/2015/08/05/18054/bargain-hunt-for-health-care-procedures-but-use-ca/\">This post originally appeared on KPCC’s consumer health blog, Impatient.\u003c/a>\u003c/p>\n\u003cp>Shopping for things like hotel reservations is pretty easy these days.\u003c/p>\n\u003cp>There are a lot of websites that allow you to compare options by price and other factors. Some sites – like \u003ca href=\"http://www.priceline.com/home/\">Priceline \u003c/a>- even let you do the online version of haggling: You name the price you're willing to pay and the site matches you with a hotel willing to accept your bid.\u003c/p>\n\u003cp>Some entrepreneurs are now trying to adapt this approach to the health care field, where it's been notoriously difficult to shop around. It's a development that's being welcomed – with some caution – by people who advocate for transparency in the health care marketplace.\u003c/p>\n\u003cp>\"This approach is the type of thing that the health care market needs,\" says Dr. Peter Ubel, a professor at Duke University. \"With more and more people in the U.S. paying more and more out of pocket for their health care, they need to be more like regular consumers, where they're looking around for price and quality.\"\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Overall, these new sites that bill themselves as being like Priceline for health care \"give consumers more power,\" Ubel says. But, he and others warn, with more power comes more responsibility on the part of the consumer.\u003c/p>\n\u003cp>\u003cstrong>A Win-Win\u003c/strong>\u003c/p>\n\u003cp>Take the Los Angeles-based start-up company\u003ca href=\"https://www.zendyhealth.com/\"> ZendyHealth\u003c/a>.\u003c/p>\n\u003cp>The site allows you to choose a procedure from a list of medical services, like CT or MRI scans. It will tell you the average price for that procedure. You can then suggest the price that you're willing to pay, and providers can choose whether to accept the bid. If you undergo the procedure, you can either pay in cash or use funds from your health savings account, if you have a high-deductible health plan.\u003c/p>\n\u003cp>Another site, \u003ca href=\"http://www.medibid.com/\">MediBid\u003c/a>, lets you post a request for a procedure. Doctors and facilities can then bid on your request.\u003c/p>\n\u003cp>Dr. Vish Banthia, with more than 10 years of experience in head and neck surgery, as well as facial, plastic and reconstructive surgery, is ZendyHealth's chief medical officer. He says he developed the site in response to two problems he'd repeatedly witnessed: Patients were sometimes\u003ca href=\"http://www.scpr.org/blogs/health/2015/05/14/18029/high-deductibles-force-people-to-skip-care-study-f/\"> skipping recommended tests or treatments\u003c/a> because they couldn't afford them. Meanwhile, he says, providers were facing the high costs of staying in business.\u003c/p>\n\u003cp>ZendyHealth, then, is a win-win for patients and providers, he says: Patients can get a deal on certain procedures and providers can try to fill their appointment slots.\u003c/p>\n\u003cp>\"A patient can't input a ridiculously low amount, and of course providers have the right to not accept these prices if it doesn't make sense for them,\" Banthia says. But \"for most of the requests that are being made by the customers on our site, we're able to fulfill them because it makes sense for the provider to accept.\"\u003c/p>\n\u003cp>\u003cstrong>Comparison Shopping \u003c/strong>\u003c/p>\n\u003cp>The experts I spoke with for this story agree that consumers should be cautious when using these types of tools to shop for health care. In fact, they say, there are several steps consumers should take before using one of these sites.\u003c/p>\n\u003cp>Say your doctor is recommending you get an MRI scan. First, experts say, it's worth finding out how much the procedure should cost in your area.\u003c/p>\n\u003cp>If you have insurance, start by checking with your insurance company how much the procedure would cost if you went through your plan. It's also a good idea to check sites like \u003ca href=\"https://www.healthcarebluebook.com/page_Default.aspx\">Healthcare Bluebook\u003c/a>, which estimate the price of procedures in your area, or KPCC's and KQED's \u003ca href=\"http://www.scpr.org/price-check\">PriceCheck\u003c/a>, which shows the range of prices charged by facilities in your area, what patients have paid and what insurers have covered.\u003c/p>\n\u003cp>After doing that research, you could check out sites like ZendyHealth or MediBid to see if they offer deeper discounts.\u003c/p>\n\u003cp>\"If it really looks like from one of these sites that the deal might be better, then you might be able to go in with eyes wider open,\" says Suzanne Delbanco, executive director of\u003ca href=\"http://www.catalyzepaymentreform.org/\"> Catalyst for Payment Reform\u003c/a>, which works on behalf of large employers and other health care purchasers to promote higher-value care in the U.S.\u003c/p>\n\u003cp>\"I would certainly do some comparison shopping before assuming that these sites are offering something better than you might get through the normal means,\" she adds.\u003c/p>\n\u003cp>\u003cstrong>'Price Isn't Everything' \u003c/strong>\u003c/p>\n\u003cp>Experts stress that bargain hunting for medical care is a complex endeavor: When shopping for health care, consumers should not just consider price, but also the quality of the facility, its doctors and the services provided.\u003c/p>\n\u003cp>\"Price isn't everything,\" Ubel says. \"Sometimes you can pay too little for something and end up with something that's very low quality.\"\u003c/p>\n\u003cp>So how do you know if that bargain MRI is worth it?\u003c/p>\n\u003cp>Leah Binder, president and CEO of the \u003ca href=\"http://www.leapfroggroup.org/\">Leapfrog Group\u003c/a>, recommends doing your due diligence by asking for a facility's infection rates, requesting documentation of its board certification and licensure, and researching other quality measures.\u003c/p>\n\u003cp>\"Try to get some confirmation that this provider is good,\" Binder says. \"That's a very critical element – you're entrusting your health and life to this person, so you need to know that they can do a good job for you.\"\u003c/p>\n\u003cp>On its website, ZendyHealth says it has a Medical Advisory Board that screens for top class, highly rated, certified providers and selectively adds them to its provider network.\u003c/p>\n\u003cp>Binder still has concerns about who might end up being listed on these types of sites.\u003c/p>\n\u003cp>\"We don't know who is going to put their services out into a market like this - it could be some fraudulent providers, it could be some very bad providers who can't get business elsewhere, so we certainly have to be afraid of that,\" Binder says.\u003c/p>\n\u003cp>\"On the other hand, I'm hopeful that it's a sign that we're going to change the way consumers access health care,\" she says. \"As soon as consumers are out there looking at both price and quality and making deliberate decisions about providers based on those things, we will change the way health care is delivered. It will change everything.\"\u003c/p>\n\u003cp>Banthia of ZendyHealth points out that his company isn't trying to encourage people to shop around for cheaper prices for care, \"we're just simply taking the entire process of what's been going on between patients and providers and making it more efficient.\"\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Have you tried negotiating the cost of your health care? Tell us about your experience in the comments section below or email Impatient@scpr.org.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/22981/think-twice-before-you-bargain-hunt-for-health-care-procedures","authors":["byline_futureofyou_22981"],"categories":["futureofyou_1060"],"tags":["futureofyou_554","futureofyou_193","futureofyou_34","futureofyou_80"],"featImg":"futureofyou_23001","label":"futureofyou"},"futureofyou_3739":{"type":"posts","id":"futureofyou_3739","meta":{"index":"posts_1591205157","site":"futureofyou","id":"3739","score":null,"sort":[1433181788000]},"guestAuthors":[],"slug":"new-hearing-technology-brings-sound-to-a-little-girl","title":"New Hearing Technology Brings Sound to a Little Girl","publishDate":1433181788,"format":"standard","headTitle":"KQED Future of You | KQED Science","labelTerm":{"site":"futureofyou"},"content":"\u003cp>\u003cem>[Editors' note: \u003ca href=\"http://report.nih.gov/nihfactsheets/ViewFactSheet.aspx?csid=83\">The first cochlear implant was approved\u003c/a> by federal regulators in 1984. The technology is considered one of the greatest medical achievements of the past 30 years, but it doesn't work for all patients. Now an experimental \u003cspan class=\"s1\">auditory brainstem implant may offer new hope for some.]\u003c/span>\u003c/em>\u003c/p>\n\u003cp>Jiya Bavishi \u003ca href=\"#_msocom_1\" name=\"_msoanchor_1\">\u003c/a>was born deaf. For five years, she couldn't hear and she couldn't speak at all. But when I first meet her, all she wants to do is say hello. The 6-year-old is bouncing around the room at her speech therapy session in Dallas\u003ca href=\"#_msocom_2\" name=\"_msoanchor_2\">\u003c/a>. She's wearing a bright pink top; her tiny gold earrings flash as she waves her arms.\u003c/p>\n\u003cp>\"Hi,\" she says, and then uses sign language to ask who I am and talk about the ice cream her father bought for her.\u003c/p>\n\u003cp>Jiya is taking part in a clinical trial testing a new hearing technology. At 12 months, she was given a \u003ca href=\"http://www.nidcd.nih.gov/health/hearing/pages/coch.aspx\">cochlear implant\u003c/a>. These surgically implanted devices send signals directly to the nerves used to hear. But cochlear implants don't work for everyone, and they didn't work for Jiya.\u003c/p>\n\u003cp>\"The physician was able to get all of the electrodes into her cochlea,\" says Linda Daniel, a certified auditory-verbal therapist and rehabilitative audiologist with \u003ca href=\"http://hearindallas.com/\" target=\"_blank\">HEAR\u003c/a>, a rehabilitation clinic in Dallas. Daniel has been working with Jiya since she was a baby. \"However, you have to have a sufficient or healthy auditory nerve to connect the cochlea and the electrodes up to the brainstem.\"\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Jiya's connection between the cochlea and the brainstem was too thin. There was no way for sounds to make that final leg of the journey and reach her brain.\u003c/p>\n\u003cp>Usually, the story would end here. If cochlear implants don't work, you turn to sign language. And the Bavishis did -- for years they communicated with their daughter through sign language. But then they heard about an experimental procedure called an auditory brainstem implant.\u003c/p>\n\u003cp>It is a very rare procedure, according to \u003ca href=\"http://www.masseyeandear.org/find-a-physician/details?physician_id=945050\" target=\"_blank\">Dr. Daniel Lee\u003c/a>, director of the pediatric ear, hearing and balance center at Harvard Medical School. \"There have been less than 200 of these implanted worldwide in children,\" he says. In the U.S., auditory brainstem implants are\u003ca href=\"http://www.fda.gov/MedicalDevices/ProductsandMedicalProcedures/DeviceApprovalsandClearances/Recently-ApprovedDevices/ucm089750.htm\"> approved by the Food and Drug Administration\u003c/a> for adults and teenagers who have lost their hearing due to nerve damage, but they have not been approved for use in younger children.\u003c/p>\n\u003cp>Surgeons in Europe have pioneered the use of the auditory brainstem implant in children who are born deaf and can't receive a cochlear implant, Lee says. \"And those data look pretty encouraging.\"\u003c/p>\n\u003cp>So in 2013, the FDA approved the first \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT01904448?term=auditory+brainstem+implant&rank=6\">clinical trial\u003c/a> in the U.S. for young children. The Bavishis decided to apply for Jiya. It wasn't an easy decision. It would involve surgery to place a tiny microchip into Jiya's brainstem.\u003c/p>\n\u003cp>\"The family was at a crossroads,\" Daniel says. Did they want to take a chance on a risky, experimental procedure to give their daughter a chance to hear? They decided to try the procedure and traveled from their home in Frisco, Texas, to Chapel Hill, N.C., for the eight-hour surgery. The University of North Carolina is one of four institutions investigating the implant.\u003c/p>\n\u003cp>Jiya's mom, Jigna Bavishi, pulls back her daughter's purple headband to reveal two of the three parts of the device.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Even though she’s doing so good right now, we have to still be careful where we set our expectations.\"\u003cbr>\n\u003ccite>Jigna Bavishi, Jiya's Mom\u003c/cite>\u003c/aside>\n\u003cp>There's the piece that sits on her ear, which works like a microphone to pick up sounds. That microphone is attached to a small black magnet that rests on her head. What you can't see is what the magnet is connected to. And this is what makes it different from a cochlear implant. Below the skin, there's a receiver, and down in the brain stem is the microchip\u003ca href=\"#_msocom_3\" name=\"_msoanchor_3\">\u003c/a>. The idea is that the sounds picked up from the microphone on her ear end up in the implant in the brainstem.\u003c/p>\n\u003cp>\"It's a rectangular shaped element,\" says rehabilitative audiologist Linda Daniel. \"It has two rows of electrodes and each electrode is responsible for a band of frequencies.\" The electrodes transmit signals directly into the brain.\u003c/p>\n\u003cp>Daniel says we don't know exactly what Jiya hears.\u003c/p>\n\u003cp>\"I think we could assume that it doesn't sound crisp, distinct, clearly interpretable,\" she says. \"It would take longer to learn to interpret the sound.\"\u003c/p>\n\u003cp>Doctors told the Bavishis not to expect any changes for a year or two. But Jiya didn't take that long to start recognizing and mimicking sounds. On the day I visit, Jiya is playing with a yellow toy car. \"Beep, beep,\" she says.\u003c/p>\n\u003cp>\"They actually had to tell us, even though she's doing so good right now, we have to still be careful where we set our expectations,\" says Jigna.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Doctors will monitor Jiya, and four other children taking part in the study, for the next few years. They'll be studying how their brains develop and incorporate sounds and speech. There are two other clinical trials investigating auditory brainstem implants in children: one at \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT02102256?term=auditory+brainstem+implant&rank=5\">Children's Hospital\u003c/a> in Los Angeles, and the other at the New York \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT02310399?term=auditory+brainstem+implant&rank=3\">University School of Medicine\u003c/a>.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2015 KERA Unlimited. To see more, visit \u003ca href=\"http://www.kera.org/\">http://www.kera.org/\u003c/a>.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=New+Hearing+Technology+Brings+Sound+To+A+Little+Girl&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"Jiya Bavishi is one of a handful of children in the United States testing an experimental hearing device, a tiny implant in her brainstem. Jiya is now able to hear and repeat some sounds.","status":"publish","parent":0,"modified":1434047748,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":21,"wordCount":907},"headData":{"title":"New Hearing Technology Brings Sound to a Little Girl | KQED","description":"Jiya Bavishi is one of a handful of children in the United States testing an experimental hearing device, a tiny implant in her brainstem. Jiya is now able to hear and repeat some sounds.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"New Hearing Technology Brings Sound to a Little Girl","datePublished":"2015-06-01T18:03:08.000Z","dateModified":"2015-06-11T18:35:48.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"3739 http://ww2.kqed.org/futureofyou/?p=3739","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/06/01/new-hearing-technology-brings-sound-to-a-little-girl/","disqusTitle":"New Hearing Technology Brings Sound to a Little Girl","nprByline":"Lauren Silverman","nprStoryId":"410065053","nprApiLink":"http://api.npr.org/query?id=410065053&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"http://www.npr.org/sections/health-shots/2015/06/01/410065053/new-hearing-technology-brings-sound-to-a-litte-girl?ft=nprml&f=410065053","nprRetrievedStory":"1","nprPubDate":"Mon, 01 Jun 2015 12:34:00 -0400","nprStoryDate":"Mon, 01 Jun 2015 03:35:00 -0400","nprLastModifiedDate":"Mon, 01 Jun 2015 12:34:30 -0400","nprAudio":"http://pd.npr.org/anon.npr-mp3/npr/me/2015/06/20150601_me_auditory_brainstem_implant.mp3?orgId=77&topicId=1066&d=326&p=3&story=410065053&t=progseg&e=410487719&seg=7&ft=nprml&f=410065053","nprAudioM3u":"http://api.npr.org/m3u/1410488015-5f38a0.m3u?orgId=77&topicId=1066&d=326&p=3&story=410065053&t=progseg&e=410487719&seg=7&ft=nprml&f=410065053","path":"/futureofyou/3739/new-hearing-technology-brings-sound-to-a-little-girl","audioUrl":"http://pd.npr.org/anon.npr-mp3/npr/me/2015/06/20150601_me_auditory_brainstem_implant.mp3?orgId=77&topicId=1066&d=326&p=3&story=410065053&t=progseg&e=410487719&seg=7&ft=nprml&f=410065053","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>\u003cem>[Editors' note: \u003ca href=\"http://report.nih.gov/nihfactsheets/ViewFactSheet.aspx?csid=83\">The first cochlear implant was approved\u003c/a> by federal regulators in 1984. The technology is considered one of the greatest medical achievements of the past 30 years, but it doesn't work for all patients. Now an experimental \u003cspan class=\"s1\">auditory brainstem implant may offer new hope for some.]\u003c/span>\u003c/em>\u003c/p>\n\u003cp>Jiya Bavishi \u003ca href=\"#_msocom_1\" name=\"_msoanchor_1\">\u003c/a>was born deaf. For five years, she couldn't hear and she couldn't speak at all. But when I first meet her, all she wants to do is say hello. The 6-year-old is bouncing around the room at her speech therapy session in Dallas\u003ca href=\"#_msocom_2\" name=\"_msoanchor_2\">\u003c/a>. She's wearing a bright pink top; her tiny gold earrings flash as she waves her arms.\u003c/p>\n\u003cp>\"Hi,\" she says, and then uses sign language to ask who I am and talk about the ice cream her father bought for her.\u003c/p>\n\u003cp>Jiya is taking part in a clinical trial testing a new hearing technology. At 12 months, she was given a \u003ca href=\"http://www.nidcd.nih.gov/health/hearing/pages/coch.aspx\">cochlear implant\u003c/a>. These surgically implanted devices send signals directly to the nerves used to hear. But cochlear implants don't work for everyone, and they didn't work for Jiya.\u003c/p>\n\u003cp>\"The physician was able to get all of the electrodes into her cochlea,\" says Linda Daniel, a certified auditory-verbal therapist and rehabilitative audiologist with \u003ca href=\"http://hearindallas.com/\" target=\"_blank\">HEAR\u003c/a>, a rehabilitation clinic in Dallas. Daniel has been working with Jiya since she was a baby. \"However, you have to have a sufficient or healthy auditory nerve to connect the cochlea and the electrodes up to the brainstem.\"\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Jiya's connection between the cochlea and the brainstem was too thin. There was no way for sounds to make that final leg of the journey and reach her brain.\u003c/p>\n\u003cp>Usually, the story would end here. If cochlear implants don't work, you turn to sign language. And the Bavishis did -- for years they communicated with their daughter through sign language. But then they heard about an experimental procedure called an auditory brainstem implant.\u003c/p>\n\u003cp>It is a very rare procedure, according to \u003ca href=\"http://www.masseyeandear.org/find-a-physician/details?physician_id=945050\" target=\"_blank\">Dr. Daniel Lee\u003c/a>, director of the pediatric ear, hearing and balance center at Harvard Medical School. \"There have been less than 200 of these implanted worldwide in children,\" he says. In the U.S., auditory brainstem implants are\u003ca href=\"http://www.fda.gov/MedicalDevices/ProductsandMedicalProcedures/DeviceApprovalsandClearances/Recently-ApprovedDevices/ucm089750.htm\"> approved by the Food and Drug Administration\u003c/a> for adults and teenagers who have lost their hearing due to nerve damage, but they have not been approved for use in younger children.\u003c/p>\n\u003cp>Surgeons in Europe have pioneered the use of the auditory brainstem implant in children who are born deaf and can't receive a cochlear implant, Lee says. \"And those data look pretty encouraging.\"\u003c/p>\n\u003cp>So in 2013, the FDA approved the first \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT01904448?term=auditory+brainstem+implant&rank=6\">clinical trial\u003c/a> in the U.S. for young children. The Bavishis decided to apply for Jiya. It wasn't an easy decision. It would involve surgery to place a tiny microchip into Jiya's brainstem.\u003c/p>\n\u003cp>\"The family was at a crossroads,\" Daniel says. Did they want to take a chance on a risky, experimental procedure to give their daughter a chance to hear? They decided to try the procedure and traveled from their home in Frisco, Texas, to Chapel Hill, N.C., for the eight-hour surgery. The University of North Carolina is one of four institutions investigating the implant.\u003c/p>\n\u003cp>Jiya's mom, Jigna Bavishi, pulls back her daughter's purple headband to reveal two of the three parts of the device.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Even though she’s doing so good right now, we have to still be careful where we set our expectations.\"\u003cbr>\n\u003ccite>Jigna Bavishi, Jiya's Mom\u003c/cite>\u003c/aside>\n\u003cp>There's the piece that sits on her ear, which works like a microphone to pick up sounds. That microphone is attached to a small black magnet that rests on her head. What you can't see is what the magnet is connected to. And this is what makes it different from a cochlear implant. Below the skin, there's a receiver, and down in the brain stem is the microchip\u003ca href=\"#_msocom_3\" name=\"_msoanchor_3\">\u003c/a>. The idea is that the sounds picked up from the microphone on her ear end up in the implant in the brainstem.\u003c/p>\n\u003cp>\"It's a rectangular shaped element,\" says rehabilitative audiologist Linda Daniel. \"It has two rows of electrodes and each electrode is responsible for a band of frequencies.\" The electrodes transmit signals directly into the brain.\u003c/p>\n\u003cp>Daniel says we don't know exactly what Jiya hears.\u003c/p>\n\u003cp>\"I think we could assume that it doesn't sound crisp, distinct, clearly interpretable,\" she says. \"It would take longer to learn to interpret the sound.\"\u003c/p>\n\u003cp>Doctors told the Bavishis not to expect any changes for a year or two. But Jiya didn't take that long to start recognizing and mimicking sounds. On the day I visit, Jiya is playing with a yellow toy car. \"Beep, beep,\" she says.\u003c/p>\n\u003cp>\"They actually had to tell us, even though she's doing so good right now, we have to still be careful where we set our expectations,\" says Jigna.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Doctors will monitor Jiya, and four other children taking part in the study, for the next few years. They'll be studying how their brains develop and incorporate sounds and speech. There are two other clinical trials investigating auditory brainstem implants in children: one at \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT02102256?term=auditory+brainstem+implant&rank=5\">Children's Hospital\u003c/a> in Los Angeles, and the other at the New York \u003ca href=\"https://clinicaltrials.gov/ct2/show/NCT02310399?term=auditory+brainstem+implant&rank=3\">University School of Medicine\u003c/a>.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2015 KERA Unlimited. To see more, visit \u003ca href=\"http://www.kera.org/\">http://www.kera.org/\u003c/a>.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=New+Hearing+Technology+Brings+Sound+To+A+Little+Girl&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/3739/new-hearing-technology-brings-sound-to-a-little-girl","authors":["byline_futureofyou_3739"],"categories":["futureofyou_1"],"tags":["futureofyou_491","futureofyou_34","futureofyou_138","futureofyou_398","futureofyou_397","futureofyou_400","futureofyou_80","futureofyou_319","futureofyou_399"],"featImg":"futureofyou_3740","label":"futureofyou"},"futureofyou_2703":{"type":"posts","id":"futureofyou_2703","meta":{"index":"posts_1591205157","site":"futureofyou","id":"2703","score":null,"sort":[1431710107000]},"guestAuthors":[{"ID":"2718","displayName":"Gabrielle Guthrie","firstName":"Gabrielle","lastName":"Guthrie","userLogin":"gabrielle-guthrie","userEmail":"gabrielle@moxxly.com","linkedAccount":"","website":"","aim":"","yahooim":"","jabber":"","description":"Gabrielle Guthrie has a Masters in Design from Stanford University. She is co-founder of the women-centered design start up, Moxxly. She lives and works in San Francisco.","userNicename":"gabrielle-guthrie","type":"guest-author"}],"slug":"womens-health-is-too-often-overlooked-will-digital-health-be-the-exception","title":"Women's Health is Too Often Overlooked; Will Digital Health be the Exception?","publishDate":1431710107,"format":"standard","headTitle":"Women’s Health | KQED Future of You | KQED Science","labelTerm":{"term":219,"site":"futureofyou"},"content":"\u003cdiv class=\"page\" title=\"Page 1\">\n\u003cdiv class=\"layoutArea\">\n\u003cdiv class=\"column\">\n\u003cp>\u003cem>Editor's note: This perspective comes from Gabrielle Guthrie. She is co- founder of the women-centered design start up, Moxxly, which is developing the world's first 'smart breast pump'. Gabrielle has a masters in design from Stanford University and lives and works in San Francisco.\u003c/em>\u003c/p>\n\u003cp>Women’s health is often assumed to be similar to men's health. Or not considered at all.\u003c/p>\n\u003cp>That needs to change.\u003c/p>\n\u003cp>In 1956, a clinical trial of the drug Thalidomide ran in the United States involving 875 people. Thalidomide was touted as a wonder drug for insomnia, headaches, and morning sickness. Pregnant women were among the participants. Within five years, Thalidomide \u003ca href=\"http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1849348/\">was pulled from the market\u003c/a> under pressure from the public after it caused malformation of the limbs in 10,000 children and killed an additional 2,000.\u003c/p>\n\u003cp>Following the Thalidomide scare, the industry still considers women to be a higher risk – and therefore a more expensive – participant group. So without requirements in place for industry to include a balanced representation of women, study participants skew heavily male.\u003c/p>\n\u003cp>So now, what is known to be true for men has been assumed to be true for everyone.\u003c/p>\n\u003cp>This assumption is especially dangerous with heart disease, the number one cause of death for women in the United States. Despite its fatality rate – or perhaps because of it - men comprise 76 percent of all heart-related study participants, even after efforts from the FDA Office of Women’s Health has worked to promote gender and racial diversity in the face of industry’s biases toward white, male enrollment in medical studies.\u003c/p>\n\u003cp>\u003cstrong>So What’s the Big Deal?\u003c/strong>\u003c/p>\n\u003cp>The problem occurs when insights from research are applied universally.\u003c/p>\n\u003cp>That left arm tingle we all associate with a classic sign of a heart attack?\u003c/p>\n\u003cp>Turns out that’s actually a classic sign of a heart attack in a man. A woman having a heart attack \u003ca href=\"http://www.npr.org/blogs/health/2015/04/06/397281837/women-having-a-heart-attack-dont-get-treatment-fast-enough\">can present much different symptoms\u003c/a>, such as fatigue, dizziness, or nausea.\u003c/p>\n\u003cp>“Many, many women died because the way we’re taught to recognize a heart attack is based on the symptoms men present,” says Dr. Alicia Carrasco, an internist affiliated with University of California, San Francisco (UCSF) Medical Center.\u003c/p>\n\u003cp>Studies with a gender imbalance can have a double blind affect: Patients may not realize the severity of their symptoms and doctors are more likely to misdiagnose them, with potentially fatal consequences.\u003c/p>\n\u003cp>Heart disease research is not an isolated instance. Non-smoking women for example, are more likely than men to develop lung cancer and we don’t know why. Women are also at a greater risk for depression.\u003c/p>\n\u003cp>Breast cancer research stands as a strong exception to this rule, with $6 billion raised every year. From 2011 to 2013 the National Cancer Institute allocated more than double the amount of funding for breast cancer research than for prostate cancer research, even though one in 31 women will die of breast cancer and one in 38 men will die of prostate cancer.\u003c/p>\n\u003c/div>\n\u003c/div>\n\u003c/div>\n\u003cdiv class=\"page\" title=\"Page 2\">\n\u003cdiv class=\"layoutArea\">\n\u003cdiv class=\"column\">\n\u003cp>But as the NFL goes pink for all of October, heart disease continues to kill one in three American women, according to the American Heart Association. In other words women in the U.S. are ten times more likely to die of heart disease than of breast cancer.\u003c/p>\n\u003cp>Yet cardiovascular disease is still considered a man’s disease.\u003c/p>\n\u003cp>\u003cstrong>Can New Digital Health Tools Change the Ratio?\u003cbr>\n\u003c/strong>\u003c/p>\n\u003cp>This lack of education and understanding of women’s health spreads across the health landscape from research studies to new digital health products.\u003c/p>\n\u003cp>Apple’s \u003ca href=\"http://www.theverge.com/2014/9/25/6844021/apple-promised-an-expansive-health-app-so-why-cant-i-track\">oversight in not including menstruation cycles\u003c/a> in its HealthKit service’s otherwise comprehensive metrics stands as a recent example. Despite the flak it received in the press, the latest software update still doesn’t offer the one health metric many women of childbearing age care most about: Period-tracking.\u003c/p>\n\u003cp>Experts say these types of examples are a frequent oversight, as both the technology and health fields are dominated by men.\u003c/p>\n\u003cp>Which means health issues that affect women are often either overlooked, in the case of HealthKit, or they miss the mark. Most women’s health apps still rely on and reinforce stereotypes of femininity that many women don’t identify with. Yes I’m talking pinks and flowers for everything from period trackers to breastfeeding.\u003c/p>\n\u003cp>“It may not even be a conscious thing. There are just more male doctors,\" said Dr. Carrasco.\u003c/p>\n\u003cp>\"In order for this to change, we need more women in positions of power.\"\u003c/p>\n\u003cp>And engineers, entrepreneurs and venture capitalists.\u003c/p>\n\u003cp>In my opinion, we’re still in the stage of women’s digital health that is operating on stereotypes and assumptions.\u003c/p>\n\u003cp>But digital health offers a new opportunity of understanding beyond the white, male patient.\u003c/p>\n\u003cp>\"We don’t have to rely on scientific studies and pharmaceutical companies to advance female health when we can collect vast quantities of valuable data on our own,” \u003ca href=\"http://pixelhealth.net/author/ida-tin/\">writes Ida Tin\u003c/a>, chief executive of Clue, an app that is focused on fertility.\u003c/p>\n\u003cp>But in order to be successful, women’s digital health products have to be designed for and with women in mind.\u003c/p>\n\u003c/div>\n\u003c/div>\n\u003c/div>\n\u003cp>[ad fullwidth]\u003c/p>\u003cp>\u003c/p>\n","blocks":[],"excerpt":"In order to be successful, women’s digital health products have to be designed for and with women in mind.","status":"publish","parent":0,"modified":1596839357,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":31,"wordCount":878},"headData":{"title":"Women’s Health is Too Often Overlooked; Will Digital Health be the Exception? - KQED Future of You","description":"In order to be successful, women’s digital health products have to be designed for and with women in mind.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Women's Health is Too Often Overlooked; Will Digital Health be the Exception?","datePublished":"2015-05-15T17:15:07.000Z","dateModified":"2020-08-07T22:29:17.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"2703 http://ww2.kqed.org/futureofyou/?p=2703","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/05/15/womens-health-is-too-often-overlooked-will-digital-health-be-the-exception/","disqusTitle":"Women's Health is Too Often Overlooked; Will Digital Health be the Exception?","templateType":"standard","featuredImageType":"standard","path":"/futureofyou/2703/womens-health-is-too-often-overlooked-will-digital-health-be-the-exception","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cdiv class=\"page\" title=\"Page 1\">\n\u003cdiv class=\"layoutArea\">\n\u003cdiv class=\"column\">\n\u003cp>\u003cem>Editor's note: This perspective comes from Gabrielle Guthrie. She is co- founder of the women-centered design start up, Moxxly, which is developing the world's first 'smart breast pump'. Gabrielle has a masters in design from Stanford University and lives and works in San Francisco.\u003c/em>\u003c/p>\n\u003cp>Women’s health is often assumed to be similar to men's health. Or not considered at all.\u003c/p>\n\u003cp>That needs to change.\u003c/p>\n\u003cp>In 1956, a clinical trial of the drug Thalidomide ran in the United States involving 875 people. Thalidomide was touted as a wonder drug for insomnia, headaches, and morning sickness. Pregnant women were among the participants. Within five years, Thalidomide \u003ca href=\"http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1849348/\">was pulled from the market\u003c/a> under pressure from the public after it caused malformation of the limbs in 10,000 children and killed an additional 2,000.\u003c/p>\n\u003cp>Following the Thalidomide scare, the industry still considers women to be a higher risk – and therefore a more expensive – participant group. So without requirements in place for industry to include a balanced representation of women, study participants skew heavily male.\u003c/p>\n\u003cp>So now, what is known to be true for men has been assumed to be true for everyone.\u003c/p>\n\u003cp>This assumption is especially dangerous with heart disease, the number one cause of death for women in the United States. Despite its fatality rate – or perhaps because of it - men comprise 76 percent of all heart-related study participants, even after efforts from the FDA Office of Women’s Health has worked to promote gender and racial diversity in the face of industry’s biases toward white, male enrollment in medical studies.\u003c/p>\n\u003cp>\u003cstrong>So What’s the Big Deal?\u003c/strong>\u003c/p>\n\u003cp>The problem occurs when insights from research are applied universally.\u003c/p>\n\u003cp>That left arm tingle we all associate with a classic sign of a heart attack?\u003c/p>\n\u003cp>Turns out that’s actually a classic sign of a heart attack in a man. A woman having a heart attack \u003ca href=\"http://www.npr.org/blogs/health/2015/04/06/397281837/women-having-a-heart-attack-dont-get-treatment-fast-enough\">can present much different symptoms\u003c/a>, such as fatigue, dizziness, or nausea.\u003c/p>\n\u003cp>“Many, many women died because the way we’re taught to recognize a heart attack is based on the symptoms men present,” says Dr. Alicia Carrasco, an internist affiliated with University of California, San Francisco (UCSF) Medical Center.\u003c/p>\n\u003cp>Studies with a gender imbalance can have a double blind affect: Patients may not realize the severity of their symptoms and doctors are more likely to misdiagnose them, with potentially fatal consequences.\u003c/p>\n\u003cp>Heart disease research is not an isolated instance. Non-smoking women for example, are more likely than men to develop lung cancer and we don’t know why. Women are also at a greater risk for depression.\u003c/p>\n\u003cp>Breast cancer research stands as a strong exception to this rule, with $6 billion raised every year. From 2011 to 2013 the National Cancer Institute allocated more than double the amount of funding for breast cancer research than for prostate cancer research, even though one in 31 women will die of breast cancer and one in 38 men will die of prostate cancer.\u003c/p>\n\u003c/div>\n\u003c/div>\n\u003c/div>\n\u003cdiv class=\"page\" title=\"Page 2\">\n\u003cdiv class=\"layoutArea\">\n\u003cdiv class=\"column\">\n\u003cp>But as the NFL goes pink for all of October, heart disease continues to kill one in three American women, according to the American Heart Association. In other words women in the U.S. are ten times more likely to die of heart disease than of breast cancer.\u003c/p>\n\u003cp>Yet cardiovascular disease is still considered a man’s disease.\u003c/p>\n\u003cp>\u003cstrong>Can New Digital Health Tools Change the Ratio?\u003cbr>\n\u003c/strong>\u003c/p>\n\u003cp>This lack of education and understanding of women’s health spreads across the health landscape from research studies to new digital health products.\u003c/p>\n\u003cp>Apple’s \u003ca href=\"http://www.theverge.com/2014/9/25/6844021/apple-promised-an-expansive-health-app-so-why-cant-i-track\">oversight in not including menstruation cycles\u003c/a> in its HealthKit service’s otherwise comprehensive metrics stands as a recent example. Despite the flak it received in the press, the latest software update still doesn’t offer the one health metric many women of childbearing age care most about: Period-tracking.\u003c/p>\n\u003cp>Experts say these types of examples are a frequent oversight, as both the technology and health fields are dominated by men.\u003c/p>\n\u003cp>Which means health issues that affect women are often either overlooked, in the case of HealthKit, or they miss the mark. Most women’s health apps still rely on and reinforce stereotypes of femininity that many women don’t identify with. Yes I’m talking pinks and flowers for everything from period trackers to breastfeeding.\u003c/p>\n\u003cp>“It may not even be a conscious thing. There are just more male doctors,\" said Dr. Carrasco.\u003c/p>\n\u003cp>\"In order for this to change, we need more women in positions of power.\"\u003c/p>\n\u003cp>And engineers, entrepreneurs and venture capitalists.\u003c/p>\n\u003cp>In my opinion, we’re still in the stage of women’s digital health that is operating on stereotypes and assumptions.\u003c/p>\n\u003cp>But digital health offers a new opportunity of understanding beyond the white, male patient.\u003c/p>\n\u003cp>\"We don’t have to rely on scientific studies and pharmaceutical companies to advance female health when we can collect vast quantities of valuable data on our own,” \u003ca href=\"http://pixelhealth.net/author/ida-tin/\">writes Ida Tin\u003c/a>, chief executive of Clue, an app that is focused on fertility.\u003c/p>\n\u003cp>But in order to be successful, women’s digital health products have to be designed for and with women in mind.\u003c/p>\n\u003c/div>\n\u003c/div>\n\u003c/div>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\u003cp>\u003c/p>\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/2703/womens-health-is-too-often-overlooked-will-digital-health-be-the-exception","authors":["2718"],"series":["futureofyou_172","futureofyou_219"],"categories":["futureofyou_1060","futureofyou_1062"],"tags":["futureofyou_235","futureofyou_264","futureofyou_103","futureofyou_175","futureofyou_34","futureofyou_273","futureofyou_80","futureofyou_269","futureofyou_276","futureofyou_275"],"featImg":"futureofyou_2707","label":"futureofyou_219"},"futureofyou_2694":{"type":"posts","id":"futureofyou_2694","meta":{"index":"posts_1591205157","site":"futureofyou","id":"2694","score":null,"sort":[1430758873000]},"guestAuthors":[],"slug":"the-promise-and-potential-pitfalls-of-apples-researchkit","title":"The Promise and Potential Pitfalls of Apple's ResearchKit","publishDate":1430758873,"format":"standard","headTitle":"Contributor | Future of You | KQED Future of You | KQED Science","labelTerm":{"term":54,"site":"futureofyou"},"content":"\u003cp>Most of the tech buzz these days has centered on the new Apple Watch -- including on the potential for \u003ca href=\"http://www.npr.org/blogs/alltechconsidered/2015/04/25/402039156/as-health-apps-hop-on-the-apple-watch-privacy-will-be-key\">health-related apps\u003c/a>. Less attention has been given to Apple's \u003ca href=\"https://www.apple.com/researchkit/\">ResearchKit\u003c/a>, an open-source mobile software platform released in March.\u003c/p>\n\u003cp>But the medical world is paying attention.\u003c/p>\n\u003cp>\"It's designed to let medical researchers and developers create apps that can be downloaded through the app store, and then users can decide to join a study that's conducted solely through their phones,\" Arielle Duhaime-Ross, a science reporter at The Verge, tells NPR's Arun Rath.\u003c/p>\n\u003cp>So far, researchers have developed ResearchKit apps to study diseases including breast cancer, asthma and Parkinson's disease. \u003ca href=\"http://www.bloomberg.com/news/articles/2015-03-11/apple-researchkit-sees-thousands-sign-up-amid-bias-criticism\">Thousands of volunteers\u003c/a> have signed up.\u003c/p>\n\u003cp>But Duhaime-Ross tells Rath there are concerns about privacy and informed consent. Here are some interview highlights:\u003c/p>\n\u003chr>\n\u003cp>\u003cstrong>On privacy concerns\u003c/strong>\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>When you join a [ResearchKit] study, you go through an informed consent process where they tell you about the risks of joining the study. They'll ask you whether you want to share your data with other researchers and any other partners, but they do explain that they will make that data anonymous.\u003c/p>\n\u003cp>And really, Apple is relying on these researchers, these institutions, to make sure that everything is kosher. And that's where it might get a little bit hairy, where data breaches might occur. It's very young and it's very unclear whether there will be any issues later on.\u003c/p>\n\u003cp>\u003cstrong>On the question of informed consent\u003c/strong>\u003c/p>\n\u003cp>Every app that I've tested so far tells you toward the end that there is no guarantee that we can protect your data completely. Usually when you do this, you do this in person with the researcher or on the phone. You have the opportunity to ask a number of questions. You have the opportunity to demonstrate that maybe you don't quite understand what you're signing up for.\u003c/p>\n\u003cp>Now, the informed consent process with the apps, they do ask you a number of questions to verify that you understand everything that you've just read. But these questions are yes/no questions and it's very easy to essentially fudge the process. ...\u003c/p>\n\u003cp>If you go into the Parkinson's disease app ... when you first decide to join the study, it asks you three questions. One of them is \"Are you over 18?\" The first time that I downloaded it, I pressed on \"no\" ... It said, \"You're not eligible.\" I was able to press on the back button very easily and then I was able to answer again and say that I was over 18. So there's definitely a question about the ethics of this process.\u003c/p>\n\u003cp>\u003cstrong>On how Apple addressed some concerns after the release\u003c/strong>\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Apple has asked ... that all apps have institutional review board approval. This means that at the institutions where they are based in, they need to have an independent ethics board review the work to make sure that the people who are partaking in it are properly informed about the risks, are aware of how everything will run, that the questions are valuable questions that are being asked and that we're not conducting a study of little value.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=The+Promise+And+Potential+Pitfalls+Of+Apple%27s+ResearchKit+&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/div>\n\u003cdiv class=\"fullattribution\">\u003c/div>\n\u003cdiv class=\"fullattribution\">\u003ca href=\"http://www.npr.org/blogs/alltechconsidered/2015/05/03/404023370/the-promise-and-potential-pitfalls-of-apples-researchkit\">Read the full transcript of the interview here. \u003c/a>\u003c/div>\n\n","blocks":[],"excerpt":"Apple's new mobile software platform is designed to help collect data for medical research, but concerns have been raised about privacy and informed consent.","status":"publish","parent":0,"modified":1477282718,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":16,"wordCount":558},"headData":{"title":"The Promise and Potential Pitfalls of Apple's ResearchKit | KQED","description":"Apple's new mobile software platform is designed to help collect data for medical research, but concerns have been raised about privacy and informed consent.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"The Promise and Potential Pitfalls of Apple's ResearchKit","datePublished":"2015-05-04T17:01:13.000Z","dateModified":"2016-10-24T04:18:38.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"2694 http://ww2.kqed.org/futureofyou/?p=2694","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/05/04/the-promise-and-potential-pitfalls-of-apples-researchkit/","disqusTitle":"The Promise and Potential Pitfalls of Apple's ResearchKit","nprByline":"NPR Staff","nprStoryId":"404023370","nprApiLink":"http://api.npr.org/query?id=404023370&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"http://www.npr.org/blogs/alltechconsidered/2015/05/03/404023370/the-promise-and-potential-pitfalls-of-apples-researchkit?ft=nprml&f=404023370","nprRetrievedStory":"1","nprPubDate":"Mon, 04 May 2015 09:37:00 -0400","nprStoryDate":"Sun, 03 May 2015 18:44:00 -0400","nprLastModifiedDate":"Mon, 04 May 2015 09:37:03 -0400","nprAudio":"http://pd.npr.org/anon.npr-mp3/npr/atc/2015/05/20150503_atc_apple_research_kit.mp3?orgId=1&topicId=1019&d=273&p=2&story=404023370&t=progseg&e=404027989&seg=5&ft=nprml&f=404023370","nprAudioM3u":"http://api.npr.org/m3u/1404028033-69b76a.m3u?orgId=1&topicId=1019&d=273&p=2&story=404023370&t=progseg&e=404027989&seg=5&ft=nprml&f=404023370","path":"/futureofyou/2694/the-promise-and-potential-pitfalls-of-apples-researchkit","audioUrl":"http://pd.npr.org/anon.npr-mp3/npr/atc/2015/05/20150503_atc_apple_research_kit.mp3?orgId=1&topicId=1019&d=273&p=2&story=404023370&t=progseg&e=404027989&seg=5&ft=nprml&f=404023370","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Most of the tech buzz these days has centered on the new Apple Watch -- including on the potential for \u003ca href=\"http://www.npr.org/blogs/alltechconsidered/2015/04/25/402039156/as-health-apps-hop-on-the-apple-watch-privacy-will-be-key\">health-related apps\u003c/a>. Less attention has been given to Apple's \u003ca href=\"https://www.apple.com/researchkit/\">ResearchKit\u003c/a>, an open-source mobile software platform released in March.\u003c/p>\n\u003cp>But the medical world is paying attention.\u003c/p>\n\u003cp>\"It's designed to let medical researchers and developers create apps that can be downloaded through the app store, and then users can decide to join a study that's conducted solely through their phones,\" Arielle Duhaime-Ross, a science reporter at The Verge, tells NPR's Arun Rath.\u003c/p>\n\u003cp>So far, researchers have developed ResearchKit apps to study diseases including breast cancer, asthma and Parkinson's disease. \u003ca href=\"http://www.bloomberg.com/news/articles/2015-03-11/apple-researchkit-sees-thousands-sign-up-amid-bias-criticism\">Thousands of volunteers\u003c/a> have signed up.\u003c/p>\n\u003cp>But Duhaime-Ross tells Rath there are concerns about privacy and informed consent. Here are some interview highlights:\u003c/p>\n\u003chr>\n\u003cp>\u003cstrong>On privacy concerns\u003c/strong>\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>When you join a [ResearchKit] study, you go through an informed consent process where they tell you about the risks of joining the study. They'll ask you whether you want to share your data with other researchers and any other partners, but they do explain that they will make that data anonymous.\u003c/p>\n\u003cp>And really, Apple is relying on these researchers, these institutions, to make sure that everything is kosher. And that's where it might get a little bit hairy, where data breaches might occur. It's very young and it's very unclear whether there will be any issues later on.\u003c/p>\n\u003cp>\u003cstrong>On the question of informed consent\u003c/strong>\u003c/p>\n\u003cp>Every app that I've tested so far tells you toward the end that there is no guarantee that we can protect your data completely. Usually when you do this, you do this in person with the researcher or on the phone. You have the opportunity to ask a number of questions. You have the opportunity to demonstrate that maybe you don't quite understand what you're signing up for.\u003c/p>\n\u003cp>Now, the informed consent process with the apps, they do ask you a number of questions to verify that you understand everything that you've just read. But these questions are yes/no questions and it's very easy to essentially fudge the process. ...\u003c/p>\n\u003cp>If you go into the Parkinson's disease app ... when you first decide to join the study, it asks you three questions. One of them is \"Are you over 18?\" The first time that I downloaded it, I pressed on \"no\" ... It said, \"You're not eligible.\" I was able to press on the back button very easily and then I was able to answer again and say that I was over 18. So there's definitely a question about the ethics of this process.\u003c/p>\n\u003cp>\u003cstrong>On how Apple addressed some concerns after the release\u003c/strong>\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>Apple has asked ... that all apps have institutional review board approval. This means that at the institutions where they are based in, they need to have an independent ethics board review the work to make sure that the people who are partaking in it are properly informed about the risks, are aware of how everything will run, that the questions are valuable questions that are being asked and that we're not conducting a study of little value.\u003c/p>\n\u003cdiv class=\"fullattribution\">Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=The+Promise+And+Potential+Pitfalls+Of+Apple%27s+ResearchKit+&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/div>\n\u003cdiv class=\"fullattribution\">\u003c/div>\n\u003cdiv class=\"fullattribution\">\u003ca href=\"http://www.npr.org/blogs/alltechconsidered/2015/05/03/404023370/the-promise-and-potential-pitfalls-of-apples-researchkit\">Read the full transcript of the interview here. \u003c/a>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/2694/the-promise-and-potential-pitfalls-of-apples-researchkit","authors":["byline_futureofyou_2694"],"programs":["futureofyou_54"],"series":["futureofyou_172"],"categories":["futureofyou_1060"],"tags":["futureofyou_235","futureofyou_34","futureofyou_138","futureofyou_61","futureofyou_270","futureofyou_80","futureofyou_272","futureofyou_269","futureofyou_271"],"featImg":"futureofyou_2697","label":"futureofyou_54"},"futureofyou_2581":{"type":"posts","id":"futureofyou_2581","meta":{"index":"posts_1591205157","site":"futureofyou","id":"2581","score":null,"sort":[1430496002000]},"guestAuthors":[],"slug":"the-doctor-will-video-chat-with-you-now-insurer-covers-virtual-visits","title":"The Doctor Will Video Chat With You Now: Insurer Covers Virtual Visits","publishDate":1430496002,"format":"standard","headTitle":"Contributor | KQED Future of You | KQED Science","labelTerm":{"term":172,"site":"futureofyou"},"content":"\u003cp>If you can live stream movies, why not live stream medical care?\u003c/p>\n\u003cp>Insurance company \u003ca href=\"http://www.uhc.com/\">UnitedHealthcare\u003c/a> will start covering visits to the doctor's office — via video chat. Patients and physicians talk live online — on smartphones, tablets or home computer — to get to a clinical diagnosis. This move to cybermedicine could save insurers a ton of money — or have unintended consequences.\u003c/p>\n\u003cp>Cybermedicine has been \u003ca href=\"http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1761771/\">long-discussed\u003c/a> by the experts. Now, Eric Neiman, father to a little girl in San Francisco, can explain how it works — from personal experience.\u003c/p>\n\u003cp>\"So I'd gotten a text from my wife earlier in the day,\" he says. \"One of our daughter's eyes was a little bit red and she was rubbing it.\"\u003c/p>\n\u003cp>A few hours passed and it got more red and started oozing. \"Well, unfortunately that sounds like it could be pinkeye. So we would look at it together when I got home,\" Neiman says.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Which was close to 8 p.m. — too late to see their regular pediatrician. And kind of late to see any doctor. If they went to the local urgent care center, they'd get back home at 10 p.m. or 11 p.m.\u003c/p>\n\u003cp>Then, Neiman remembered something, from his Instagram account, a post for an app called \u003ca href=\"http://www.doctorondemand.com/\">Doctor On Demand\u003c/a>. It pairs users up with doctors who are licensed in their state for a video screening.\u003c/p>\n\u003cp>Neiman decided to log in. \"The pediatrician came on, introduced himself, and then asked to see our daughter, asked to hold the iPhone up to her eye, checked her throat, everything that he could see via the phone.\"\u003c/p>\n\u003cp>Within minutes, the doctor called in a prescription for pinkeye. The visit cost Neiman $40.\u003c/p>\n\u003cp>Neiman was so impressed, he says, he used the app just a few days later for himself. He thought he was getting a sinus infection, and logged in \u003cem>from his car\u003c/em>.\u003c/p>\n\u003cp>\"I was sitting on the side of the street. It's not the first time I pulled over to use my phone,\" he says. \"But to actually go to the doctor — I was just hopeful nobody was watching!\"\u003c/p>\n\u003cp>\u003cstrong>Save On Cost Or Break \u003c/strong>\u003cstrong>The Bank?\u003c/strong>\u003c/p>\n\u003cp>UnitedHealthcare's move to cover all or part of the cost of these e-visits — for up to 20 million customers by 2016 — is big. A major company is putting its stamp of approval on a process that, until now, has been largely experimental.\u003c/p>\n\u003cp>Three mobile-doc startups – Doctor on Demand, \u003ca href=\"https://nowclinic.com/landing.htm\">NowClinic\u003c/a> and \u003ca href=\"https://www.americanwell.com/\">Amwell\u003c/a> – are the initial providers.\u003c/p>\n\u003cp>Karen Scott, who directs innovation initiatives at UnitedHealthcare, says the company is studying cost: \"What happens if somebody is more likely to use virtual care? Maybe they would have gone in to urgent care. How many of them will choose the virtual visit instead?\"\u003c/p>\n\u003cp>It could be that people grab a doctor online for skin rashes, colds and coughs — and by getting care early on, they prevent an expensive catastrophe. Or maybe people wait too long when they really just need to see a doctor in person. Or it could be this service brings out the inner hypochondriac in us and leaves the insurer with a bigger bill to co-pay.\u003c/p>\n\u003cp>\"Those are the sorts of health care economics and actuarial questions that our experts will be watching,\" Scott says.\u003c/p>\n\u003cp>\u003cstrong>Convenience For Doctors\u003c/strong>\u003c/p>\n\u003cp>This move has big implications for physicians, too.\u003c/p>\n\u003cp>Dr. Tania Elliott, an allergist with Doctor on Demand, says that through the app, patients with a rash show her their symptoms in the moment — not a week later. She takes virtual tours of people's homes to search dust mite sources. Instead of tedious planning, she gives patients a ballpark of when to do a follow up visit.\u003c/p>\n\u003cp>\"They have access to essentially my schedule. And so when they log into the app they can see when I'm online,\" she says.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>The doctor has even gotten to work remotely — from a hotel room in Hawaii.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=The+Doctor+Will+Video+Chat+With+You+Now%3A+Insurer+Covers+Virtual+Visits&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"Medical consultation via video is going mainstream. UnitedHealthcare says it will cover doctors' visits by live video on smartphones, tablets and computers. Will people overuse it and boost costs?","status":"publish","parent":0,"modified":1434048989,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":24,"wordCount":681},"headData":{"title":"The Doctor Will Video Chat With You Now: Insurer Covers Virtual Visits | KQED","description":"Medical consultation via video is going mainstream. UnitedHealthcare says it will cover doctors' visits by live video on smartphones, tablets and computers. Will people overuse it and boost costs?","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"The Doctor Will Video Chat With You Now: Insurer Covers Virtual Visits","datePublished":"2015-05-01T16:00:02.000Z","dateModified":"2015-06-11T18:56:29.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"2581 http://ww2.kqed.org/futureofyou/?p=2581","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/05/01/the-doctor-will-video-chat-with-you-now-insurer-covers-virtual-visits/","disqusTitle":"The Doctor Will Video Chat With You Now: Insurer Covers Virtual Visits","nprByline":"Aarti Shahani","nprStoryId":"403346731","nprApiLink":"http://api.npr.org/query?id=403346731&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"http://www.npr.org/blogs/alltechconsidered/2015/04/30/403346731/the-doctor-will-video-chat-with-you-now-insurer-covers-virtual-visits?ft=nprml&f=403346731","nprRetrievedStory":"1","nprPubDate":"Thu, 30 Apr 2015 19:05:00 -0400","nprStoryDate":"Thu, 30 Apr 2015 16:27:00 -0400","nprLastModifiedDate":"Thu, 30 Apr 2015 17:18:52 -0400","nprAudio":"http://pd.npr.org/anon.npr-mp3/npr/atc/2015/04/20150430_atc_united_healthcare_to_cover_virtual_doctors_visits_for_20_million_customers.mp3?orgId=1&topicId=1019&d=200&p=2&story=403346731&t=progseg&e=403362523&seg=10&ft=nprml&f=403346731","nprAudioM3u":"http://api.npr.org/m3u/1403362692-bab9a0.m3u?orgId=1&topicId=1019&d=200&p=2&story=403346731&t=progseg&e=403362523&seg=10&ft=nprml&f=403346731","path":"/futureofyou/2581/the-doctor-will-video-chat-with-you-now-insurer-covers-virtual-visits","audioUrl":"http://pd.npr.org/anon.npr-mp3/npr/atc/2015/04/20150430_atc_united_healthcare_to_cover_virtual_doctors_visits_for_20_million_customers.mp3?orgId=1&topicId=1019&d=200&p=2&story=403346731&t=progseg&e=403362523&seg=10&ft=nprml&f=403346731","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>If you can live stream movies, why not live stream medical care?\u003c/p>\n\u003cp>Insurance company \u003ca href=\"http://www.uhc.com/\">UnitedHealthcare\u003c/a> will start covering visits to the doctor's office — via video chat. Patients and physicians talk live online — on smartphones, tablets or home computer — to get to a clinical diagnosis. This move to cybermedicine could save insurers a ton of money — or have unintended consequences.\u003c/p>\n\u003cp>Cybermedicine has been \u003ca href=\"http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1761771/\">long-discussed\u003c/a> by the experts. Now, Eric Neiman, father to a little girl in San Francisco, can explain how it works — from personal experience.\u003c/p>\n\u003cp>\"So I'd gotten a text from my wife earlier in the day,\" he says. \"One of our daughter's eyes was a little bit red and she was rubbing it.\"\u003c/p>\n\u003cp>A few hours passed and it got more red and started oozing. \"Well, unfortunately that sounds like it could be pinkeye. So we would look at it together when I got home,\" Neiman says.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Which was close to 8 p.m. — too late to see their regular pediatrician. And kind of late to see any doctor. If they went to the local urgent care center, they'd get back home at 10 p.m. or 11 p.m.\u003c/p>\n\u003cp>Then, Neiman remembered something, from his Instagram account, a post for an app called \u003ca href=\"http://www.doctorondemand.com/\">Doctor On Demand\u003c/a>. It pairs users up with doctors who are licensed in their state for a video screening.\u003c/p>\n\u003cp>Neiman decided to log in. \"The pediatrician came on, introduced himself, and then asked to see our daughter, asked to hold the iPhone up to her eye, checked her throat, everything that he could see via the phone.\"\u003c/p>\n\u003cp>Within minutes, the doctor called in a prescription for pinkeye. The visit cost Neiman $40.\u003c/p>\n\u003cp>Neiman was so impressed, he says, he used the app just a few days later for himself. He thought he was getting a sinus infection, and logged in \u003cem>from his car\u003c/em>.\u003c/p>\n\u003cp>\"I was sitting on the side of the street. It's not the first time I pulled over to use my phone,\" he says. \"But to actually go to the doctor — I was just hopeful nobody was watching!\"\u003c/p>\n\u003cp>\u003cstrong>Save On Cost Or Break \u003c/strong>\u003cstrong>The Bank?\u003c/strong>\u003c/p>\n\u003cp>UnitedHealthcare's move to cover all or part of the cost of these e-visits — for up to 20 million customers by 2016 — is big. A major company is putting its stamp of approval on a process that, until now, has been largely experimental.\u003c/p>\n\u003cp>Three mobile-doc startups – Doctor on Demand, \u003ca href=\"https://nowclinic.com/landing.htm\">NowClinic\u003c/a> and \u003ca href=\"https://www.americanwell.com/\">Amwell\u003c/a> – are the initial providers.\u003c/p>\n\u003cp>Karen Scott, who directs innovation initiatives at UnitedHealthcare, says the company is studying cost: \"What happens if somebody is more likely to use virtual care? Maybe they would have gone in to urgent care. How many of them will choose the virtual visit instead?\"\u003c/p>\n\u003cp>It could be that people grab a doctor online for skin rashes, colds and coughs — and by getting care early on, they prevent an expensive catastrophe. Or maybe people wait too long when they really just need to see a doctor in person. Or it could be this service brings out the inner hypochondriac in us and leaves the insurer with a bigger bill to co-pay.\u003c/p>\n\u003cp>\"Those are the sorts of health care economics and actuarial questions that our experts will be watching,\" Scott says.\u003c/p>\n\u003cp>\u003cstrong>Convenience For Doctors\u003c/strong>\u003c/p>\n\u003cp>This move has big implications for physicians, too.\u003c/p>\n\u003cp>Dr. Tania Elliott, an allergist with Doctor on Demand, says that through the app, patients with a rash show her their symptoms in the moment — not a week later. She takes virtual tours of people's homes to search dust mite sources. Instead of tedious planning, she gives patients a ballpark of when to do a follow up visit.\u003c/p>\n\u003cp>\"They have access to essentially my schedule. And so when they log into the app they can see when I'm online,\" she says.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>The doctor has even gotten to work remotely — from a hotel room in Hawaii.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2015 NPR. To see more, visit http://www.npr.org/.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=The+Doctor+Will+Video+Chat+With+You+Now%3A+Insurer+Covers+Virtual+Visits&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/2581/the-doctor-will-video-chat-with-you-now-insurer-covers-virtual-visits","authors":["byline_futureofyou_2581"],"series":["futureofyou_172"],"categories":["futureofyou_1"],"tags":["futureofyou_259","futureofyou_34","futureofyou_138","futureofyou_80","futureofyou_173","futureofyou_125","futureofyou_267"],"featImg":"futureofyou_2582","label":"futureofyou_172"},"futureofyou_2509":{"type":"posts","id":"futureofyou_2509","meta":{"index":"posts_1591205157","site":"futureofyou","id":"2509","score":null,"sort":[1430330721000]},"guestAuthors":[],"slug":"hospitals-increasingly-turn-to-patients-for-advice","title":"Hospitals Increasingly Turn to Patients for Advice","publishDate":1430330721,"format":"standard","headTitle":"Contributor | KQED Future of You | KQED Science","labelTerm":{"term":172,"site":"futureofyou"},"content":"\u003cp>Jane Maier was one of a select group of patients invited in early 2012 to help \u003ca href=\"http://www.partners.org/\">Partners HealthCare\u003c/a>, Massachusetts’ largest health system, pick its new electronic health record system – a critical investment of close to $700 million.\u003c/p>\n\u003cp>The system, which is now being phased in, will help coordinate services and reshape how patients and doctors find and read medical information. The fact that Partners sought the perspective of patients highlights how hospitals increasingly care about what their customers think.\u003c/p>\n\u003cp>“It’s such a great experience,” Maier said. “They treat us as a member – a partner – in their review process.”\u003c/p>\n\u003cp>Patient advisory councils, like the one Maier belongs to, often serve as sounding boards for hospital leaders – offering advice on a range of issues. Members are usually patients and relatives who had bad hospital experiences and want to change how things work, or who liked their stay and want to remain involved.\u003c/p>\n\u003cp>For Maier, it all started in 2009 when she had surgery at\u003ca href=\"http://www.brighamandwomens.org/\"> Brigham and Women’s Faulkner Hospital\u003c/a>, a Partners facility. Her husband wrote to the hospital’s CEO, praising her experience. The couple was then invited to speak at a hospital leadership retreat, sharing with top executives both the good and the not-so-good, and Maier was recruited to serve on a new patient advisory panel.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>This hunt for patient perspective, which is becoming more and more common, is fueled in part by the health law’s quality-improvement provisions and other federal financial incentives, such as the link between Medicare payments and patient satisfaction scores.\u003c/p>\n\u003cp>“It’s a change in culture,” said Jayne Hart Chambers, senior vice president for quality at the \u003ca href=\"http://fah.org/\">Federation of American Hospitals\u003c/a>, which represents for-profit hospitals.\u003c/p>\n\u003cp class=\"p1\">\u003cspan class=\"s1\">Data from 2013 suggested that 40 percent of hospitals had some kind of patient council, said Mary Minniti, a program and resource specialist at the\u003ca href=\"http://www.ipfcc.org/\"> Institute for Patient and Family Centered Care\u003c/a>, a Maryland-based nonprofit organization. Though councils appear to have become more common in the past few years, experts say it’s too early to know whether they typically improve hospital practices.\u003c/span>\u003c/p>\n\u003cp>“A lot of hospitals right now are very concerned because of the direction of [Medicare] payments,” said Carol Cronin, executive director of the nonprofit Informed \u003ca href=\"http://www.patientinstitute.org/\">Patient Institute\u003c/a>, an advocacy group. “They’re very concerned about patient experience and patient satisfaction.”\u003c/p>\n\u003cp>But it’s not just federal incentives. Patients have greater expectations as they shoulder larger shares of health care costs, said Richard Evans, chief experience officer at \u003ca href=\"http://www.massgeneral.org/\">Massachusetts General Hospital\u003c/a>, another Partners facility. This, he added, leads hospitals to focus on customer service.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Initially, nobody knew who we were and we had to sell ourselves\"\u003cbr>\n\u003ccite>Andy DeVries, patient advisory council at Spectrum Health \u003c/cite>\u003c/aside>\n\u003cp>Cronin, who has had a relative stay for an extended time in the hospital, volunteers on the patient advisory council at Johns Hopkins Hospital in Baltimore.\u003c/p>\n\u003cp>She was struck, she said, by the “meaty” topics the group addresses. Hopkins’ medical researchers have even pitched their projects to the council to find out what patients and families think are worthy of scientific investigation.\u003c/p>\n\u003cp>To have an impact, though, these groups can’t operate in isolation.\u003c/p>\n\u003cp>Patient and family advisory councils are useful if they have the ear of hospital leaders, Minniti said. But the groups also have to be integrated into decision making.\u003c/p>\n\u003cp>Andy DeVries joined the first patient advisory council at Michigan’s Spectrum Health about 10 years ago, after he was hospitalized with life-threatening injuries from a motorcycle accident.\u003c/p>\n\u003cp>“Initially, nobody knew who we were and we had to sell ourselves,” said DeVries, who now serves on one of Spectrum Health’s 13 patient groups.\u003c/p>\n\u003cp>Now, by contrast, his group offers input “any time there’s something new that involves patient or family care,” adding that the panel of patient advisers has tackled issues ranging from beefing up the facility’s security to how the hospital should give patients billing information. He’s even worked with the human resources department on what to look for when hiring doctors and nurses.\u003c/p>\n\u003cp>Such feedback led to marked increases in patient satisfaction scores, said Deborah Sprague, Spectrum Health’s program manager for patient and family services.\u003c/p>\n\u003cp>For instance, she said, a member of the orthopedics and neuroscience patient council noticed slow responses when he pushed the call button in his hospital room, a problem staff hadn’t noticed. The council worked with hospital employees to speed up response times. After the fix, positive patient assessments of the hospital jumped.\u003c/p>\n\u003cp>Maier, from the Faulkner council, recalled a time when hospital executives asked for help with patient complaints regarding nighttime noise levels. Late-night talking by staff was keeping patients awake.\u003c/p>\n\u003caside class=\"pullquote alignleft\">Council members are often “middle-aged and older, white and English-speaking, and a lot of women.\"\u003cbr>\n\u003ccite>Deb Wachenheim, health quality manager at Health Care For Ally\u003c/cite>\u003c/aside>\n\u003cp>The group discussed potential nighttime “quiet times” and other strategies to minimize noise without keeping doctors from doing their jobs.\u003c/p>\n\u003cp>Once changes were made, patient satisfaction scores went up, Maier said — and a council member noticed a definite improvement the next time he was a patient.\u003c/p>\n\u003cp>Meanwhile, \u003ca href=\"http://www.medstarhealth.org/\">MedStar Health\u003c/a>, which serves the District of Columbia and Maryland, has targeted advisory panels’ efforts to improve both the quality and safety of its care. The system has emerged as a model for finding ways to incorporate patients’ opinions, which was noted in a report from the American Hospital Association.\u003c/p>\n\u003cp>In one recent case, said David Mayer, MedStar’s vice president of quality and safety, patient advisers helped brainstorm ways to soothe the confusion and stress that often sets in when people have been in the ICU for more than a day. When implemented, the ideas led to reduced instances of patient confusion – known as delirium – which is linked to more destructive behavior, like patients trying to leave the room or bed before they should.\u003c/p>\n\u003cp>But even as the role of patient advisory committees grows, recruiting members continues to be a challenge. Finding people from diverse backgrounds with both the inclination and time to serve can be tricky, Cronin said.\u003c/p>\n\u003cp>As a result, council members are often “middle-aged and older, white and English-speaking, and a lot of women,” said Deb Wachenheim, health quality manager at the Massachusetts-based advocacy group Health Care For All.\u003c/p>\n\u003cp>For some hospitals and health systems, though, these panels are just the beginning. Massachusetts General puts patients on various policy setting committees, and Faulkner has a non-voting patient board member.\u003c/p>\n\u003cp>“As we continue to evolve,” Maier said, “the hospital looks to us more and more.”\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Copyright 2015 Kaiser Health News. To see more, visit \u003ca href=\"http://www.kaiserhealthnews.org/\">http://www.kaiserhealthnews.org/\u003c/a>.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Digital+Tools+For+Health+Come+With+%27Hope%2C+Hype+And+Harm%27&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Patients have greater expectations for their medical treatment and care as they now shoulder larger shares of health care costs. ","status":"publish","parent":0,"modified":1434048952,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":30,"wordCount":1169},"headData":{"title":"Hospitals Increasingly Turn to Patients for Advice | KQED","description":"Patients have greater expectations for their medical treatment and care as they now shoulder larger shares of health care costs. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Hospitals Increasingly Turn to Patients for Advice","datePublished":"2015-04-29T18:05:21.000Z","dateModified":"2015-06-11T18:55:52.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"disqusIdentifier":"2509 http://ww2.kqed.org/futureofyou/?p=2509","disqusUrl":"https://ww2.kqed.org/futureofyou/2015/04/29/hospitals-increasingly-turn-to-patients-for-advice/","disqusTitle":"Hospitals Increasingly Turn to Patients for Advice","nprByline":"Shefali Luthra, Kaiser Health News ","path":"/futureofyou/2509/hospitals-increasingly-turn-to-patients-for-advice","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Jane Maier was one of a select group of patients invited in early 2012 to help \u003ca href=\"http://www.partners.org/\">Partners HealthCare\u003c/a>, Massachusetts’ largest health system, pick its new electronic health record system – a critical investment of close to $700 million.\u003c/p>\n\u003cp>The system, which is now being phased in, will help coordinate services and reshape how patients and doctors find and read medical information. The fact that Partners sought the perspective of patients highlights how hospitals increasingly care about what their customers think.\u003c/p>\n\u003cp>“It’s such a great experience,” Maier said. “They treat us as a member – a partner – in their review process.”\u003c/p>\n\u003cp>Patient advisory councils, like the one Maier belongs to, often serve as sounding boards for hospital leaders – offering advice on a range of issues. Members are usually patients and relatives who had bad hospital experiences and want to change how things work, or who liked their stay and want to remain involved.\u003c/p>\n\u003cp>For Maier, it all started in 2009 when she had surgery at\u003ca href=\"http://www.brighamandwomens.org/\"> Brigham and Women’s Faulkner Hospital\u003c/a>, a Partners facility. Her husband wrote to the hospital’s CEO, praising her experience. The couple was then invited to speak at a hospital leadership retreat, sharing with top executives both the good and the not-so-good, and Maier was recruited to serve on a new patient advisory panel.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>This hunt for patient perspective, which is becoming more and more common, is fueled in part by the health law’s quality-improvement provisions and other federal financial incentives, such as the link between Medicare payments and patient satisfaction scores.\u003c/p>\n\u003cp>“It’s a change in culture,” said Jayne Hart Chambers, senior vice president for quality at the \u003ca href=\"http://fah.org/\">Federation of American Hospitals\u003c/a>, which represents for-profit hospitals.\u003c/p>\n\u003cp class=\"p1\">\u003cspan class=\"s1\">Data from 2013 suggested that 40 percent of hospitals had some kind of patient council, said Mary Minniti, a program and resource specialist at the\u003ca href=\"http://www.ipfcc.org/\"> Institute for Patient and Family Centered Care\u003c/a>, a Maryland-based nonprofit organization. Though councils appear to have become more common in the past few years, experts say it’s too early to know whether they typically improve hospital practices.\u003c/span>\u003c/p>\n\u003cp>“A lot of hospitals right now are very concerned because of the direction of [Medicare] payments,” said Carol Cronin, executive director of the nonprofit Informed \u003ca href=\"http://www.patientinstitute.org/\">Patient Institute\u003c/a>, an advocacy group. “They’re very concerned about patient experience and patient satisfaction.”\u003c/p>\n\u003cp>But it’s not just federal incentives. Patients have greater expectations as they shoulder larger shares of health care costs, said Richard Evans, chief experience officer at \u003ca href=\"http://www.massgeneral.org/\">Massachusetts General Hospital\u003c/a>, another Partners facility. This, he added, leads hospitals to focus on customer service.\u003c/p>\n\u003caside class=\"pullquote alignright\">“Initially, nobody knew who we were and we had to sell ourselves\"\u003cbr>\n\u003ccite>Andy DeVries, patient advisory council at Spectrum Health \u003c/cite>\u003c/aside>\n\u003cp>Cronin, who has had a relative stay for an extended time in the hospital, volunteers on the patient advisory council at Johns Hopkins Hospital in Baltimore.\u003c/p>\n\u003cp>She was struck, she said, by the “meaty” topics the group addresses. Hopkins’ medical researchers have even pitched their projects to the council to find out what patients and families think are worthy of scientific investigation.\u003c/p>\n\u003cp>To have an impact, though, these groups can’t operate in isolation.\u003c/p>\n\u003cp>Patient and family advisory councils are useful if they have the ear of hospital leaders, Minniti said. But the groups also have to be integrated into decision making.\u003c/p>\n\u003cp>Andy DeVries joined the first patient advisory council at Michigan’s Spectrum Health about 10 years ago, after he was hospitalized with life-threatening injuries from a motorcycle accident.\u003c/p>\n\u003cp>“Initially, nobody knew who we were and we had to sell ourselves,” said DeVries, who now serves on one of Spectrum Health’s 13 patient groups.\u003c/p>\n\u003cp>Now, by contrast, his group offers input “any time there’s something new that involves patient or family care,” adding that the panel of patient advisers has tackled issues ranging from beefing up the facility’s security to how the hospital should give patients billing information. He’s even worked with the human resources department on what to look for when hiring doctors and nurses.\u003c/p>\n\u003cp>Such feedback led to marked increases in patient satisfaction scores, said Deborah Sprague, Spectrum Health’s program manager for patient and family services.\u003c/p>\n\u003cp>For instance, she said, a member of the orthopedics and neuroscience patient council noticed slow responses when he pushed the call button in his hospital room, a problem staff hadn’t noticed. The council worked with hospital employees to speed up response times. After the fix, positive patient assessments of the hospital jumped.\u003c/p>\n\u003cp>Maier, from the Faulkner council, recalled a time when hospital executives asked for help with patient complaints regarding nighttime noise levels. Late-night talking by staff was keeping patients awake.\u003c/p>\n\u003caside class=\"pullquote alignleft\">Council members are often “middle-aged and older, white and English-speaking, and a lot of women.\"\u003cbr>\n\u003ccite>Deb Wachenheim, health quality manager at Health Care For Ally\u003c/cite>\u003c/aside>\n\u003cp>The group discussed potential nighttime “quiet times” and other strategies to minimize noise without keeping doctors from doing their jobs.\u003c/p>\n\u003cp>Once changes were made, patient satisfaction scores went up, Maier said — and a council member noticed a definite improvement the next time he was a patient.\u003c/p>\n\u003cp>Meanwhile, \u003ca href=\"http://www.medstarhealth.org/\">MedStar Health\u003c/a>, which serves the District of Columbia and Maryland, has targeted advisory panels’ efforts to improve both the quality and safety of its care. The system has emerged as a model for finding ways to incorporate patients’ opinions, which was noted in a report from the American Hospital Association.\u003c/p>\n\u003cp>In one recent case, said David Mayer, MedStar’s vice president of quality and safety, patient advisers helped brainstorm ways to soothe the confusion and stress that often sets in when people have been in the ICU for more than a day. When implemented, the ideas led to reduced instances of patient confusion – known as delirium – which is linked to more destructive behavior, like patients trying to leave the room or bed before they should.\u003c/p>\n\u003cp>But even as the role of patient advisory committees grows, recruiting members continues to be a challenge. Finding people from diverse backgrounds with both the inclination and time to serve can be tricky, Cronin said.\u003c/p>\n\u003cp>As a result, council members are often “middle-aged and older, white and English-speaking, and a lot of women,” said Deb Wachenheim, health quality manager at the Massachusetts-based advocacy group Health Care For All.\u003c/p>\n\u003cp>For some hospitals and health systems, though, these panels are just the beginning. Massachusetts General puts patients on various policy setting committees, and Faulkner has a non-voting patient board member.\u003c/p>\n\u003cp>“As we continue to evolve,” Maier said, “the hospital looks to us more and more.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Copyright 2015 Kaiser Health News. To see more, visit \u003ca href=\"http://www.kaiserhealthnews.org/\">http://www.kaiserhealthnews.org/\u003c/a>.\u003cimg src=\"http://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Digital+Tools+For+Health+Come+With+%27Hope%2C+Hype+And+Harm%27&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\" alt=\"\">\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/futureofyou/2509/hospitals-increasingly-turn-to-patients-for-advice","authors":["byline_futureofyou_2509"],"series":["futureofyou_172"],"categories":["futureofyou_1"],"tags":["futureofyou_261","futureofyou_259","futureofyou_34","futureofyou_138","futureofyou_80","futureofyou_260","futureofyou_257","futureofyou_262","futureofyou_258"],"featImg":"futureofyou_2510","label":"futureofyou_172"}},"programsReducer":{"possible":{"id":"possible","title":"Possible","info":"Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. Together in Possible, Hoffman and Finger lead enlightening discussions about building a brighter collective future. The show features interviews with visionary guests like Trevor Noah, Sam Altman and Janette Sadik-Khan. Possible paints an optimistic portrait of the world we can create through science, policy, business, art and our shared humanity. It asks: What if everything goes right for once? How can we get there? Each episode also includes a short fiction story generated by advanced AI GPT-4, serving as a thought-provoking springboard to speculate how humanity could leverage technology for good.","airtime":"SUN 2pm","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Possible-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.possible.fm/","meta":{"site":"news","source":"Possible"},"link":"/radio/program/possible","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/possible/id1677184070","spotify":"https://open.spotify.com/show/730YpdUSNlMyPQwNnyjp4k"}},"1a":{"id":"1a","title":"1A","info":"1A is home to the national conversation. 1A brings on great guests and frames the best debate in ways that make you think, share and engage.","airtime":"MON-THU 11pm-12am","imageSrc":"https://ww2.kqed.org/radio/wp-content/uploads/sites/50/2018/04/1a.jpg","officialWebsiteLink":"https://the1a.org/","meta":{"site":"news","source":"npr"},"link":"/radio/program/1a","subscribe":{"npr":"https://rpb3r.app.goo.gl/RBrW","apple":"https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?s=143441&mt=2&id=1188724250&at=11l79Y&ct=nprdirectory","tuneIn":"https://tunein.com/radio/1A-p947376/","rss":"https://feeds.npr.org/510316/podcast.xml"}},"all-things-considered":{"id":"all-things-considered","title":"All Things Considered","info":"Every weekday, \u003cem>All Things Considered\u003c/em> hosts Robert Siegel, Audie Cornish, Ari Shapiro, and Kelly McEvers present the program's trademark mix of news, interviews, commentaries, reviews, and offbeat features. Michel Martin hosts on the weekends.","airtime":"MON-FRI 1pm-2pm, 4:30pm-6:30pm\u003cbr />SAT-SUN 5pm-6pm","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/All-Things-Considered-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.npr.org/programs/all-things-considered/","meta":{"site":"news","source":"npr"},"link":"/radio/program/all-things-considered"},"american-suburb-podcast":{"id":"american-suburb-podcast","title":"American Suburb: The Podcast","tagline":"The flip side of gentrification, told through one town","info":"Gentrification is changing cities across America, forcing people from neighborhoods they have long called home. Call them the displaced. Now those priced out of the Bay Area are looking for a better life in an unlikely place. American Suburb follows this migration to one California town along the Delta, 45 miles from San Francisco. But is this once sleepy suburb ready for them?","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/American-Suburb-Podcast-Tile-703x703-1.jpg","officialWebsiteLink":"/news/series/american-suburb-podcast","meta":{"site":"news","source":"kqed","order":"13"},"link":"/news/series/american-suburb-podcast/","subscribe":{"npr":"https://rpb3r.app.goo.gl/RBrW","apple":"https://itunes.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?mt=2&id=1287748328","tuneIn":"https://tunein.com/radio/American-Suburb-p1086805/","rss":"https://ww2.kqed.org/news/series/american-suburb-podcast/feed/podcast","google":"https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5tZWdhcGhvbmUuZm0vS1FJTkMzMDExODgxNjA5"}},"baycurious":{"id":"baycurious","title":"Bay Curious","tagline":"Exploring the Bay Area, one question at a time","info":"KQED’s new podcast, Bay Curious, gets to the bottom of the mysteries — both profound and peculiar — that give the Bay Area its unique identity. And we’ll do it with your help! You ask the questions. You decide what Bay Curious investigates. 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You can also visit the MindShift website for episodes and supplemental blog posts or tweet us \u003ca href=\"https://twitter.com/MindShiftKQED\">@MindShiftKQED\u003c/a> or visit us at \u003ca href=\"/mindshift\">MindShift.KQED.org\u003c/a>","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Mindshift-Podcast-Tile-703x703-1.jpg","imageAlt":"KQED MindShift: How We Will Learn","officialWebsiteLink":"/mindshift/","meta":{"site":"news","source":"kqed","order":"2"},"link":"/podcasts/mindshift","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/mindshift-podcast/id1078765985","google":"https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5tZWdhcGhvbmUuZm0vS1FJTkM1NzY0NjAwNDI5","npr":"https://www.npr.org/podcasts/464615685/mind-shift-podcast","stitcher":"https://www.stitcher.com/podcast/kqed/stories-teachers-share","spotify":"https://open.spotify.com/show/0MxSpNYZKNprFLCl7eEtyx"}},"morning-edition":{"id":"morning-edition","title":"Morning Edition","info":"\u003cem>Morning Edition\u003c/em> takes listeners around the country and the world with multi-faceted stories and commentaries every weekday. 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On Our Watch brings listeners into the rooms where officers are questioned and witnesses are interrogated to find out who this system is really protecting. 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