In 2011, a National Academy of Sciences report called for the creation of a “knowledge network of disease” to help researchers and doctors share information and patient data more effectively. Such a network would also allow scientists and clinicians to access data on the molecular makeup of diseases, vastly improving diagnosis and treatment. But the concept — known as “precision medicine” — is already raising ethical questions and concerns over patient privacy. We talk to the heads of National Institutes of Health, the Food and Drug Administration and UCSF about precision medicine, the subject of a two-day summit in San Francisco this week.
Francis Collins, director of National Institutes of Health (NIH) and former director of the National Human Genome Research Institute
Margaret Hamburg, commissioner for the Food and Drug Administration
Susan Desmond-Hellmann, chancellor of UCSF and former president of product development at Genentech