Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film
Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App
Incorrectly Deleted From Facebook? Getting Back On Might Take Connections
Facebook, WhatsApp and Instagram Go Down in Major, Worldwide Outage
HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming
Facebook Calls Links to Depression Inconclusive. These Researchers Disagree
Trial by Yelp: The Internet Targets the Businesses of DC Riot Attendees
Celebrities Boycott Facebook For a Day Over Disinformation, Hate Speech
Facebook Phishing Scams Hit Livestreamed Concerts
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But some scammers are taking advantage—as in the case of Carmen Getit and Steve Lucky, whose Facebook page was bombarded with fraudulent links.","credit":"Courtesy of the artists","description":"Musicians are adapting to the pandemic by collecting donations from livestreamed concerts. 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You can hear her work on \u003ca href=\"https://www.npr.org/search?query=Rachael%20Myrow&page=1\">NPR\u003c/a>, \u003ca href=\"https://theworld.org/people/rachael-myrow\">The World\u003c/a>, WBUR's \u003ca href=\"https://www.wbur.org/search?q=Rachael%20Myrow\">\u003ci>Here & Now\u003c/i>\u003c/a> and the BBC. \u003c/i>She also guest hosts for KQED's \u003ci>\u003ca href=\"https://www.kqed.org/forum/tag/rachael-myrow\">Forum\u003c/a>\u003c/i>. Over the years, she's talked with Kamau Bell, David Byrne, Kamala Harris, Tony Kushner, Armistead Maupin, Van Dyke Parks, Arnold Schwarzenegger and Tommie Smith, among others.\r\n\r\nBefore all this, she hosted \u003cem>The California Report\u003c/em> for 7+ years, reporting on topics like \u003ca href=\"https://soundcloud.com/rmyrow/on-a-mission-to-reform-assisted-living\">assisted living facilities\u003c/a>, the \u003ca href=\"https://www.npr.org/sections/alltechconsidered/2014/12/01/367703789/amazon-unleashes-robot-army-to-send-your-holiday-packages-faster\">robot takeover\u003c/a> of Amazon, and \u003ca href=\"https://www.kqed.org/bayareabites/50822/in-search-of-the-chocolate-persimmon\" rel=\"noopener noreferrer\">chocolate persimmons\u003c/a>.\r\n\r\nAwards? Sure: Peabody, Edward R. Murrow, Regional Edward R. Murrow, RTNDA, Northern California RTNDA, SPJ Northern California Chapter, LA Press Club, Golden Mic. Prior to joining KQED, Rachael worked in Los Angeles at KPCC and Marketplace. She holds degrees in English and journalism from UC Berkeley (where she got her start in public radio on KALX-FM).\r\n\r\nOutside of the studio, you'll find Rachael hiking Bay Area trails and whipping up Instagram-ready meals in her kitchen.","avatar":"https://secure.gravatar.com/avatar/87bf8cb5874e045cdff430523a6d48b1?s=600&d=blank&r=g","twitter":"rachaelmyrow","facebook":null,"instagram":null,"linkedin":"https://www.linkedin.com/in/rachaelmyrow/","sites":[{"site":"arts","roles":["administrator"]},{"site":"news","roles":["edit_others_posts","editor"]},{"site":"futureofyou","roles":["editor"]},{"site":"bayareabites","roles":["editor"]},{"site":"stateofhealth","roles":["editor"]},{"site":"science","roles":["editor"]},{"site":"food","roles":["editor"]},{"site":"forum","roles":["editor"]}],"headData":{"title":"Rachael Myrow | KQED","description":"Senior Editor of KQED's Silicon Valley News Desk","ogImgSrc":"https://secure.gravatar.com/avatar/87bf8cb5874e045cdff430523a6d48b1?s=600&d=blank&r=g","twImgSrc":"https://secure.gravatar.com/avatar/87bf8cb5874e045cdff430523a6d48b1?s=600&d=blank&r=g"},"isLoading":false,"link":"/author/rachael-myrow"},"ralexandra":{"type":"authors","id":"11242","meta":{"index":"authors_1591205172","id":"11242","found":true},"name":"Rae Alexandra","firstName":"Rae","lastName":"Alexandra","slug":"ralexandra","email":"ralexandra@kqed.org","display_author_email":false,"staff_mastheads":["arts"],"title":"Staff Writer","bio":"Rae Alexandra is Staff Writer for KQED Arts & Culture, and the creator/author of the \u003ca href=\"https://www.kqed.org/arts/program/rebel-girls-from-bay-area-history\">Rebel Girls From Bay Area History\u003c/a> and \u003ca href=\"https://www.kqed.org/bizarrebayarea\">Bizarre Bay Area\u003c/a> series. Born and raised in Wales, she started her career in London, as a music journalist for uproarious rock ’n’ roll magazine, \u003cem>\u003ca href=\"https://www.kerrang.com/features/an-oral-history-of-alternative-tentacles-40-years-of-keeping-punk-alive/\">Kerrang!\u003c/a>\u003c/em>. In America, she got her start at alt-weeklies including \u003ca href=\"https://archives.sfweekly.com/sanfrancisco/ArticleArchives?author=2127078&excludeCategoryType=Blog\">\u003cem>SF Weekly\u003c/em>\u003c/a> and the \u003ca href=\"https://www.villagevoice.com/author/raealexandra/\">\u003cem>Village Voice\u003c/em>\u003c/a>, and freelanced for a great many other publications. Her undying love for San Francisco has, more recently, turned her into \u003ca href=\"https://www.kqed.org/arts/tag/bayareahistory/\">a history nerd\u003c/a>. In 2023, Rae was awarded an SPJ Excellence in Journalism Award for Arts & Culture.","avatar":"https://secure.gravatar.com/avatar/d5ef3d663d9adae1345d06932a3951de?s=600&d=blank&r=g","twitter":"raemondjjjj","facebook":null,"instagram":null,"linkedin":null,"sites":[{"site":"arts","roles":["editor"]},{"site":"news","roles":["editor"]},{"site":"pop","roles":["editor"]},{"site":"bayareabites","roles":["editor"]},{"site":"science","roles":["editor"]}],"headData":{"title":"Rae Alexandra | KQED","description":"Staff Writer","ogImgSrc":"https://secure.gravatar.com/avatar/d5ef3d663d9adae1345d06932a3951de?s=600&d=blank&r=g","twImgSrc":"https://secure.gravatar.com/avatar/d5ef3d663d9adae1345d06932a3951de?s=600&d=blank&r=g"},"isLoading":false,"link":"/author/ralexandra"}},"breakingNewsReducer":{},"campaignFinanceReducer":{},"firebase":{"requesting":{},"requested":{},"timestamps":{},"data":{},"ordered":{},"auth":{"isLoaded":false,"isEmpty":true},"authError":null,"profile":{"isLoaded":false,"isEmpty":true},"listeners":{"byId":{},"allIds":[]},"isInitializing":false,"errors":[]},"navBarReducer":{"navBarId":"arts","fullView":true,"showPlayer":false},"navMenuReducer":{"menus":[{"key":"menu1","items":[{"name":"News","link":"/","type":"title"},{"name":"Politics","link":"/politics"},{"name":"Science","link":"/science"},{"name":"Education","link":"/educationnews"},{"name":"Housing","link":"/housing"},{"name":"Immigration","link":"/immigration"},{"name":"Criminal Justice","link":"/criminaljustice"},{"name":"Silicon Valley","link":"/siliconvalley"},{"name":"Forum","link":"/forum"},{"name":"The California Report","link":"/californiareport"}]},{"key":"menu2","items":[{"name":"Arts & Culture","link":"/arts","type":"title"},{"name":"Critics’ Picks","link":"/thedolist"},{"name":"Cultural Commentary","link":"/artscommentary"},{"name":"Food & Drink","link":"/food"},{"name":"Bay Area Hip-Hop","link":"/bayareahiphop"},{"name":"Rebel Girls","link":"/rebelgirls"},{"name":"Arts Video","link":"/artsvideos"}]},{"key":"menu3","items":[{"name":"Podcasts","link":"/podcasts","type":"title"},{"name":"Bay Curious","link":"/podcasts/baycurious"},{"name":"Rightnowish","link":"/podcasts/rightnowish"},{"name":"The Bay","link":"/podcasts/thebay"},{"name":"On Our Watch","link":"/podcasts/onourwatch"},{"name":"Mindshift","link":"/podcasts/mindshift"},{"name":"Consider This","link":"/podcasts/considerthis"},{"name":"Political Breakdown","link":"/podcasts/politicalbreakdown"}]},{"key":"menu4","items":[{"name":"Live Radio","link":"/radio","type":"title"},{"name":"TV","link":"/tv","type":"title"},{"name":"Events","link":"/events","type":"title"},{"name":"For Educators","link":"/education","type":"title"},{"name":"Support KQED","link":"/support","type":"title"},{"name":"About","link":"/about","type":"title"},{"name":"Help Center","link":"https://kqed-helpcenter.kqed.org/s","type":"title"}]}]},"pagesReducer":{},"postsReducer":{"stream_live":{"type":"live","id":"stream_live","audioUrl":"https://streams.kqed.org/kqedradio","title":"Live Stream","excerpt":"Live Stream information currently unavailable.","link":"/radio","featImg":"","label":{"name":"KQED Live","link":"/"}},"stream_kqedNewscast":{"type":"posts","id":"stream_kqedNewscast","audioUrl":"https://www.kqed.org/.stream/anon/radio/RDnews/newscast.mp3?_=1","title":"KQED Newscast","featImg":"","label":{"name":"88.5 FM","link":"/"}},"arts_13931718":{"type":"posts","id":"arts_13931718","meta":{"index":"posts_1591205157","site":"arts","id":"13931718","score":null,"sort":[1689620393000]},"guestAuthors":[],"slug":"endometriosis-a-painful-often-overlooked-disease-gets-attention-in-a-new-film","title":"Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film","publishDate":1689620393,"format":"aside","headTitle":"Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film | KQED","labelTerm":{"term":137,"site":"arts"},"content":"\u003cfigure id=\"attachment_13931719\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13931719\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-800x750.jpg\" alt=\"The sweat drenched torso of a woman is viewed in close up, with seven lesions visible around the belly button. Each is circled and numbered.\" width=\"800\" height=\"750\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-800x750.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-1020x956.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-160x150.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-768x720.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-1536x1440.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">‘Below the Belt’ is a documentary about endometriosis. \u003ccite>(‘Below the Belt’)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Jenneh Rishe, a registered nurse, is not the type to let a health mystery go unsolved.\u003c/p>\n\u003cp>At age 30 and living in Los Angeles, she was determined to suss out the cause of the abdominal pain that sent her to the ER seven times in two years, as well as other symptoms like shortness of breath. She’d seen specialists including OB/GYNs pulmonologists and cardiologists. But the tests always came back normal.\u003c/p>\n\u003cp>[aside postid='arts_13914530']“I thought maybe I’m dying or I have some kind of rare disease. But then I go online and find millions of women are going through exactly what I’m going through,” Rishe explained.\u003c/p>\n\u003cp>She shared the story in the first few minutes of \u003cem>Below the Belt: The Last Health Taboo,\u003c/em> a \u003ca href=\"https://www.belowthebelt.film/\">new documentary\u003c/a> that follows four people on a years-long search for effective treatment for endometriosis.\u003c/p>\n\u003cp>This chronic inflammatory disease, which often causes severe pain during menstruation, is often poorly understood. People with endometriosis have tissue similar to that found in the uterine lining growing outside of the uterus, sometimes on the ovaries, fallopian tubes, bowel or other organs.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>In addition to sometimes debilitating menstrual pain, it can cause heavy bleeding and infertility. In one international study, \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/21718982/\">women lost an average of 10.8 hours per week of work\u003c/a> due to endometriosis symptoms.\u003c/p>\n\u003cp>“Even though endometriosis feels like a strange, foreign word and unfriendly to most people who’ve never heard of it, the fact of the matter is that it affects everyone,” said the film’s director Shannon Cohn, in an interview with NPR. “Either you have it or you love someone who has it.”\u003c/p>\n\u003cp>The disease affects an estimated 1 in 10 women of reproductive age according to the American College of Obstetricians and Gynecologists. Cohn says ignorance around the disease — both in the public and among medical professionals — is the result of historic undervaluing and underfunding of women’s health care.\u003c/p>\n\u003cp>https://www.youtube.com/watch?v=Z39-b4v6L1U\u003c/p>\n\u003cp>\u003cem>Below the Belt\u003c/em> aired on PBS last month is \u003ca href=\"https://www.pbs.org/show/below-belt-last-health-taboo/\">available to stream for free at PBS.org\u003c/a> and on the PBS streaming service until July 10, 2023.\u003c/p>\n\u003cp>Here are seven big takeaways from watching the film and speaking with Cohn.\u003c/p>\n\u003ch3>1. Endometriosis isn’t ‘just bad periods’\u003c/h3>\n\u003cp>“My first symptoms were actually GI symptoms,” says Cohn, who began experiencing symptoms at the age of 16. “I ran the whole gamut of why do I have stomach aches all the time? And that’s actually quite common that a lot of people with endometriosis first present with GI symptoms instead of painful periods,” says Cohn.\u003c/p>\n\u003cp>Other common symptoms include migraines, painful intercourse, chronic fatigue, abdominal swelling, and pelvic pain throughout the cycle.\u003c/p>\n\u003cp>The wide variety of symptoms can make it hard to diagnose — a doctor must perform surgery to make a definitive diagnosis. It typically takes a patient anywhere from\u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/30625295/\"> four to 10 years from first experiencing symptoms\u003c/a> to receive an accurate diagnosis.\u003c/p>\n\u003ch3>2. Commonly prescribed meds often do little to help\u003c/h3>\n\u003cp>If a patient shows up at their OB/GYN’s office complaining of painful menstruation or other problems that appear or worsen during their period, the doctor typically prescribes medication to suppress the hormonal cycle — often a hormonal contraceptive such as a birth control pill. These medications mitigate symptoms by allowing the patient to have a lighter period, or stop the cycle entirely.\u003c/p>\n\u003cp>[aside postid='arts_13930824']It’s important to understand that if a patient has endometriosis, hormonal medications don’t actually treat the disease, says Iris Orbuch, an endometriosis specialist who appears in the film. “We’re using the same medicines that have been around for about 30 years. They don’t make endometriosis go away, they don’t melt endometriosis,” Orbuch said in the film. “But the side effects are probably worse than the benefits that the women are receiving from the medicine.”\u003c/p>\n\u003cp>Patients interviewed for the film describe side effects including brittle teeth, hot flashes, depression and “PMS on steroids, on crack, on cocaine, and every possible stimulant.”\u003c/p>\n\u003ch3>3. A hysterectomy won’t cure endometriosis. Neither will pregnancy\u003c/h3>\n\u003cfigure id=\"attachment_13931723\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13931723\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-800x521.jpg\" alt=\"A young woman wearing glasses lies in a hospital bed, visibly in pain, while an older man strokes her hair and kisses her forehead.\" width=\"800\" height=\"521\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-800x521.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-1020x664.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-160x104.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-768x500.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-1536x1000.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5.jpg 1656w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">A still from ‘Below the Belt’ shows Laura Cone of Saskatchewan, Canada with her father. She had four ablation surgeries with general OB/GYNs, but her condition kept deteriorating until she found a surgeon who did excision surgery. \u003ccite>(‘Below the Belt’)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Over 100,000 hysterectomies are performed every year for the disease and … most are unnecessary,” says \u003ca href=\"https://centerforendo.com/introduction-to-the-staff\">Heather Guidone\u003c/a>, surgical program director at the Center for Endometriosis Care in Atlanta, Ga. Another common myth is that if a person with endometriosis gets pregnant, their symptoms won’t return after their cycle resumes.\u003c/p>\n\u003cp>Guidone says the idea that both these false notions are based on an outdated theory that says if you stop periods, the disease goes away. A study of endometriosis patients who had hysterectomies and took painkillers \u003ca href=\"https://obgyn.onlinelibrary.wiley.com/doi/full/10.1111/1471-0528.16469\">showed no reduction in the amount of opioid and non-opioid painkillers\u003c/a> prescribed in the three years after surgery.\u003c/p>\n\u003cp>Why? One theory about the origin of endometriosis is that it’s the result of retrograde menstruation — meaning that during menstruation, some of the shed uterine lining travels through the fallopian tubes and implants in places where it shouldn’t be. People who ascribe to this theory think hysterectomy would help but still is not a cure.\u003c/p>\n\u003cp>But other surgeons like \u003ca href=\"https://endopaedia.info/redwine.html\">David Redwine\u003c/a>, who also appears in the film, point to evidence that endometriosis tissue actually appears during embryonic development. And so removing the uterus wouldn’t affect that tissue that’s been there since birth.\u003c/p>\n\u003cp>A hysterectomy is, however, the definitive treatment for adenomyosis — a disease where tissue from the uterine lining invades the muscle wall of the uterus. Adenomyosis also causes painful menstruation and infertility, and \u003ca href=\"https://nancysnookendo.com/hysterectomy-and-endometriosis/\">many patients have both conditions\u003c/a>.\u003c/p>\n\u003cp>https://www.youtube.com/watch?v=m28VUzDyaSs\u003c/p>\n\u003ch3>4. Endometriosis is responsible for up to 50% of infertility,\u003c/h3>\n\u003cp>Another of the film’s subjects is \u003ca href=\"https://www.kyung.com/\">Kyung Jeon-Miranda\u003c/a>, a Brooklyn-based artist whose paintings, featured in \u003cem>Below the Belt,\u003c/em> reflect her struggles with fertility and longing for motherhood. Jeon says she was told in her early twenties that she’d never be able to conceive. But at 39, she and her husband are trying for a baby.\u003c/p>\n\u003cp>\u003ca href=\"https://www.reproductivefacts.org/news-and-publications/fact-sheets-and-infographics/endometriosis-does-it-cause-infertility/\">Endometriosis can negatively impact fertility in several ways\u003c/a> including distorting the anatomy of the pelvis, causing scarring on the fallopian tubes and ovaries, changing the hormonal environment, and altering the functioning of the immune system. Surgery to remove endometriosis and fertility treatments may increase the likelihood of a successful pregnancy.\u003c/p>\n\u003ch3>5. Most surgeons are doing endometriosis surgery wrong\u003c/h3>\n\u003cp>\u003cem>Below the Belt\u003c/em> subject Laura Cone, 28, of Saskatchewan, Canada, had four surgeries with general OB/GYNs. But her condition kept deteriorating, impacting her ability to drive and run her business. Laura’s doctors had performed ablation — where an instrument is used to incinerate visible endometriosis tissue.\u003c/p>\n\u003cp>While ablation is the most common type of endometriosis surgery, it misses tissue hidden from the naked eye. Like Cone, many patients return for repeat ablations after their symptoms resume.\u003c/p>\n\u003cp>[aside postid='arts_13912974']“I use the analogy, if you have cancer and you have a tumor, do you want someone who’s not a specialist to burn off the surface of that tumor, or do you want a specialist to go in and cut it out?” the film’s director Cohn says.\u003c/p>\n\u003cp>The gold standard method of surgery is excision, where a surgeon removes endometriosis lesions and often adjacent tissue. Studies show a \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/28456617/\">greater reduction in symptoms\u003c/a> after excision compared with ablation, and fewer patients come back for repeat surgeries.\u003c/p>\n\u003cp>While many OB/GYNs who see patients for routine care perform ablation, excision surgery is done by surgeons with specialized training. And many of these specialists do not accept health insurance.\u003c/p>\n\u003cp>As the film explains, the medical billing codes for the two types of surgery are the same — even though ablation is typically performed in under an hour, while excision can take four hours or more. “You have a whole staff who are depending on you to pay their salaries and you have to pay the light bill,” says Ted Anderson, past president of ACOG, in the film. “There are a lot of economic pressures as well as do-the-right-thing-pressures.”\u003c/p>\n\u003cp>In the film, Cone’s father says he took out a second mortgage to raise the $25,000 needed to pay for his daughter’s excision surgery in the U.S.\u003c/p>\n\u003cp>There are surgeons qualified to do excision at teaching hospitals, Cohn points out, who do accept health insurance.\u003c/p>\n\u003ch3>6. To get proper care, patients need to take their health into their own hands.\u003c/h3>\n\u003cp>Both Laura Cone and Jenneh Rishe learned about excision surgery from other patients on the internet. Facebook groups like \u003ca href=\"https://www.facebook.com/groups/289078084538377\">Endometropolis \u003c/a>and \u003ca href=\"https://www.facebook.com/groups/418136991574617\">Nancy’s Nook\u003c/a> provide forums for patients to ask questions, compare experiences, recommend doctors, and even share surgery photos. Endometriosis specialists and nurses often answer questions in these groups as well. TikTok videos about endometriosis\u003ca href=\"https://www.newsweek.com/below-belt-endometriosis-movie-documentary-director-interview-1710510\"> have over 1 billion views\u003c/a>.\u003c/p>\n\u003cp>[aside postid='news_11951879']“When you’re not getting the answers that you need and, and want from a health care provider, you’re going to go somewhere else,” says Cohn. “Of course there’s misinformation everywhere and that includes online … But you can do some digging and try to put the pieces together and learn from other people who have been in your position,” she says.\u003c/p>\n\u003cp>Cohn also encourages patients to ask pointed questions in their doctors’ appointments, especially when considering surgery. She recommends asking the surgeon if they do excision, and how frequently they perform endometriosis surgery; as well as talking to other patients who have had surgeries performed by the specialist you’re working with.\u003c/p>\n\u003cp>In general, the earlier a patient receives excision surgery, the less they will suffer, because the symptoms tend to get worse over the female reproductive years. Endometriosis patients may find relief for their symptoms by many means, including \u003ca href=\"https://health.clevelandclinic.org/endometriosis-diet/\">changes to diet\u003c/a> and exercise, and receiving\u003ca href=\"https://www.sideeffectspublicmedia.org/personal-health/2013-12-29/can-abdominal-massage-help-painful-menstruation\"> massage\u003c/a> and \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5659600/\">acupuncture\u003c/a>. But experts say only excision surgery can halt progression of the disease.\u003c/p>\n\u003ch3>7. A bipartisan effort is working to secure more funding for endometriosis research.\u003c/h3>\n\u003cp>Emily Hatch, the youngest of the film’s subjects, is a high school senior from Massachusetts whose endometriosis threatens her ability to attend college. In one scene, Emily’s mother is on the phone with then Utah Senator Orrin Hatch — Emily’s grandfather. He says he wants to help.\u003c/p>\n\u003cp>Emily Hatch and her mother along with Project Endo, the organization behind \u003cem>Below the Belt,\u003c/em> worked with Senators Hatch and Sen. Elizabeth Warren to get \u003ca href=\"https://www.projectendo.org/research-funding\">$9.2 million in funding from the Department of Defense allocated for endometriosis research\u003c/a> in 2018. After Hatch’s retirement in 2019, Sen. Mitt Romney has worked alongside Warren to press for funding from the National Institutes of Health.\u003c/p>\n\u003cp>[aside postid='arts_13931543']This March, Warren and Romney \u003ca href=\"https://thehill.com/blogs/in-the-know/3881454-senate-screening-of-below-the-belt-spotlights-fight-against-endometriosis/\">hosted a screening of the documentary\u003c/a> before the Senate. Hillary Clinton is one of the film’s executive producers.\u003c/p>\n\u003cp>Cohn says more research funding is sorely needed to address the disease’s many unknowns. “I hope that we can do things like trying to find … what is actually causing endometriosis. Because until we find that out, it’s hard to really find ways to treat it. I hope that we can find a non-invasive diagnostic tool, so that women don’t have to go years and years without understanding what is going on in their body. I hope that research can yield non-hormonal treatment options,” Cohn says.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>Andrea Muraskin is a podcast producer and writer living in Boston. She writes the NPR Health newsletter, and is the host and creator of the podcast\u003c/em>\u003ca href=\"https://www.andreamuraskin.com/lady-parts-podcast\">\u003cem> LADYPARTS: Taking a Wide View on Women’s Health\u003c/em>\u003c/a>\u003cem>. \u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2023 NPR. To see more, \u003ca href=\"https://www.npr.org\">visit NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Endometriosis%2C+a+painful+and+often+overlooked+disease%2C+gets+attention+in+a+new+film&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"‘Below the Belt’ highlights patients' stories and the push for new research dollars for this poorly understood disease.","status":"publish","parent":0,"modified":1705005266,"stats":{"hasAudio":false,"hasVideo":true,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":42,"wordCount":2074},"headData":{"title":"’Below the Belt’ Documentary Highlights Pain of Endometriosis | KQED","description":"‘Below the Belt’ highlights patients' stories and the push for new research dollars for this poorly understood disease.","ogTitle":"Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film","ogDescription":"","ogImgId":"","twTitle":"Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film","twDescription":"","twImgId":"","socialTitle":"’Below the Belt’ Documentary Highlights Pain of Endometriosis %%page%% %%sep%% KQED","schema":{"@context":"http://schema.org","@type":"Article","headline":"Endometriosis, a Painful, Often Overlooked Disease, Gets Attention in a New Film","datePublished":"2023-07-17T18:59:53.000Z","dateModified":"2024-01-11T20:34:26.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"nprByline":"Andrea Muraskin","nprImageAgency":"Below the Belt","nprStoryId":"1186533247","nprApiLink":"http://api.npr.org/query?id=1186533247&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"https://www.npr.org/sections/health-shots/2023/07/16/1186533247/endometriosis-a-painful-and-often-overlooked-disease-gets-attention-in-a-new-fil?ft=nprml&f=1186533247","nprRetrievedStory":"1","nprPubDate":"Mon, 17 Jul 2023 08:05:00 -0400","nprStoryDate":"Sun, 16 Jul 2023 06:00:21 -0400","nprLastModifiedDate":"Mon, 17 Jul 2023 08:05:06 -0400","templateType":"standard","featuredImageType":"standard","excludeFromSiteSearch":"Include","showOnAuthorArchivePages":"No","articleAge":"0","path":"/arts/13931718/endometriosis-a-painful-often-overlooked-disease-gets-attention-in-a-new-film","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cfigure id=\"attachment_13931719\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13931719\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-800x750.jpg\" alt=\"The sweat drenched torso of a woman is viewed in close up, with seven lesions visible around the belly button. Each is circled and numbered.\" width=\"800\" height=\"750\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-800x750.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-1020x956.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-160x150.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-768x720.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625-1536x1440.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/btb_art_textless-smaller_custom-b72ea6874476aaf1327e6e9927a71f415da2d204-scaled-e1689619816625.jpg 1920w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">‘Below the Belt’ is a documentary about endometriosis. \u003ccite>(‘Below the Belt’)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Jenneh Rishe, a registered nurse, is not the type to let a health mystery go unsolved.\u003c/p>\n\u003cp>At age 30 and living in Los Angeles, she was determined to suss out the cause of the abdominal pain that sent her to the ER seven times in two years, as well as other symptoms like shortness of breath. She’d seen specialists including OB/GYNs pulmonologists and cardiologists. But the tests always came back normal.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13914530","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>“I thought maybe I’m dying or I have some kind of rare disease. But then I go online and find millions of women are going through exactly what I’m going through,” Rishe explained.\u003c/p>\n\u003cp>She shared the story in the first few minutes of \u003cem>Below the Belt: The Last Health Taboo,\u003c/em> a \u003ca href=\"https://www.belowthebelt.film/\">new documentary\u003c/a> that follows four people on a years-long search for effective treatment for endometriosis.\u003c/p>\n\u003cp>This chronic inflammatory disease, which often causes severe pain during menstruation, is often poorly understood. People with endometriosis have tissue similar to that found in the uterine lining growing outside of the uterus, sometimes on the ovaries, fallopian tubes, bowel or other organs.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>In addition to sometimes debilitating menstrual pain, it can cause heavy bleeding and infertility. In one international study, \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/21718982/\">women lost an average of 10.8 hours per week of work\u003c/a> due to endometriosis symptoms.\u003c/p>\n\u003cp>“Even though endometriosis feels like a strange, foreign word and unfriendly to most people who’ve never heard of it, the fact of the matter is that it affects everyone,” said the film’s director Shannon Cohn, in an interview with NPR. “Either you have it or you love someone who has it.”\u003c/p>\n\u003cp>The disease affects an estimated 1 in 10 women of reproductive age according to the American College of Obstetricians and Gynecologists. Cohn says ignorance around the disease — both in the public and among medical professionals — is the result of historic undervaluing and underfunding of women’s health care.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/Z39-b4v6L1U'\n title='//www.youtube.com/embed/Z39-b4v6L1U'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003cp>\u003cem>Below the Belt\u003c/em> aired on PBS last month is \u003ca href=\"https://www.pbs.org/show/below-belt-last-health-taboo/\">available to stream for free at PBS.org\u003c/a> and on the PBS streaming service until July 10, 2023.\u003c/p>\n\u003cp>Here are seven big takeaways from watching the film and speaking with Cohn.\u003c/p>\n\u003ch3>1. Endometriosis isn’t ‘just bad periods’\u003c/h3>\n\u003cp>“My first symptoms were actually GI symptoms,” says Cohn, who began experiencing symptoms at the age of 16. “I ran the whole gamut of why do I have stomach aches all the time? And that’s actually quite common that a lot of people with endometriosis first present with GI symptoms instead of painful periods,” says Cohn.\u003c/p>\n\u003cp>Other common symptoms include migraines, painful intercourse, chronic fatigue, abdominal swelling, and pelvic pain throughout the cycle.\u003c/p>\n\u003cp>The wide variety of symptoms can make it hard to diagnose — a doctor must perform surgery to make a definitive diagnosis. It typically takes a patient anywhere from\u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/30625295/\"> four to 10 years from first experiencing symptoms\u003c/a> to receive an accurate diagnosis.\u003c/p>\n\u003ch3>2. Commonly prescribed meds often do little to help\u003c/h3>\n\u003cp>If a patient shows up at their OB/GYN’s office complaining of painful menstruation or other problems that appear or worsen during their period, the doctor typically prescribes medication to suppress the hormonal cycle — often a hormonal contraceptive such as a birth control pill. These medications mitigate symptoms by allowing the patient to have a lighter period, or stop the cycle entirely.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13930824","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>It’s important to understand that if a patient has endometriosis, hormonal medications don’t actually treat the disease, says Iris Orbuch, an endometriosis specialist who appears in the film. “We’re using the same medicines that have been around for about 30 years. They don’t make endometriosis go away, they don’t melt endometriosis,” Orbuch said in the film. “But the side effects are probably worse than the benefits that the women are receiving from the medicine.”\u003c/p>\n\u003cp>Patients interviewed for the film describe side effects including brittle teeth, hot flashes, depression and “PMS on steroids, on crack, on cocaine, and every possible stimulant.”\u003c/p>\n\u003ch3>3. A hysterectomy won’t cure endometriosis. Neither will pregnancy\u003c/h3>\n\u003cfigure id=\"attachment_13931723\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13931723\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-800x521.jpg\" alt=\"A young woman wearing glasses lies in a hospital bed, visibly in pain, while an older man strokes her hair and kisses her forehead.\" width=\"800\" height=\"521\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-800x521.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-1020x664.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-160x104.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-768x500.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5-1536x1000.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/brian-laura-hospital0_custom-438703e6f039925555c99e8d9a3a961a643298a5.jpg 1656w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">A still from ‘Below the Belt’ shows Laura Cone of Saskatchewan, Canada with her father. She had four ablation surgeries with general OB/GYNs, but her condition kept deteriorating until she found a surgeon who did excision surgery. \u003ccite>(‘Below the Belt’)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Over 100,000 hysterectomies are performed every year for the disease and … most are unnecessary,” says \u003ca href=\"https://centerforendo.com/introduction-to-the-staff\">Heather Guidone\u003c/a>, surgical program director at the Center for Endometriosis Care in Atlanta, Ga. Another common myth is that if a person with endometriosis gets pregnant, their symptoms won’t return after their cycle resumes.\u003c/p>\n\u003cp>Guidone says the idea that both these false notions are based on an outdated theory that says if you stop periods, the disease goes away. A study of endometriosis patients who had hysterectomies and took painkillers \u003ca href=\"https://obgyn.onlinelibrary.wiley.com/doi/full/10.1111/1471-0528.16469\">showed no reduction in the amount of opioid and non-opioid painkillers\u003c/a> prescribed in the three years after surgery.\u003c/p>\n\u003cp>Why? One theory about the origin of endometriosis is that it’s the result of retrograde menstruation — meaning that during menstruation, some of the shed uterine lining travels through the fallopian tubes and implants in places where it shouldn’t be. People who ascribe to this theory think hysterectomy would help but still is not a cure.\u003c/p>\n\u003cp>But other surgeons like \u003ca href=\"https://endopaedia.info/redwine.html\">David Redwine\u003c/a>, who also appears in the film, point to evidence that endometriosis tissue actually appears during embryonic development. And so removing the uterus wouldn’t affect that tissue that’s been there since birth.\u003c/p>\n\u003cp>A hysterectomy is, however, the definitive treatment for adenomyosis — a disease where tissue from the uterine lining invades the muscle wall of the uterus. Adenomyosis also causes painful menstruation and infertility, and \u003ca href=\"https://nancysnookendo.com/hysterectomy-and-endometriosis/\">many patients have both conditions\u003c/a>.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/m28VUzDyaSs'\n title='//www.youtube.com/embed/m28VUzDyaSs'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003ch3>4. Endometriosis is responsible for up to 50% of infertility,\u003c/h3>\n\u003cp>Another of the film’s subjects is \u003ca href=\"https://www.kyung.com/\">Kyung Jeon-Miranda\u003c/a>, a Brooklyn-based artist whose paintings, featured in \u003cem>Below the Belt,\u003c/em> reflect her struggles with fertility and longing for motherhood. Jeon says she was told in her early twenties that she’d never be able to conceive. But at 39, she and her husband are trying for a baby.\u003c/p>\n\u003cp>\u003ca href=\"https://www.reproductivefacts.org/news-and-publications/fact-sheets-and-infographics/endometriosis-does-it-cause-infertility/\">Endometriosis can negatively impact fertility in several ways\u003c/a> including distorting the anatomy of the pelvis, causing scarring on the fallopian tubes and ovaries, changing the hormonal environment, and altering the functioning of the immune system. Surgery to remove endometriosis and fertility treatments may increase the likelihood of a successful pregnancy.\u003c/p>\n\u003ch3>5. Most surgeons are doing endometriosis surgery wrong\u003c/h3>\n\u003cp>\u003cem>Below the Belt\u003c/em> subject Laura Cone, 28, of Saskatchewan, Canada, had four surgeries with general OB/GYNs. But her condition kept deteriorating, impacting her ability to drive and run her business. Laura’s doctors had performed ablation — where an instrument is used to incinerate visible endometriosis tissue.\u003c/p>\n\u003cp>While ablation is the most common type of endometriosis surgery, it misses tissue hidden from the naked eye. Like Cone, many patients return for repeat ablations after their symptoms resume.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13912974","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>“I use the analogy, if you have cancer and you have a tumor, do you want someone who’s not a specialist to burn off the surface of that tumor, or do you want a specialist to go in and cut it out?” the film’s director Cohn says.\u003c/p>\n\u003cp>The gold standard method of surgery is excision, where a surgeon removes endometriosis lesions and often adjacent tissue. Studies show a \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/28456617/\">greater reduction in symptoms\u003c/a> after excision compared with ablation, and fewer patients come back for repeat surgeries.\u003c/p>\n\u003cp>While many OB/GYNs who see patients for routine care perform ablation, excision surgery is done by surgeons with specialized training. And many of these specialists do not accept health insurance.\u003c/p>\n\u003cp>As the film explains, the medical billing codes for the two types of surgery are the same — even though ablation is typically performed in under an hour, while excision can take four hours or more. “You have a whole staff who are depending on you to pay their salaries and you have to pay the light bill,” says Ted Anderson, past president of ACOG, in the film. “There are a lot of economic pressures as well as do-the-right-thing-pressures.”\u003c/p>\n\u003cp>In the film, Cone’s father says he took out a second mortgage to raise the $25,000 needed to pay for his daughter’s excision surgery in the U.S.\u003c/p>\n\u003cp>There are surgeons qualified to do excision at teaching hospitals, Cohn points out, who do accept health insurance.\u003c/p>\n\u003ch3>6. To get proper care, patients need to take their health into their own hands.\u003c/h3>\n\u003cp>Both Laura Cone and Jenneh Rishe learned about excision surgery from other patients on the internet. Facebook groups like \u003ca href=\"https://www.facebook.com/groups/289078084538377\">Endometropolis \u003c/a>and \u003ca href=\"https://www.facebook.com/groups/418136991574617\">Nancy’s Nook\u003c/a> provide forums for patients to ask questions, compare experiences, recommend doctors, and even share surgery photos. Endometriosis specialists and nurses often answer questions in these groups as well. TikTok videos about endometriosis\u003ca href=\"https://www.newsweek.com/below-belt-endometriosis-movie-documentary-director-interview-1710510\"> have over 1 billion views\u003c/a>.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"news_11951879","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>“When you’re not getting the answers that you need and, and want from a health care provider, you’re going to go somewhere else,” says Cohn. “Of course there’s misinformation everywhere and that includes online … But you can do some digging and try to put the pieces together and learn from other people who have been in your position,” she says.\u003c/p>\n\u003cp>Cohn also encourages patients to ask pointed questions in their doctors’ appointments, especially when considering surgery. She recommends asking the surgeon if they do excision, and how frequently they perform endometriosis surgery; as well as talking to other patients who have had surgeries performed by the specialist you’re working with.\u003c/p>\n\u003cp>In general, the earlier a patient receives excision surgery, the less they will suffer, because the symptoms tend to get worse over the female reproductive years. Endometriosis patients may find relief for their symptoms by many means, including \u003ca href=\"https://health.clevelandclinic.org/endometriosis-diet/\">changes to diet\u003c/a> and exercise, and receiving\u003ca href=\"https://www.sideeffectspublicmedia.org/personal-health/2013-12-29/can-abdominal-massage-help-painful-menstruation\"> massage\u003c/a> and \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5659600/\">acupuncture\u003c/a>. But experts say only excision surgery can halt progression of the disease.\u003c/p>\n\u003ch3>7. A bipartisan effort is working to secure more funding for endometriosis research.\u003c/h3>\n\u003cp>Emily Hatch, the youngest of the film’s subjects, is a high school senior from Massachusetts whose endometriosis threatens her ability to attend college. In one scene, Emily’s mother is on the phone with then Utah Senator Orrin Hatch — Emily’s grandfather. He says he wants to help.\u003c/p>\n\u003cp>Emily Hatch and her mother along with Project Endo, the organization behind \u003cem>Below the Belt,\u003c/em> worked with Senators Hatch and Sen. Elizabeth Warren to get \u003ca href=\"https://www.projectendo.org/research-funding\">$9.2 million in funding from the Department of Defense allocated for endometriosis research\u003c/a> in 2018. After Hatch’s retirement in 2019, Sen. Mitt Romney has worked alongside Warren to press for funding from the National Institutes of Health.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13931543","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>This March, Warren and Romney \u003ca href=\"https://thehill.com/blogs/in-the-know/3881454-senate-screening-of-below-the-belt-spotlights-fight-against-endometriosis/\">hosted a screening of the documentary\u003c/a> before the Senate. Hillary Clinton is one of the film’s executive producers.\u003c/p>\n\u003cp>Cohn says more research funding is sorely needed to address the disease’s many unknowns. “I hope that we can do things like trying to find … what is actually causing endometriosis. Because until we find that out, it’s hard to really find ways to treat it. I hope that we can find a non-invasive diagnostic tool, so that women don’t have to go years and years without understanding what is going on in their body. I hope that research can yield non-hormonal treatment options,” Cohn says.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>Andrea Muraskin is a podcast producer and writer living in Boston. She writes the NPR Health newsletter, and is the host and creator of the podcast\u003c/em>\u003ca href=\"https://www.andreamuraskin.com/lady-parts-podcast\">\u003cem> LADYPARTS: Taking a Wide View on Women’s Health\u003c/em>\u003c/a>\u003cem>. \u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2023 NPR. To see more, \u003ca href=\"https://www.npr.org\">visit NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Endometriosis%2C+a+painful+and+often+overlooked+disease%2C+gets+attention+in+a+new+film&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13931718/endometriosis-a-painful-often-overlooked-disease-gets-attention-in-a-new-film","authors":["byline_arts_13931718"],"categories":["arts_1","arts_74"],"tags":["arts_7570","arts_1934","arts_1962","arts_9598","arts_4565","arts_5826","arts_973","arts_9325"],"affiliates":["arts_137"],"featImg":"arts_13931719","label":"arts_137"},"arts_13931259":{"type":"posts","id":"arts_13931259","meta":{"index":"posts_1591205157","site":"arts","id":"13931259","score":null,"sort":[1688688469000]},"guestAuthors":[],"slug":"threads-meta-thanks-i-hate-it","title":"Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App","publishDate":1688688469,"format":"standard","headTitle":"Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App | KQED","labelTerm":{},"content":"\u003cp>Threads! It’s mostly terrible, yes? But you’re also on it? And you’ve checked it 17 times since it launched last night? \u003c/p>\n\u003cp>Yes, Mark Zuckerberg’s Twitter-competitor app Threads is here, and already it’s amassed millions of users thanks to its close integration with Instagram. It has also amassed complaints, speculation, and every once in a while, a quality post. \u003c/p>\n\u003cp>Here, on the first full day of Threads’ availability to the public, some of us from the KQED Arts team offer our first impressions. \u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0091.jpg\" alt=\"\" width=\"750\" height=\"325\" class=\"aligncenter size-full wp-image-13931267\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0091.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0091-160x69.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Give us a followers-only, chronological feed, jeez\u003c/h2>\n\u003cp>A followers-only, chronological feed is the only thing anybody wants in a social media app, and this is what Threads denies its users. The only reason to join a new social media platform is to revel in its followers-only, chronological feed, because five years down the line, it’s inevitably ruined by shoving a bunch of stuff in your face that nobody wants. Threads has decided to jump straight to this five-years-later point of \u003ca href=\"https://www.wired.com/story/tiktok-platforms-cory-doctorow/\">enshittification\u003c/a>: my feed is full of Mr. Beast, Complex, Wendy’s, crypto bros, tech reporters and other garbage I did not sign up to see. I’d love to say that this would mean the death knell for Threads, but Meta is essentially too big to fail; in nearly every other instance of stealing from other social media platforms, they’ve gotten away with it. \u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>This morning, head of Instagram Adam Mosseri acknowledged the lack of a followers-only feed, along with the absence of search, hashtags, and DMs, and promised “we’re on it.” But for those who want to run screaming and delete their account now, sorry: if you delete your Threads account, you’re also \u003ca href=\"https://twitter.com/emilyhughes/status/1676775597735923719\">forced to delete your Instagram account with it\u003c/a>. \u003c/p>\n\u003cp>As for the upsides? “At least it isn’t Twitter” isn’t much of a glowing review. But I no longer want to supply free content to Elon Musk on his constantly malfunctioning platform, and I’m not alone. Time will tell if Zuckerberg’s crew can come up with features more compelling for what they are than what they aren’t.\u003cem>—Gabe Meline\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0096.jpg\" alt=\"\" width=\"375\" height=\"650\" class=\"aligncenter size-full wp-image-13931271\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0096.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0096-160x277.jpg 160w\" sizes=\"(max-width: 375px) 100vw, 375px\">\u003c/p>\n\u003ch2>The calm? Yeah, that won’t last\u003c/h2>\n\u003cp>12 p.m. July 6: How is Threads? I wouldn’t know, baby! Having worked in social media and social-adjacent journalism roles for over a decade, I’m \u003ca href=\"https://www.kqed.org/explainers\">finally in a job\u003c/a> that does not require me to be wildly invested and involved in “the latest in social media” on a 24/7 basis. So like any reasonable person who wrests a degree of control back over their life, I am now — for the next few hours, anyway — gleefully flexing that control by not activating my Threads account (and let’s be real, if you have an Instagram account that’s all this really is — a de facto activation of the Threads account every Instagram user basically already now has.)\u003c/p>\n\u003cp>This calm won’t last, of course. Judging from the air of “oh, of course” inevitability with which the launch announcement was met among Twitter users, Threads is probably going to become the next Twitter pretty fast. Not just because of that portability of your account and your follower count from Instagram (although do you want to see what your most visual pals are writing in text format?) but because of the fact we’ve all been waiting for New Twitter and, like Goldilocks with a screen time problem, we’ve not found any of the previous options on offer to be Just Right. We’re all tired, and if there’s finally a new option that looks good enough, we’ll probably accept it, with all its wrinkles and evolving features. So, if enough folks make that compromise (and I think they will, fueled by what’s been done to their beloved Twitter since Musk’s takeover), I’ll do it too — basically, so as not to be left in the cold on both the personal and professional fronts. But for now… just let me have a day without Threads?\u003c/p>\n\u003cp>5 p.m. July 6: I am probably now on Threads.—\u003cem>Carly Severn\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0095.jpg\" alt=\"\" width=\"750\" height=\"348\" class=\"aligncenter size-full wp-image-13931270\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0095.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0095-160x74.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Bring back anonymity!\u003c/h2>\n\u003cp>I was shaped/burned by the flames of Tumblr in the mid-to-late 2010s, so the first thing I noticed about Threads is that you need to link it with your Instagram. This makes it slightly more annoying to have alternate, somewhat-anonymous accounts, since Instagram tends to be more personable or influencer-y than, say, the K-pop stan accounts of Twitter and TikTok.\u003c/p>\n\u003cp>Not to imply that there isn’t a wide fandom scene on Instagram, but I have a hard time seeing those subcultures flourishing in an isolating environment like Threads. (I don’t know if that’s a good or bad thing.) There’s not a ton of opportunities to personalize one’s profile, like adding a header.\u003c/p>\n\u003cp>It’s also very ugly.—\u003cem>Nisa Khan\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0090.jpg\" alt=\"\" width=\"750\" height=\"269\" class=\"aligncenter size-full wp-image-13931266\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0090.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0090-160x57.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Call it what it is: two billionaires in a tiresome pissing contest\u003c/h2>\n\u003cp>Most of what I’ve seen on Threads so far is (fittingly) very meta and therefore very boring. Threads about Threads. Beyond that, what I dislike most about the Current State of Social Media is knowing who’s calling the shots: a couple of billionaires engaged in a pissing contest over a form of communication and expression that has come to mean very much to very many. These bros are the frickin’ worst.\u003c/p>\n\u003cp>Mark Zuckerberg, a 39-year-old American man worth $101.5 billion and who employs tens of thousands of people, shitposted on Twitter yesterday for the first time in 11 years. \u003c/p>\n\u003cp>https://twitter.com/finkd/status/1676747594460962817?s=20\u003c/p>\n\u003cp>Meanwhile Twitter — owned by Elon Musk, a person I try to know as little about as possible (and who happens to be worth an unfathomable $249.4 billion) — is now \u003ca href=\"https://www.semafor.com/article/07/06/2023/twitter-is-threatening-to-sue-meta-over-threads\">threatening to sue Meta\u003c/a> over Threads. (The Twitter lawyer’s letter accuses Meta of hiring former Twitter employees with trade secrets.) It’s like a straight-up schoolyard scene over here, folks.\u003c/p>\n\u003cp>https://twitter.com/elonmusk/status/1677042708756439041?s=20\u003c/p>\n\u003cp>Concurrently, Twitter itself is being sued by former employees for a host of reasons, including, most recently, allegedly \u003ca href=\"https://www.theverge.com/2023/7/5/23784760/twitter-lawsuit-arbitration-laid-off-employees-jams-musk\">refusing to pay for legal arbitration fees\u003c/a>. Any time a reporter asks Twitter for comment, they get a poop emoji in response. \u003c/p>\n\u003cp>\u003cem>I do not want to know any of this\u003c/em>. Better yet, I don’t want the products that help me learn new things, connect with colleagues, look at art and stay in touch to do such fundamentally bad things that we need to constantly cover both their mistakes and willful wrongdoings. I am even mad at my editor for asking me to think about the Current State of Social Media and write something about it. Insert a “throwing up arms in disgust” emoji here.—\u003cem>Sarah Hotchkiss\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0093.jpg\" alt=\"\" width=\"750\" height=\"320\" class=\"aligncenter size-full wp-image-13931269\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0093.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0093-160x68.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>I hated everything before and I will probably hate this too\u003c/h2>\n\u003cp>I have, in my entire life, only willingly joined two social media platforms. The first was Friendster (yes, I’m old, shut your mouth, etc.) and the second was MySpace. (Miss you, Tom!) I was dragged kicking and screaming from MySpace when it became apparent that no one else was using it anymore. Fifteen years on, I am still cursing the first person in my Top 8 to defect to Facebook and take everyone else with them. (I HAVEN’T FORGOTTEN, JOE.) \u003c/p>\n\u003cp>Twitter was thrust upon me by my editor when I started working for JustinTimberlake.com in 2009. “It’s essential that you’re on this platform,” she said, entirely unaware that because of my refusal to ever interact with the site, no one would see my posts anyway. Still, I dutifully typed out dull sentences of 140 characters or less and links (that still populated as boring-ass URLs instead of actual article previews) for as long as I remained in Mr. Timberlake’s employ. \u003c/p>\n\u003cp>It’s only in the last six years that I’ve actually found Twitter useful at all. Writing about pop culture for KQED meant checking the “Trending” topics every single morning. Now I question whether the section even works anymore. When it comes to using Twitter, Elon Musk’s toolbaggery is a major turnoff, for sure, but — real talk — if Twitter still worked, I would still use it. I really do miss it being useful.\u003c/p>\n\u003cp>Inside Threads, for the first 20 minutes, I felt like Janet in \u003cem>The Good Place\u003c/em> — just staring into bare white nothingness, waiting for someone to summon me from the abyss. When I did finally find the “thread” portion — the place with actual posts — I was immediately reminded that \u003ca href=\"https://www.pilotonline.com/2020/08/05/with-tiktok-mired-in-uncertainty-facebook-pounces-with-instagram-reels/\">social media biter\u003c/a> Mark Zuckerberg is involved in this by the fact that the layout is basically identical to Twitter. (Is that legal? It feels like that shouldn’t be legal…) The second thing that struck me is that the people I primarily follow on Instagram are artists and friends, not the journalists I follow on Twitter. I have no idea how to find my favorite writers and commentators on Threads and I am 98% sure that I don’t have the patience to figure it out.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>So sure, I’m on Threads now. (Shrug emoji.) But like every other platform that isn’t Friendster or MySpace, I will probably only figure out how to use it about three years after the 38,763,893 other people who downloaded it before me. Probably see you there when I do. Because, really. Where else are we going to go?—\u003cem>Rae Alexandra\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"Zuckerberg’s new competitor to Elon Musk’s decaying Twitter has launched. What’s good and what’s unbearable?","status":"publish","parent":0,"modified":1705005305,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":29,"wordCount":1693},"headData":{"title":"Threads: First Impressions of the Latest Social Media App | KQED","description":"Zuckerberg’s new competitor to Elon Musk’s decaying Twitter has launched. What’s good and what’s unbearable?","ogTitle":"Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App","ogDescription":"","ogImgId":"","twTitle":"Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App","twDescription":"","twImgId":"","socialTitle":"Threads: First Impressions of the Latest Social Media App %%page%% %%sep%% KQED","schema":{"@context":"http://schema.org","@type":"Article","headline":"Threads: First Impressions of the Latest ‘Thanks, I Hate It’ Social Media App","datePublished":"2023-07-07T00:07:49.000Z","dateModified":"2024-01-11T20:35:05.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"source":"Commentary","sourceUrl":"https://www.kqed.org/artscommentary","sticky":false,"WpOldSlug":"threads-first-impressions-of-the-latest-thanks-i-hate-it-social-media-app","templateType":"standard","featuredImageType":"standard","excludeFromSiteSearch":"Include","articleAge":"0","path":"/arts/13931259/threads-meta-thanks-i-hate-it","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Threads! It’s mostly terrible, yes? But you’re also on it? And you’ve checked it 17 times since it launched last night? \u003c/p>\n\u003cp>Yes, Mark Zuckerberg’s Twitter-competitor app Threads is here, and already it’s amassed millions of users thanks to its close integration with Instagram. It has also amassed complaints, speculation, and every once in a while, a quality post. \u003c/p>\n\u003cp>Here, on the first full day of Threads’ availability to the public, some of us from the KQED Arts team offer our first impressions. \u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0091.jpg\" alt=\"\" width=\"750\" height=\"325\" class=\"aligncenter size-full wp-image-13931267\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0091.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0091-160x69.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Give us a followers-only, chronological feed, jeez\u003c/h2>\n\u003cp>A followers-only, chronological feed is the only thing anybody wants in a social media app, and this is what Threads denies its users. The only reason to join a new social media platform is to revel in its followers-only, chronological feed, because five years down the line, it’s inevitably ruined by shoving a bunch of stuff in your face that nobody wants. Threads has decided to jump straight to this five-years-later point of \u003ca href=\"https://www.wired.com/story/tiktok-platforms-cory-doctorow/\">enshittification\u003c/a>: my feed is full of Mr. Beast, Complex, Wendy’s, crypto bros, tech reporters and other garbage I did not sign up to see. I’d love to say that this would mean the death knell for Threads, but Meta is essentially too big to fail; in nearly every other instance of stealing from other social media platforms, they’ve gotten away with it. \u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>This morning, head of Instagram Adam Mosseri acknowledged the lack of a followers-only feed, along with the absence of search, hashtags, and DMs, and promised “we’re on it.” But for those who want to run screaming and delete their account now, sorry: if you delete your Threads account, you’re also \u003ca href=\"https://twitter.com/emilyhughes/status/1676775597735923719\">forced to delete your Instagram account with it\u003c/a>. \u003c/p>\n\u003cp>As for the upsides? “At least it isn’t Twitter” isn’t much of a glowing review. But I no longer want to supply free content to Elon Musk on his constantly malfunctioning platform, and I’m not alone. Time will tell if Zuckerberg’s crew can come up with features more compelling for what they are than what they aren’t.\u003cem>—Gabe Meline\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0096.jpg\" alt=\"\" width=\"375\" height=\"650\" class=\"aligncenter size-full wp-image-13931271\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0096.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0096-160x277.jpg 160w\" sizes=\"(max-width: 375px) 100vw, 375px\">\u003c/p>\n\u003ch2>The calm? Yeah, that won’t last\u003c/h2>\n\u003cp>12 p.m. July 6: How is Threads? I wouldn’t know, baby! Having worked in social media and social-adjacent journalism roles for over a decade, I’m \u003ca href=\"https://www.kqed.org/explainers\">finally in a job\u003c/a> that does not require me to be wildly invested and involved in “the latest in social media” on a 24/7 basis. So like any reasonable person who wrests a degree of control back over their life, I am now — for the next few hours, anyway — gleefully flexing that control by not activating my Threads account (and let’s be real, if you have an Instagram account that’s all this really is — a de facto activation of the Threads account every Instagram user basically already now has.)\u003c/p>\n\u003cp>This calm won’t last, of course. Judging from the air of “oh, of course” inevitability with which the launch announcement was met among Twitter users, Threads is probably going to become the next Twitter pretty fast. Not just because of that portability of your account and your follower count from Instagram (although do you want to see what your most visual pals are writing in text format?) but because of the fact we’ve all been waiting for New Twitter and, like Goldilocks with a screen time problem, we’ve not found any of the previous options on offer to be Just Right. We’re all tired, and if there’s finally a new option that looks good enough, we’ll probably accept it, with all its wrinkles and evolving features. So, if enough folks make that compromise (and I think they will, fueled by what’s been done to their beloved Twitter since Musk’s takeover), I’ll do it too — basically, so as not to be left in the cold on both the personal and professional fronts. But for now… just let me have a day without Threads?\u003c/p>\n\u003cp>5 p.m. July 6: I am probably now on Threads.—\u003cem>Carly Severn\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0095.jpg\" alt=\"\" width=\"750\" height=\"348\" class=\"aligncenter size-full wp-image-13931270\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0095.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0095-160x74.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Bring back anonymity!\u003c/h2>\n\u003cp>I was shaped/burned by the flames of Tumblr in the mid-to-late 2010s, so the first thing I noticed about Threads is that you need to link it with your Instagram. This makes it slightly more annoying to have alternate, somewhat-anonymous accounts, since Instagram tends to be more personable or influencer-y than, say, the K-pop stan accounts of Twitter and TikTok.\u003c/p>\n\u003cp>Not to imply that there isn’t a wide fandom scene on Instagram, but I have a hard time seeing those subcultures flourishing in an isolating environment like Threads. (I don’t know if that’s a good or bad thing.) There’s not a ton of opportunities to personalize one’s profile, like adding a header.\u003c/p>\n\u003cp>It’s also very ugly.—\u003cem>Nisa Khan\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0090.jpg\" alt=\"\" width=\"750\" height=\"269\" class=\"aligncenter size-full wp-image-13931266\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0090.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0090-160x57.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>Call it what it is: two billionaires in a tiresome pissing contest\u003c/h2>\n\u003cp>Most of what I’ve seen on Threads so far is (fittingly) very meta and therefore very boring. Threads about Threads. Beyond that, what I dislike most about the Current State of Social Media is knowing who’s calling the shots: a couple of billionaires engaged in a pissing contest over a form of communication and expression that has come to mean very much to very many. These bros are the frickin’ worst.\u003c/p>\n\u003cp>Mark Zuckerberg, a 39-year-old American man worth $101.5 billion and who employs tens of thousands of people, shitposted on Twitter yesterday for the first time in 11 years. \u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1676747594460962817"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Meanwhile Twitter — owned by Elon Musk, a person I try to know as little about as possible (and who happens to be worth an unfathomable $249.4 billion) — is now \u003ca href=\"https://www.semafor.com/article/07/06/2023/twitter-is-threatening-to-sue-meta-over-threads\">threatening to sue Meta\u003c/a> over Threads. (The Twitter lawyer’s letter accuses Meta of hiring former Twitter employees with trade secrets.) It’s like a straight-up schoolyard scene over here, folks.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1677042708756439041"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Concurrently, Twitter itself is being sued by former employees for a host of reasons, including, most recently, allegedly \u003ca href=\"https://www.theverge.com/2023/7/5/23784760/twitter-lawsuit-arbitration-laid-off-employees-jams-musk\">refusing to pay for legal arbitration fees\u003c/a>. Any time a reporter asks Twitter for comment, they get a poop emoji in response. \u003c/p>\n\u003cp>\u003cem>I do not want to know any of this\u003c/em>. Better yet, I don’t want the products that help me learn new things, connect with colleagues, look at art and stay in touch to do such fundamentally bad things that we need to constantly cover both their mistakes and willful wrongdoings. I am even mad at my editor for asking me to think about the Current State of Social Media and write something about it. Insert a “throwing up arms in disgust” emoji here.—\u003cem>Sarah Hotchkiss\u003c/em>\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2023/07/IMG_0093.jpg\" alt=\"\" width=\"750\" height=\"320\" class=\"aligncenter size-full wp-image-13931269\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0093.jpg 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2023/07/IMG_0093-160x68.jpg 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003c/p>\n\u003ch2>I hated everything before and I will probably hate this too\u003c/h2>\n\u003cp>I have, in my entire life, only willingly joined two social media platforms. The first was Friendster (yes, I’m old, shut your mouth, etc.) and the second was MySpace. (Miss you, Tom!) I was dragged kicking and screaming from MySpace when it became apparent that no one else was using it anymore. Fifteen years on, I am still cursing the first person in my Top 8 to defect to Facebook and take everyone else with them. (I HAVEN’T FORGOTTEN, JOE.) \u003c/p>\n\u003cp>Twitter was thrust upon me by my editor when I started working for JustinTimberlake.com in 2009. “It’s essential that you’re on this platform,” she said, entirely unaware that because of my refusal to ever interact with the site, no one would see my posts anyway. Still, I dutifully typed out dull sentences of 140 characters or less and links (that still populated as boring-ass URLs instead of actual article previews) for as long as I remained in Mr. Timberlake’s employ. \u003c/p>\n\u003cp>It’s only in the last six years that I’ve actually found Twitter useful at all. Writing about pop culture for KQED meant checking the “Trending” topics every single morning. Now I question whether the section even works anymore. When it comes to using Twitter, Elon Musk’s toolbaggery is a major turnoff, for sure, but — real talk — if Twitter still worked, I would still use it. I really do miss it being useful.\u003c/p>\n\u003cp>Inside Threads, for the first 20 minutes, I felt like Janet in \u003cem>The Good Place\u003c/em> — just staring into bare white nothingness, waiting for someone to summon me from the abyss. When I did finally find the “thread” portion — the place with actual posts — I was immediately reminded that \u003ca href=\"https://www.pilotonline.com/2020/08/05/with-tiktok-mired-in-uncertainty-facebook-pounces-with-instagram-reels/\">social media biter\u003c/a> Mark Zuckerberg is involved in this by the fact that the layout is basically identical to Twitter. (Is that legal? It feels like that shouldn’t be legal…) The second thing that struck me is that the people I primarily follow on Instagram are artists and friends, not the journalists I follow on Twitter. I have no idea how to find my favorite writers and commentators on Threads and I am 98% sure that I don’t have the patience to figure it out.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>So sure, I’m on Threads now. (Shrug emoji.) But like every other platform that isn’t Friendster or MySpace, I will probably only figure out how to use it about three years after the 38,763,893 other people who downloaded it before me. Probably see you there when I do. Because, really. Where else are we going to go?—\u003cem>Rae Alexandra\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13931259/threads-meta-thanks-i-hate-it","authors":["92"],"categories":["arts_1","arts_2303"],"tags":["arts_16989","arts_11374","arts_2767","arts_1934","arts_2098","arts_2137","arts_1935","arts_1553"],"featImg":"arts_13931265","label":"source_arts_13931259"},"arts_13907310":{"type":"posts","id":"arts_13907310","meta":{"index":"posts_1591205157","site":"arts","id":"13907310","score":null,"sort":[1639616411000]},"guestAuthors":[],"slug":"facebook-account-deletion-ai-content-moderation-failure","title":"Incorrectly Deleted From Facebook? Getting Back On Might Take Connections","publishDate":1639616411,"format":"audio","headTitle":"Incorrectly Deleted From Facebook? Getting Back On Might Take Connections | KQED","labelTerm":{"site":"arts"},"content":"\u003cp>Belligerent nation states, exes bent on revenge porn, hucksters selling fake medical cures: there are a lot of scary threats Meta (a.k.a. Facebook) is trying to counter with a combination of artificial intelligence and human content moderators. But the software is regularly deleting the accounts of innocents, who quickly discover they don’t merit human review unless they’re considered VIPs by the company.\u003c/p>\n\u003cp>Consider the recent case of Los Angeles-based playwright \u003ca href=\"https://www.michellekholosbrooks.com/about\" target=\"_blank\" rel=\"noopener noreferrer\">Michelle Kholos Brooks\u003c/a>. A few years ago, she came across an \u003ca href=\"https://www.bbc.com/culture/article/20190807-the-women-who-tasted-hitlers-food\" target=\"_blank\" rel=\"noopener noreferrer\">article like this one\u003c/a>, about Margot Wölk, one of the young women forced to taste Adolf Hitler’s food before he ate it. In 2013, at the age of 95, Wölk shared her story with the German magazine \u003ca href=\"https://www.spiegel.de/international/germany/hitler-food-taster-margot-woelk-speaks-about-her-memories-a-892097.html\">\u003ci>Der Spiegel\u003c/i>\u003c/a>. “I wrote a play around that,” Brooks explains, “putting young women in a room, waiting to die at every meal.”\u003c/p>\n\u003cp>A former journalist and a Jewish American, Brooks wants to bring history to life for modern audiences, she said, “Because for young people today, World War II is in the rearview.”\u003c/p>\n\u003cp>\u003ca href=\"https://www.facebook.com/Hitlers-Tasters-the-Play-2073792512663544\" target=\"_blank\" rel=\"noopener noreferrer\">\u003cem>Hitler’s Tasters\u003c/em>\u003c/a> has been performed in New York; Chicago; Venice, California; the Fringe Festival in Edinburgh—and coming in April 2022, New York again. Critics and audiences alike have responded positively to this dark comedy about an awful topic.\u003c/p>\n\u003cfigure id=\"attachment_13907354\" class=\"wp-caption aligncenter\" style=\"max-width: 1708px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13907354\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy.jpg\" alt=\"Poster shows a photo of Adolf Hitler smiling at four girls\" width=\"1708\" height=\"650\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy.jpg 1708w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-800x304.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-1020x388.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-160x61.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-768x292.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-1536x585.jpg 1536w\" sizes=\"(max-width: 1708px) 100vw, 1708px\">\u003cfigcaption class=\"wp-caption-text\">The cover visual for the Facebook page of ‘Hitler’s Tasters,’ now that it’s back up. \u003ccite>(Courtesy of Cody Butcher)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Sometimes people are not sure if it’s OK to laugh,” Brooks acknowledges. “You know, a lot of it gets very dark. But we encourage it.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>But the Facebook pages belonging to the play, to Brooks, all the actors and even the director, were deleted suddenly in mid-November, with a generic alert that informed them they had violated the company’s “community guidelines.” Years of photos, videos, followers and contacts: gone.\u003c/p>\n\u003ch2>Mistakes happen\u003c/h2>\n\u003cp>“In the past, we have had the opportunity to say, ‘Hey, you got this wrong.’ And this time, it was just a sweeping removal out of nowhere,” says Hallie Griffin, an actor in \u003cem>Hitler’s Tasters\u003c/em>, and also its social media maven. Yes, the play’s page has been deleted before, from Instagram, and restored before, once a human was put on the case.\u003c/p>\n\u003cp>Many—dare I say, most—humans living today in North America and beyond will have heard of Adolf Hitler, even if they know nothing about the man other than that he started a world war in the mid 20th century, and launched a genocide commonly known as the Holocaust.\u003c/p>\n\u003cp>His name does come up in a lot of \u003ca href=\"https://www.kqed.org/news/11702239/why-its-so-hard-to-scrub-hate-speech-off-social-media\" target=\"_blank\" rel=\"noopener noreferrer\">hate speech\u003c/a> on \u003ca href=\"https://www.kqed.org/news/11702575/silicon-valley-is-trying-to-prevent-hate-speech-is-it-working\" target=\"_blank\" rel=\"noopener noreferrer\">social media\u003c/a>, which explains why a software filter might be \u003ca href=\"https://www.kqed.org/news/11765841/how-hate-filled-online-groups-encourage-budding-psychopaths-to-kill-others\" target=\"_blank\" rel=\"noopener noreferrer\">triggered\u003c/a> by the word “Hitler.” But most humans reviewing the use of the word in context can quickly differentiate between an attempt to stoke anti-Semitism and an artistic treatment of a historical figure and his impact on the world around him.\u003c/p>\n\u003cfigure id=\"attachment_13907353\" class=\"wp-caption aligncenter\" style=\"max-width: 2560px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13907353\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/12/4-Tasters--scaled.jpg\" alt=\"Four young women in character wearing in smock-like dresses.\" width=\"2560\" height=\"943\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--scaled.jpg 2560w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--800x295.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1020x376.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--160x59.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--768x283.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1536x566.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--2048x755.jpg 2048w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1920x707.jpg 1920w\" sizes=\"(max-width: 2560px) 100vw, 2560px\">\u003cfigcaption class=\"wp-caption-text\">A promotional image for the play ‘Hitler’s Tasters,’ reflecting the play’s dark humor. \u003ccite>(Courtesy of Zach Griffin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>You can request a review of an account deletion, what Facebook calls a “cross check,” and Brooks did, getting an email back in 30 minutes.\u003c/p>\n\u003cp>Brooks read out some of that response for me: “Your account has been permanently disabled for not following the community standards. Unfortunately, we won’t be able to activate it for any reason. This will be our last message regarding your account.”\u003c/p>\n\u003cp>[pullquote align=\"right\" size=\"large\" citation='Facebook whistleblower Frances Haugen']‘Facebook wants you believe that the problems are unsolvable. They want you to believe in false choices.’[/pullquote]\u003cem>Hitler’s Tasters\u003c/em> and the cast members don’t have huge followings on the various social media accounts, though their presence on the platforms has helped push ticket sales for performances. Initially, Brooks and her fellow thespians were shocked and upset. Their \u003ca href=\"https://www.instagram.com/ht_theplay/\" target=\"_blank\" rel=\"noopener noreferrer\">Instagram\u003c/a> accounts were not deleted (this time). They thought it might even be a plus to focus promotion around the fact they were banned.\u003c/p>\n\u003ch2>A remarkably common problem\u003c/h2>\n\u003cp>Others caught in a similar pickle have been less sanguine. According to \u003ca href=\"https://www.buzzfeednews.com/article/laurenstrapagiel/creators-instagram-dealers-restore-accounts\" target=\"_blank\" rel=\"noopener noreferrer\">BuzzFeed News\u003c/a>, Meta’s algorithmic intractability has spurred the creation of a black market, populated by scam artists and possibly Meta employees promising to restore deleted accounts. Scam artists take people’s money and run. But BuzzFeed says some accounts have been restored and even verified, which sounds like something only an employee could help facilitate.\u003c/p>\n\u003cp>[aside postID='news_11702575,news_11702239,news_11765841' label='The Struggle to Moderate Content']Brooks heard that some people who knew people inside the company could get customer support involved. “I vaguely know a woman who works at Microsoft,” Brooks recalls. “A member of her team moved over to Facebook recently. She explained our situation to him and he said he might be able to help. The reason I know this woman is that she once, \u003cem>once\u003c/em>, babysat my kid, about 14 years ago, when were were visiting Seattle.”\u003c/p>\n\u003cp>Multiple news reports detail how arbitrary decisions made by artificial intelligence software rarely get a human review. Even though Facebook, by its own account, has 40,000 people working on safety and security. Even though there’s manifest evidence the algorithms still allow, and even amplify, toxic content.\u003c/p>\n\u003cp>Back in September, Meta announced on its \u003ca href=\"https://about.fb.com/news/2021/09/requesting-oversight-board-guidance-cross-check-system/\" target=\"_blank\" rel=\"noopener noreferrer\">blog\u003c/a> that Facebook would ask its Oversight Board for guidance. In October, that board, which oversees Facebook’s parent company, Meta, \u003ca href=\"https://www.oversightboard.com/news/215139350722703-oversight-board-demands-more-transparency-from-facebook/\" target=\"_blank\" rel=\"noopener noreferrer\">found deficiencies\u003c/a> in the appeals process. In November, Meta \u003ca href=\"https://transparency.fb.com/enforcement/detecting-violations/reviewing-high-visibility-content-accurately/\" target=\"_blank\" rel=\"noopener noreferrer\">acknowledged\u003c/a> the report, defended the program, and promised to continue exploring ways to further ensure “that we minimize our enforcement mistakes that have the greatest impact.”\u003c/p>\n\u003cp>This month, the board announced it’s \u003ca href=\"https://oversightboard.com/news/485696136104748-oversight-board-opens-public-comments-for-policy-advisory-opinion-on-cross-check/\" target=\"_blank\" rel=\"noopener noreferrer\">taking public comment\u003c/a> before Jan. 14, 2022. But the board’s policies are not binding on the company.\u003c/p>\n\u003cp>“Facebook wants you believe that the problems are unsolvable. They want you to believe in false choices,” said Facebook whistleblower Frances Haugen, \u003ca href=\"https://youtu.be/GOnpVQnv5Cw\" target=\"_blank\" rel=\"noopener noreferrer\">testifying\u003c/a> before the Senate Commerce Committee in October.\u003c/p>\n\u003cp>Haugen argued something akin to an old saw in Silicon Valley about persistent software problems: If it’s not a bug, it’s probably a feature. “They want you to believe that you must choose between divisive and extreme content, or losing one of the most important values our country was founded upon, free speech.”\u003c/p>\n\u003ch2>There’s a happy ending to this story\u003c/h2>\n\u003cp>Two days after I inquired with Facebook, the pages associated with \u003ci>Hitler’s Tasters\u003c/i> went back up. There was no notice to those affected, but everything was restored. A Meta company spokesperson admitted to me the accounts were “incorrectly removed,” apologized for the mistaken deletions, and promised steps have been taken to prevent a reoccurrence. Naturally, I’m pleased, but is this any way to run a social media platform?\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>In related news, Meta recently moved its artificial intelligence group to the Reality Labs unit developing augmented and virtual reality products, according to \u003ca href=\"https://www.theinformation.com/articles/metas-ai-team-which-tackles-harmful-facebook-posts-moves-to-ar-vr-unit\" target=\"_blank\" rel=\"noopener noreferrer\">The Information\u003c/a>. The tech industry news site noted the shift means Meta’s AI team, “central to Meta’s efforts to detect harmful content on Facebook,” will now shift its primary focus to developing the metaverse—the virtual immersive world that is CEO Mark Zuckerberg’s latest obsession.\u003c/p>\n\n","blocks":[],"excerpt":"As one theatrical production found, the current options seem to be: a) find a reporter to cover your case; or b) know someone inside the company.","status":"publish","parent":0,"modified":1705007379,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":23,"wordCount":1291},"headData":{"title":"Little Recourse When Facebook’s AI Incorrectly Deletes Accounts| KQED","description":"As one theatrical production found, the current options seem to be: a) find a reporter to cover your case; or b) know someone inside the company.","ogTitle":"Incorrectly Deleted From Facebook? Getting Back On Might Take Connections","ogDescription":"","ogImgId":"","twTitle":"Incorrectly Deleted From Facebook? Getting Back On Might Take Connections","twDescription":"","twImgId":"","socialTitle":"Little Recourse When Facebook’s AI Incorrectly Deletes Accounts%%sep%% KQED","schema":{"@context":"http://schema.org","@type":"Article","headline":"Incorrectly Deleted From Facebook? Getting Back On Might Take Connections","datePublished":"2021-12-16T01:00:11.000Z","dateModified":"2024-01-11T21:09:39.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"audioUrl":"https://traffic.omny.fm/d/clips/0af137ef-751e-4b19-a055-aaef00d2d578/ffca7e9f-6831-4[…]f-aaef00f5a073/ff4fb780-e176-4107-9fd7-ae07010ba419/audio.mp3","sticky":false,"templateType":"standard","featuredImageType":"standard","excludeFromSiteSearch":"Include","path":"/arts/13907310/facebook-account-deletion-ai-content-moderation-failure","audioDuration":245000,"audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Belligerent nation states, exes bent on revenge porn, hucksters selling fake medical cures: there are a lot of scary threats Meta (a.k.a. Facebook) is trying to counter with a combination of artificial intelligence and human content moderators. But the software is regularly deleting the accounts of innocents, who quickly discover they don’t merit human review unless they’re considered VIPs by the company.\u003c/p>\n\u003cp>Consider the recent case of Los Angeles-based playwright \u003ca href=\"https://www.michellekholosbrooks.com/about\" target=\"_blank\" rel=\"noopener noreferrer\">Michelle Kholos Brooks\u003c/a>. A few years ago, she came across an \u003ca href=\"https://www.bbc.com/culture/article/20190807-the-women-who-tasted-hitlers-food\" target=\"_blank\" rel=\"noopener noreferrer\">article like this one\u003c/a>, about Margot Wölk, one of the young women forced to taste Adolf Hitler’s food before he ate it. In 2013, at the age of 95, Wölk shared her story with the German magazine \u003ca href=\"https://www.spiegel.de/international/germany/hitler-food-taster-margot-woelk-speaks-about-her-memories-a-892097.html\">\u003ci>Der Spiegel\u003c/i>\u003c/a>. “I wrote a play around that,” Brooks explains, “putting young women in a room, waiting to die at every meal.”\u003c/p>\n\u003cp>A former journalist and a Jewish American, Brooks wants to bring history to life for modern audiences, she said, “Because for young people today, World War II is in the rearview.”\u003c/p>\n\u003cp>\u003ca href=\"https://www.facebook.com/Hitlers-Tasters-the-Play-2073792512663544\" target=\"_blank\" rel=\"noopener noreferrer\">\u003cem>Hitler’s Tasters\u003c/em>\u003c/a> has been performed in New York; Chicago; Venice, California; the Fringe Festival in Edinburgh—and coming in April 2022, New York again. Critics and audiences alike have responded positively to this dark comedy about an awful topic.\u003c/p>\n\u003cfigure id=\"attachment_13907354\" class=\"wp-caption aligncenter\" style=\"max-width: 1708px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13907354\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy.jpg\" alt=\"Poster shows a photo of Adolf Hitler smiling at four girls\" width=\"1708\" height=\"650\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy.jpg 1708w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-800x304.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-1020x388.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-160x61.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-768x292.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/NEW-Facebook-Stars-and-Laurels-2020-copy-1536x585.jpg 1536w\" sizes=\"(max-width: 1708px) 100vw, 1708px\">\u003cfigcaption class=\"wp-caption-text\">The cover visual for the Facebook page of ‘Hitler’s Tasters,’ now that it’s back up. \u003ccite>(Courtesy of Cody Butcher)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“Sometimes people are not sure if it’s OK to laugh,” Brooks acknowledges. “You know, a lot of it gets very dark. But we encourage it.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>But the Facebook pages belonging to the play, to Brooks, all the actors and even the director, were deleted suddenly in mid-November, with a generic alert that informed them they had violated the company’s “community guidelines.” Years of photos, videos, followers and contacts: gone.\u003c/p>\n\u003ch2>Mistakes happen\u003c/h2>\n\u003cp>“In the past, we have had the opportunity to say, ‘Hey, you got this wrong.’ And this time, it was just a sweeping removal out of nowhere,” says Hallie Griffin, an actor in \u003cem>Hitler’s Tasters\u003c/em>, and also its social media maven. Yes, the play’s page has been deleted before, from Instagram, and restored before, once a human was put on the case.\u003c/p>\n\u003cp>Many—dare I say, most—humans living today in North America and beyond will have heard of Adolf Hitler, even if they know nothing about the man other than that he started a world war in the mid 20th century, and launched a genocide commonly known as the Holocaust.\u003c/p>\n\u003cp>His name does come up in a lot of \u003ca href=\"https://www.kqed.org/news/11702239/why-its-so-hard-to-scrub-hate-speech-off-social-media\" target=\"_blank\" rel=\"noopener noreferrer\">hate speech\u003c/a> on \u003ca href=\"https://www.kqed.org/news/11702575/silicon-valley-is-trying-to-prevent-hate-speech-is-it-working\" target=\"_blank\" rel=\"noopener noreferrer\">social media\u003c/a>, which explains why a software filter might be \u003ca href=\"https://www.kqed.org/news/11765841/how-hate-filled-online-groups-encourage-budding-psychopaths-to-kill-others\" target=\"_blank\" rel=\"noopener noreferrer\">triggered\u003c/a> by the word “Hitler.” But most humans reviewing the use of the word in context can quickly differentiate between an attempt to stoke anti-Semitism and an artistic treatment of a historical figure and his impact on the world around him.\u003c/p>\n\u003cfigure id=\"attachment_13907353\" class=\"wp-caption aligncenter\" style=\"max-width: 2560px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13907353\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/12/4-Tasters--scaled.jpg\" alt=\"Four young women in character wearing in smock-like dresses.\" width=\"2560\" height=\"943\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--scaled.jpg 2560w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--800x295.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1020x376.jpg 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--160x59.jpg 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--768x283.jpg 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1536x566.jpg 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--2048x755.jpg 2048w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/12/4-Tasters--1920x707.jpg 1920w\" sizes=\"(max-width: 2560px) 100vw, 2560px\">\u003cfigcaption class=\"wp-caption-text\">A promotional image for the play ‘Hitler’s Tasters,’ reflecting the play’s dark humor. \u003ccite>(Courtesy of Zach Griffin)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>You can request a review of an account deletion, what Facebook calls a “cross check,” and Brooks did, getting an email back in 30 minutes.\u003c/p>\n\u003cp>Brooks read out some of that response for me: “Your account has been permanently disabled for not following the community standards. Unfortunately, we won’t be able to activate it for any reason. This will be our last message regarding your account.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"‘Facebook wants you believe that the problems are unsolvable. They want you to believe in false choices.’","name":"pullquote","attributes":{"named":{"align":"right","size":"large","citation":"Facebook whistleblower Frances Haugen","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cem>Hitler’s Tasters\u003c/em> and the cast members don’t have huge followings on the various social media accounts, though their presence on the platforms has helped push ticket sales for performances. Initially, Brooks and her fellow thespians were shocked and upset. Their \u003ca href=\"https://www.instagram.com/ht_theplay/\" target=\"_blank\" rel=\"noopener noreferrer\">Instagram\u003c/a> accounts were not deleted (this time). They thought it might even be a plus to focus promotion around the fact they were banned.\u003c/p>\n\u003ch2>A remarkably common problem\u003c/h2>\n\u003cp>Others caught in a similar pickle have been less sanguine. According to \u003ca href=\"https://www.buzzfeednews.com/article/laurenstrapagiel/creators-instagram-dealers-restore-accounts\" target=\"_blank\" rel=\"noopener noreferrer\">BuzzFeed News\u003c/a>, Meta’s algorithmic intractability has spurred the creation of a black market, populated by scam artists and possibly Meta employees promising to restore deleted accounts. Scam artists take people’s money and run. But BuzzFeed says some accounts have been restored and even verified, which sounds like something only an employee could help facilitate.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"news_11702575,news_11702239,news_11765841","label":"The Struggle to Moderate Content "},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>Brooks heard that some people who knew people inside the company could get customer support involved. “I vaguely know a woman who works at Microsoft,” Brooks recalls. “A member of her team moved over to Facebook recently. She explained our situation to him and he said he might be able to help. The reason I know this woman is that she once, \u003cem>once\u003c/em>, babysat my kid, about 14 years ago, when were were visiting Seattle.”\u003c/p>\n\u003cp>Multiple news reports detail how arbitrary decisions made by artificial intelligence software rarely get a human review. Even though Facebook, by its own account, has 40,000 people working on safety and security. Even though there’s manifest evidence the algorithms still allow, and even amplify, toxic content.\u003c/p>\n\u003cp>Back in September, Meta announced on its \u003ca href=\"https://about.fb.com/news/2021/09/requesting-oversight-board-guidance-cross-check-system/\" target=\"_blank\" rel=\"noopener noreferrer\">blog\u003c/a> that Facebook would ask its Oversight Board for guidance. In October, that board, which oversees Facebook’s parent company, Meta, \u003ca href=\"https://www.oversightboard.com/news/215139350722703-oversight-board-demands-more-transparency-from-facebook/\" target=\"_blank\" rel=\"noopener noreferrer\">found deficiencies\u003c/a> in the appeals process. In November, Meta \u003ca href=\"https://transparency.fb.com/enforcement/detecting-violations/reviewing-high-visibility-content-accurately/\" target=\"_blank\" rel=\"noopener noreferrer\">acknowledged\u003c/a> the report, defended the program, and promised to continue exploring ways to further ensure “that we minimize our enforcement mistakes that have the greatest impact.”\u003c/p>\n\u003cp>This month, the board announced it’s \u003ca href=\"https://oversightboard.com/news/485696136104748-oversight-board-opens-public-comments-for-policy-advisory-opinion-on-cross-check/\" target=\"_blank\" rel=\"noopener noreferrer\">taking public comment\u003c/a> before Jan. 14, 2022. But the board’s policies are not binding on the company.\u003c/p>\n\u003cp>“Facebook wants you believe that the problems are unsolvable. They want you to believe in false choices,” said Facebook whistleblower Frances Haugen, \u003ca href=\"https://youtu.be/GOnpVQnv5Cw\" target=\"_blank\" rel=\"noopener noreferrer\">testifying\u003c/a> before the Senate Commerce Committee in October.\u003c/p>\n\u003cp>Haugen argued something akin to an old saw in Silicon Valley about persistent software problems: If it’s not a bug, it’s probably a feature. “They want you to believe that you must choose between divisive and extreme content, or losing one of the most important values our country was founded upon, free speech.”\u003c/p>\n\u003ch2>There’s a happy ending to this story\u003c/h2>\n\u003cp>Two days after I inquired with Facebook, the pages associated with \u003ci>Hitler’s Tasters\u003c/i> went back up. There was no notice to those affected, but everything was restored. A Meta company spokesperson admitted to me the accounts were “incorrectly removed,” apologized for the mistaken deletions, and promised steps have been taken to prevent a reoccurrence. Naturally, I’m pleased, but is this any way to run a social media platform?\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>In related news, Meta recently moved its artificial intelligence group to the Reality Labs unit developing augmented and virtual reality products, according to \u003ca href=\"https://www.theinformation.com/articles/metas-ai-team-which-tackles-harmful-facebook-posts-moves-to-ar-vr-unit\" target=\"_blank\" rel=\"noopener noreferrer\">The Information\u003c/a>. The tech industry news site noted the shift means Meta’s AI team, “central to Meta’s efforts to detect harmful content on Facebook,” will now shift its primary focus to developing the metaverse—the virtual immersive world that is CEO Mark Zuckerberg’s latest obsession.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13907310/facebook-account-deletion-ai-content-moderation-failure","authors":["251"],"categories":["arts_1","arts_235"],"tags":["arts_3634","arts_1934","arts_10278","arts_16319","arts_4642","arts_3001","arts_1072"],"featImg":"arts_13907337","label":"arts"},"arts_13904163":{"type":"posts","id":"arts_13904163","meta":{"index":"posts_1591205157","site":"arts","id":"13904163","score":null,"sort":[1633376376000]},"guestAuthors":[],"slug":"facebook-whatsapp-and-instagram-go-down-in-major-worldwide-outage","title":"Facebook, WhatsApp and Instagram Go Down in Major, Worldwide Outage","publishDate":1633376376,"format":"standard","headTitle":"Facebook, WhatsApp and Instagram Go Down in Major, Worldwide Outage | KQED","labelTerm":{"term":137,"site":"arts"},"content":"\u003cp>Facebook and its Instagram and WhatsApp platforms were down across wide swathes of the world Monday. Facebook’s internal systems used by employees also went down.\u003c/p>\n\u003cp>The company said it was aware that “some people are having trouble accessing (the) Facebook app” and it was working on restoring access. Regarding the internal failures, Adam Mosseri, the head of Instagram, tweeted that it feels like a “snow day.”\u003c/p>\n\u003cp>The company did not say what might be causing the outage, which began around 11:45 ET. It is normal for websites and apps to suffer outages, though one on a global scale is rare. Users reported being unable to access Facebook in California, New York and Europe.\u003c/p>\n\u003cp>Doug Madory, director of internet analysis for Kentik Inc., said it appears that the routes Facebook advertises online that tell the entire internet how to reach its properties are not available.\u003c/p>\n\u003cp>Madory said it looks like the DNS routes that Facebook makes available to the networking world have been withdrawn. The Domain Name System is an integral element of how traffic on the internet is routed. DNS translates an address like “facebook.com” to an IP address like 123.45.67.890. If Facebook’s DNS records have disappeared, no one could find it.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>Facebook is going through a separate major crisis after whistleblower Frances Haugen, a former Facebook product manager, provided \u003cem>The Wall Street Journal\u003c/em> with internal documents that exposed the company’s awareness of harms caused by of its products and decisions. Haugen \u003ca href=\"https://apnews.com/article/facebook-whistleblower-frances-haugen-4a3640440769d9a241c47670facac213\" target=\"_blank\" rel=\"noopener noreferrer\">went public\u003c/a> on “60 Minutes” on Sunday.\u003c/p>\n\u003cp>https://www.youtube.com/watch?v=fGZbF_Zf3MM\u003c/p>\n\u003cp>Haugen also anonymously filed complaints with federal law enforcement alleging that Facebook’s own research shows how it magnifies hate and misinformation, leads to increased polarization and that Instagram, specifically, can harm teenage girls’ mental health.\u003c/p>\n\u003cp>\u003cem>WSJ\u003c/em>‘s stories, called “The Facebook Files,” painted a picture of a company focused on growth and its own interests over the public good. Facebook has tried to play down the research. Nick Clegg, the company’s vice president of policy and public affairs, wrote to Facebook employees in a memo Friday that “social media has had a big impact on society in recent years, and Facebook is often a place where much of this debate plays out.”\u003c/p>\n\u003cp>Twitter, meanwhile, chimed in from the company’s main Twitter account, posting “hello literally everyone” as jokes and memes about the Facebook outage flooded the platform.\u003c/p>\n\u003cp>https://twitter.com/Twitter/status/1445078208190291973\u003c/p>\n\u003cp>https://twitter.com/jckarter/status/1445089949024325634\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cstrong>\u003cem>NPR editor’s note\u003c/em>\u003c/strong>\u003cem>: This story was reported by The Associated Press and posted online by NPR. Facebook is among NPR’s financial supporters.\u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2021 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Facebook%2C+WhatsApp+and+Instagram+go+down+in+major%2C+worldwide+outage&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"The company said it was \"aware that some people are having trouble accessing Facebook\" and it was working on restoring access.","status":"publish","parent":0,"modified":1705007656,"stats":{"hasAudio":false,"hasVideo":true,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":12,"wordCount":474},"headData":{"title":"Facebook, WhatsApp and Instagram Go Down in Major, Worldwide Outage | KQED","description":"The company said it was "aware that some people are having trouble accessing Facebook" and it was working on restoring access.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Facebook, WhatsApp and Instagram Go Down in Major, Worldwide Outage","datePublished":"2021-10-04T19:39:36.000Z","dateModified":"2024-01-11T21:14:16.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"nprImageCredit":"Richard Drew","nprByline":"The Associated Press","nprImageAgency":"AP","nprStoryId":"1043098635","nprApiLink":"http://api.npr.org/query?id=1043098635&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"https://www.npr.org/2021/10/04/1043098635/facebook-whatsapp-instagram-outage?ft=nprml&f=1043098635","nprRetrievedStory":"1","nprPubDate":"Mon, 04 Oct 2021 14:22:00 -0400","nprStoryDate":"Mon, 04 Oct 2021 14:22:53 -0400","nprLastModifiedDate":"Mon, 04 Oct 2021 14:22:53 -0400","templateType":"standard","featuredImageType":"standard","path":"/arts/13904163/facebook-whatsapp-and-instagram-go-down-in-major-worldwide-outage","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Facebook and its Instagram and WhatsApp platforms were down across wide swathes of the world Monday. Facebook’s internal systems used by employees also went down.\u003c/p>\n\u003cp>The company said it was aware that “some people are having trouble accessing (the) Facebook app” and it was working on restoring access. Regarding the internal failures, Adam Mosseri, the head of Instagram, tweeted that it feels like a “snow day.”\u003c/p>\n\u003cp>The company did not say what might be causing the outage, which began around 11:45 ET. It is normal for websites and apps to suffer outages, though one on a global scale is rare. Users reported being unable to access Facebook in California, New York and Europe.\u003c/p>\n\u003cp>Doug Madory, director of internet analysis for Kentik Inc., said it appears that the routes Facebook advertises online that tell the entire internet how to reach its properties are not available.\u003c/p>\n\u003cp>Madory said it looks like the DNS routes that Facebook makes available to the networking world have been withdrawn. The Domain Name System is an integral element of how traffic on the internet is routed. DNS translates an address like “facebook.com” to an IP address like 123.45.67.890. If Facebook’s DNS records have disappeared, no one could find it.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Facebook is going through a separate major crisis after whistleblower Frances Haugen, a former Facebook product manager, provided \u003cem>The Wall Street Journal\u003c/em> with internal documents that exposed the company’s awareness of harms caused by of its products and decisions. Haugen \u003ca href=\"https://apnews.com/article/facebook-whistleblower-frances-haugen-4a3640440769d9a241c47670facac213\" target=\"_blank\" rel=\"noopener noreferrer\">went public\u003c/a> on “60 Minutes” on Sunday.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/fGZbF_Zf3MM'\n title='//www.youtube.com/embed/fGZbF_Zf3MM'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003cp>Haugen also anonymously filed complaints with federal law enforcement alleging that Facebook’s own research shows how it magnifies hate and misinformation, leads to increased polarization and that Instagram, specifically, can harm teenage girls’ mental health.\u003c/p>\n\u003cp>\u003cem>WSJ\u003c/em>‘s stories, called “The Facebook Files,” painted a picture of a company focused on growth and its own interests over the public good. Facebook has tried to play down the research. Nick Clegg, the company’s vice president of policy and public affairs, wrote to Facebook employees in a memo Friday that “social media has had a big impact on society in recent years, and Facebook is often a place where much of this debate plays out.”\u003c/p>\n\u003cp>Twitter, meanwhile, chimed in from the company’s main Twitter account, posting “hello literally everyone” as jokes and memes about the Facebook outage flooded the platform.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1445078208190291973"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1445089949024325634"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>\u003c/p>\n\u003cp>\u003cstrong>\u003cem>NPR editor’s note\u003c/em>\u003c/strong>\u003cem>: This story was reported by The Associated Press and posted online by NPR. Facebook is among NPR’s financial supporters.\u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2021 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Facebook%2C+WhatsApp+and+Instagram+go+down+in+major%2C+worldwide+outage&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13904163/facebook-whatsapp-and-instagram-go-down-in-major-worldwide-outage","authors":["byline_arts_13904163"],"categories":["arts_1","arts_75"],"tags":["arts_1934","arts_2098","arts_2391","arts_1553"],"affiliates":["arts_137"],"featImg":"arts_13904164","label":"arts_137"},"arts_13903591":{"type":"posts","id":"arts_13903591","meta":{"index":"posts_1591205157","site":"arts","id":"13903591","score":null,"sort":[1633366817000]},"guestAuthors":[],"slug":"hbo-15-minutes-of-shame-monica-lewinsky","title":"HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming","publishDate":1633366817,"format":"standard","headTitle":"HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming | KQED","labelTerm":{"site":"arts"},"content":"\u003cp>In 2021, how you perceive online shaming campaigns often has a great deal to do with your political leanings. In the broadest of terms, if you fall on the right, it’s called “cancel culture”—a merciless, life-ruining takedown of fallible human beings. On the left, it’s called “consequence culture”—wrongdoers being held accountable for their own awful behavior. Now, a new documentary called \u003ci>\u003ca href=\"https://www.hbomax.com/coming-soon/15-minutes-of-shame\" target=\"_blank\" rel=\"noopener noreferrer\">15 Minutes of Shame\u003c/a>\u003c/i>—executive produced by Monica Lewinsky and directed by Max Joseph—is here to fill out the space in between. And it is a thoroughly enlightening, if anxiety-inducing, watch.\u003c/p>\n\u003cp>Lewinsky’s involvement here is key. In the film’s introduction, she refers to herself as “Patient Zero of having a reputation completely destroyed, worldwide, because of the internet.” And while that is an accurate assessment, \u003cem>15 Minutes\u003c/em> is not here to tell you the unfettered power of the internet is an exclusively bad thing. If anything, its end goal is to insert into these narratives the thing that is so often missing on the internet: humanity in all of its shades of gray.\u003c/p>\n\u003cp>https://www.youtube.com/watch?v=dhJrnNdH-aw\u003c/p>\n\u003cp>Like Jon Ronson’s excellent 2015 book, \u003cem>So You’ve Been Publicly Shamed\u003c/em>, \u003cem>15 Minutes\u003c/em> focuses not on humiliated celebrities, but rather a handful of everyday people whose lives have been decimated by their online characterizations. There’s Matt Colvin, \u003ca href=\"https://www.nytimes.com/2020/03/14/technology/coronavirus-purell-wipes-amazon-sellers.html\" target=\"_blank\" rel=\"noopener noreferrer\">the guy who bought up 17,700 bottles of hand sanitizer\u003c/a> at the start of the pandemic. There’s Emmanuel Cafferty, a Latino employee of San Diego Gas and Electric who lost his job after a member of the public accused him of making a white power hand gesture. And there’s Laura Krolczyk, who, in a fit of frustration with COVID deniers, wrote on her Facebook page: “Trump supporters need to pledge to give up their ventilators for someone else.”\u003c/p>\n\u003cp>[aside postid='arts_10583072']The documentary allows each of these figures some space to explain themselves, but the point is not to vindicate them. The point is to take a deep dive into the cultural, social and psychological drivers behind internet take-downs. And it’s in those moments that \u003cem>15 Minutes\u003c/em> does its most interesting work.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>The documentary sketches a fascinating “brief history of public shaming,” starting at the dawn of civilization, running through the introduction of the pillory, and then onto the invention of the printing press, tabloids and, finally, the internet. At one point, while talking about punishments doled out in town squares hundreds of years ago, cultural historian Dr. Tiffany Watt says: “This is a person who is suffering because they’ve done something wrong. And we have to punish them in order to tell everyone else not to do the same thing.” It’s clear in that moment the impulse to publicly shame is a thread that’s been present throughout history, and that the internet is merely the latest conduit for it.\u003c/p>\n\u003cp>\u003cem>15 Minutes\u003c/em> excels when discussing the psychology behind internet pile-ons. UCSF neuroscientist and psychologist Dr. Helen Weng explains why it’s harder for our brains to recognize people as full humans when we can’t see their faces and body language. Watt shares that one study of soccer fans found they felt a greater sense of joy from seeing rival teams fail than they did from seeing their own teams score. “What that showed,” Watt notes, “is that we enjoy seeing other people fail more than we enjoy winning, ourselves.” Being divided into “rival tribes,” Watt adds, “is a very, very dangerous place for a society to be in.”\u003c/p>\n\u003cp>The cultural commentators throughout \u003cem>15 Minutes of Shame\u003c/em> offer up similarly thought-provoking analysis. Segments with Roxane Gay perfectly encapsulate the struggles of online discourse. On one hand, Gay talks about why fighting back online is so necessary. “People are so unseen and so unheard and they’ve been so unrepresented for so long, and you see something done about it. That is incredibly satisfying.” On the other hand, Gay acknowledges the deep flaws of the format. “People love to say … ‘I am not responsible for dehumanizing the person, the internet is,’” she notes. “The internet is there, but we are responsible for the ways in which we dehumanize each other.”\u003c/p>\n\u003cp>\u003cem>15 Minutes\u003c/em> also takes the time to find out how tech companies are complicit in that dehumanization. Technology ethicist Tristan Harris, a former Google employee, explains: “One NYU study found that for every word of moral outrage—negative human emotions—that you added to a tweet … it increased the retweet rate by 13%.” Harris goes on to compare Twitter’s algorithm to rubbernecking. Its desire, he notes, is to feed us “car crash after car crash after car crash.”\u003c/p>\n\u003cp>[aside postid='arts_13902631']Ultimately, \u003cem>15 Minutes of Shame\u003c/em> is a documentary that, on the surface, seeks to capture our global online culture at this time and in this place. But it also contextualizes how we got here and, importantly, makes some suggestions as to how we can get better at handling it.\u003c/p>\n\u003cp>Lewinsky bookends the film with a single proposition: “Imagine waking up one morning with the whole world suddenly knowing your name.” But, at the end of the 86-minute film, she adds a question. “What kind of world do you want that to be?” You’ll have a much better idea after watching \u003cem>15 Minutes of Shame\u003c/em>.\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-12127869\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2016/09/Q.Logo_.Break_.jpg\" alt=\"\" width=\"800\" height=\"78\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_-400x39.jpg 400w, https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_-768x75.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>‘15 Minutes of Shame’ begins streaming Thursday, Oct. 7, on HBO Max. \u003ca href=\"https://www.hbomax.com/coming-soon/15-minutes-of-shame\" target=\"_blank\" rel=\"noopener noreferrer\">Details here\u003c/a>.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"The Monica Lewinsky-produced documentary examines the root causes of our fractious modern obsession.","status":"publish","parent":0,"modified":1705007663,"stats":{"hasAudio":false,"hasVideo":true,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":14,"wordCount":978},"headData":{"title":"Review: HBO’s ‘15 Minutes of Shame’ | KQED","description":"The Monica Lewinsky-produced documentary examines the root causes of our fractious modern obsession.","ogTitle":"HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming","ogDescription":"","ogImgId":"","twTitle":"HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming","twDescription":"","twImgId":"","socialTitle":"Review: HBO’s ‘15 Minutes of Shame’ %%page%% %%sep%% KQED","schema":{"@context":"http://schema.org","@type":"Article","headline":"HBO’s ‘15 Minutes of Shame’ Smartly Unpacks Our Culture of Public Shaming","datePublished":"2021-10-04T17:00:17.000Z","dateModified":"2024-01-11T21:14:23.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"templateType":"standard","featuredImageType":"standard","path":"/arts/13903591/hbo-15-minutes-of-shame-monica-lewinsky","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>In 2021, how you perceive online shaming campaigns often has a great deal to do with your political leanings. In the broadest of terms, if you fall on the right, it’s called “cancel culture”—a merciless, life-ruining takedown of fallible human beings. On the left, it’s called “consequence culture”—wrongdoers being held accountable for their own awful behavior. Now, a new documentary called \u003ci>\u003ca href=\"https://www.hbomax.com/coming-soon/15-minutes-of-shame\" target=\"_blank\" rel=\"noopener noreferrer\">15 Minutes of Shame\u003c/a>\u003c/i>—executive produced by Monica Lewinsky and directed by Max Joseph—is here to fill out the space in between. And it is a thoroughly enlightening, if anxiety-inducing, watch.\u003c/p>\n\u003cp>Lewinsky’s involvement here is key. In the film’s introduction, she refers to herself as “Patient Zero of having a reputation completely destroyed, worldwide, because of the internet.” And while that is an accurate assessment, \u003cem>15 Minutes\u003c/em> is not here to tell you the unfettered power of the internet is an exclusively bad thing. If anything, its end goal is to insert into these narratives the thing that is so often missing on the internet: humanity in all of its shades of gray.\u003c/p>\u003c/p>\u003cp>\u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutube'>\n \u003cspan class='utils-parseShortcode-shortcodes-__youtubeShortcode__embedYoutubeInside'>\n \u003ciframe\n loading='lazy'\n class='utils-parseShortcode-shortcodes-__youtubeShortcode__youtubePlayer'\n type='text/html'\n src='//www.youtube.com/embed/dhJrnNdH-aw'\n title='//www.youtube.com/embed/dhJrnNdH-aw'\n allowfullscreen='true'\n style='border:0;'>\u003c/iframe>\n \u003c/span>\n \u003c/span>\u003c/p>\u003cp>\u003cp>Like Jon Ronson’s excellent 2015 book, \u003cem>So You’ve Been Publicly Shamed\u003c/em>, \u003cem>15 Minutes\u003c/em> focuses not on humiliated celebrities, but rather a handful of everyday people whose lives have been decimated by their online characterizations. There’s Matt Colvin, \u003ca href=\"https://www.nytimes.com/2020/03/14/technology/coronavirus-purell-wipes-amazon-sellers.html\" target=\"_blank\" rel=\"noopener noreferrer\">the guy who bought up 17,700 bottles of hand sanitizer\u003c/a> at the start of the pandemic. There’s Emmanuel Cafferty, a Latino employee of San Diego Gas and Electric who lost his job after a member of the public accused him of making a white power hand gesture. And there’s Laura Krolczyk, who, in a fit of frustration with COVID deniers, wrote on her Facebook page: “Trump supporters need to pledge to give up their ventilators for someone else.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_10583072","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>The documentary allows each of these figures some space to explain themselves, but the point is not to vindicate them. The point is to take a deep dive into the cultural, social and psychological drivers behind internet take-downs. And it’s in those moments that \u003cem>15 Minutes\u003c/em> does its most interesting work.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The documentary sketches a fascinating “brief history of public shaming,” starting at the dawn of civilization, running through the introduction of the pillory, and then onto the invention of the printing press, tabloids and, finally, the internet. At one point, while talking about punishments doled out in town squares hundreds of years ago, cultural historian Dr. Tiffany Watt says: “This is a person who is suffering because they’ve done something wrong. And we have to punish them in order to tell everyone else not to do the same thing.” It’s clear in that moment the impulse to publicly shame is a thread that’s been present throughout history, and that the internet is merely the latest conduit for it.\u003c/p>\n\u003cp>\u003cem>15 Minutes\u003c/em> excels when discussing the psychology behind internet pile-ons. UCSF neuroscientist and psychologist Dr. Helen Weng explains why it’s harder for our brains to recognize people as full humans when we can’t see their faces and body language. Watt shares that one study of soccer fans found they felt a greater sense of joy from seeing rival teams fail than they did from seeing their own teams score. “What that showed,” Watt notes, “is that we enjoy seeing other people fail more than we enjoy winning, ourselves.” Being divided into “rival tribes,” Watt adds, “is a very, very dangerous place for a society to be in.”\u003c/p>\n\u003cp>The cultural commentators throughout \u003cem>15 Minutes of Shame\u003c/em> offer up similarly thought-provoking analysis. Segments with Roxane Gay perfectly encapsulate the struggles of online discourse. On one hand, Gay talks about why fighting back online is so necessary. “People are so unseen and so unheard and they’ve been so unrepresented for so long, and you see something done about it. That is incredibly satisfying.” On the other hand, Gay acknowledges the deep flaws of the format. “People love to say … ‘I am not responsible for dehumanizing the person, the internet is,’” she notes. “The internet is there, but we are responsible for the ways in which we dehumanize each other.”\u003c/p>\n\u003cp>\u003cem>15 Minutes\u003c/em> also takes the time to find out how tech companies are complicit in that dehumanization. Technology ethicist Tristan Harris, a former Google employee, explains: “One NYU study found that for every word of moral outrage—negative human emotions—that you added to a tweet … it increased the retweet rate by 13%.” Harris goes on to compare Twitter’s algorithm to rubbernecking. Its desire, he notes, is to feed us “car crash after car crash after car crash.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13902631","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>Ultimately, \u003cem>15 Minutes of Shame\u003c/em> is a documentary that, on the surface, seeks to capture our global online culture at this time and in this place. But it also contextualizes how we got here and, importantly, makes some suggestions as to how we can get better at handling it.\u003c/p>\n\u003cp>Lewinsky bookends the film with a single proposition: “Imagine waking up one morning with the whole world suddenly knowing your name.” But, at the end of the 86-minute film, she adds a question. “What kind of world do you want that to be?” You’ll have a much better idea after watching \u003cem>15 Minutes of Shame\u003c/em>.\u003c/p>\n\u003cp>\u003cimg loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-12127869\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2016/09/Q.Logo_.Break_.jpg\" alt=\"\" width=\"800\" height=\"78\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_.jpg 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_-400x39.jpg 400w, https://cdn.kqed.org/wp-content/uploads/sites/2/2016/09/Q.Logo_.Break_-768x75.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>\u003cem>‘15 Minutes of Shame’ begins streaming Thursday, Oct. 7, on HBO Max. \u003ca href=\"https://www.hbomax.com/coming-soon/15-minutes-of-shame\" target=\"_blank\" rel=\"noopener noreferrer\">Details here\u003c/a>.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13903591/hbo-15-minutes-of-shame-monica-lewinsky","authors":["11242"],"categories":["arts_1","arts_75","arts_990"],"tags":["arts_13672","arts_1934","arts_10278","arts_2304","arts_8350","arts_2137","arts_1553"],"featImg":"arts_13903994","label":"arts"},"arts_13897329":{"type":"posts","id":"arts_13897329","meta":{"index":"posts_1591205157","site":"arts","id":"13897329","score":null,"sort":[1621369397000]},"guestAuthors":[],"slug":"facebook-calls-links-to-depression-inconclusive-these-researchers-disagree","title":"Facebook Calls Links to Depression Inconclusive. These Researchers Disagree","publishDate":1621369397,"format":"standard","headTitle":"Facebook Calls Links to Depression Inconclusive. These Researchers Disagree | KQED","labelTerm":{"term":137,"site":"arts"},"content":"\u003cp>Rep. Cathy McMorris Rodgers’ biggest fear as a parent isn’t gun violence, or drunk driving, or anything related to the pandemic.\u003c/p>\n\u003cp>It’s social media.\u003c/p>\n\u003cp>And specifically, the new sense of “brokenness” she hears about in children in her district, and nationwide. Teen depression and suicide rates have been \u003ca href=\"https://www.pewresearch.org/fact-tank/2019/07/12/a-growing-number-of-american-teenagers-particularly-girls-are-facing-depression/\" target=\"_blank\" rel=\"noopener noreferrer\">rising for over a decade\u003c/a>, and she sees social apps as a major reason.\u003c/p>\n\u003cp>At a hearing this March on Capitol Hill, the Republican congresswoman from Washington confronted Facebook CEO Mark Zuckerberg, Twitter CEO Jack Dorsey and Google CEO Sundar Pichai with a list of statistics: From 2011 to 2018, \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/31415993/\" target=\"_blank\" rel=\"noopener noreferrer\">rates\u003c/a> of teen depression increased by more than 60%, and from 2009 to 2015, emergency room admissions for self-harm among 10- to 14-year-old girls \u003ca href=\"https://jamanetwork.com/journals/jama/fullarticle/2664031\" target=\"_blank\" rel=\"noopener noreferrer\">tripled\u003c/a>.\u003c/p>\n\u003cfigure id=\"attachment_13897332\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13897332\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-800x529.png\" alt=\"Source: CDC National Youth Risk Behavior Surveys.\" width=\"800\" height=\"529\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-800x529.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-1020x674.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-160x106.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-768x508.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-1536x1015.png 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM.png 1616w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Source: CDC National Youth Risk Behavior Surveys. \u003ccite>(Credit: Zach Levitt/NPR)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“It’s a battle for their development. It’s a battle for their mental health—and ultimately a battle for their safety,” McMorris Rodgers told the tech leaders.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>But when she pointed a question specifically to Zuckerberg, about whether he acknowledged a connection between children’s declining mental health and social media platforms, he demurred.\u003c/p>\n\u003cp>“I don’t think that the research is conclusive on that,” replied Zuckerberg.\u003c/p>\n\u003cp>It’s a position that he and his company, which is working on expanding its offerings to even younger children, have held for years. But mental health researchers whom NPR spoke with disagree.\u003c/p>\n\u003cp>They describe an increasingly clear correlation between poor mental health outcomes and social media use, and they worry that Facebook (which also owns Instagram and WhatsApp) in particular may be muddying the waters on that connection to protect its public image.\u003c/p>\n\u003cp>[aside postid='arts_13886630']“The correlational evidence showing that there is a link between social media use and depression is pretty definitive at this point,” said Jean Twenge, a psychology professor at San Diego State University. “The largest and most well-conducted studies that we have all show that teens who spend more time on social media are more likely to be depressed or unhappy.”\u003c/p>\n\u003cp>Correlation is not causation, and one area of further study is whether greater social media usage leads to poor mental health outcomes or whether those who are depressed and unhappy are drawn to spend more time on social media. But researchers also worry that not enough government funding is going toward getting objective data to answer these sorts of questions.\u003c/p>\n\u003cp>Facebook also almost certainly knows more than it has publicly revealed about how its products affect people.\u003c/p>\n\u003cp>NPR spoke with Twenge and two other academics whose work has focused on the links between depression and social media use and who say Facebook’s public affairs team reached out to them for the first time ever in recent months for input on internal information related to the issue.\u003c/p>\n\u003cp>The company declined to comment about the meeting requests and about its stance on research about its platforms. But the outreach comes at a pivotal time for Facebook and its plans for growth.\u003c/p>\n\u003cp>Government regulation is \u003ca href=\"https://www.npr.org/2021/03/25/981203566/5-takeaways-from-big-techs-misinformation-hearing\" target=\"_blank\" rel=\"noopener noreferrer\">closer than ever\u003c/a> before, and the issue of children’s mental health is one of the few concerns about Big Tech that Republicans and Democrats seem to agree on.\u003c/p>\n\u003cp>After it was revealed that Facebook was working on a version of Instagram for children under 13, a bipartisan group of 44 attorneys general \u003ca href=\"https://ag.ny.gov/sites/default/files/naag_letter_to_facebook_-_final.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">wrote a letter\u003c/a> to Zuckerberg this month with a simple message: Stop.\u003c/p>\n\u003cp>“Use of social media can be detrimental to the health and well-being of children, who are not equipped to navigate the challenges of having a social media account,” the letter reads. “Further, Facebook has historically failed to protect the welfare of children on its platforms.”\u003c/p>\n\u003cp>Shortly after McMorris Rodgers spoke at the March congressional hearing, Rep. Kathy Castor, a Florida Democrat, asked Zuckerberg whether he was familiar with a \u003ca href=\"https://jamanetwork.com/journals/jamapediatrics/fullarticle/2737909\" target=\"_blank\" rel=\"noopener noreferrer\">2019 study\u003c/a> that found the risk of depression in children rises with each hour spent daily on social media. He said he was not.\u003c/p>\n\u003cp>“You enjoy an outdated liability shield that incentivizes you to look the other way or take half-measures,” Castor said, “while you make billions at the expense of our kids, our health and the truth.”\u003c/p>\n\u003cp>\u003cstrong>Internal “insights”\u003c/strong>\u003c/p>\n\u003cp>Twenge has been studying and writing about technology’s effects on people born between 1995 and 2012 for much of the last decade.\u003c/p>\n\u003cp>[aside postid='arts_13885533']She dubbed the generation “iGen” in a 2017 book that features an abundance of charts showing huge drop-offs in happiness among teens in the last decade compared with previous generations and huge increases in loneliness and suicide risk, especially in teens who are on their phones more than an hour or two a day.\u003c/p>\n\u003cp>And since 2017, those trends have mostly gotten worse.\u003c/p>\n\u003cp>“For depression and anxiety and self-harm, those increases have continued,” Twenge said. “As smartphones became even more pervasive, social media became even more pervasive.”\u003c/p>\n\u003cp>In the four years since her book came out, no one from any of the major social media companies reached out to her.\u003c/p>\n\u003cp>Until about three months ago.\u003c/p>\n\u003cp>“I got an email from someone at Facebook who said they were putting together an advisory panel,” Twenge said.\u003c/p>\n\u003cp>The email came from a lower-level employee at the company on behalf of Heather Moore, a public affairs executive at Facebook who helped create the company’s Oversight Board. (That panel, which is funded by Facebook through a $130 million independent trust, is made up of \u003ca href=\"https://oversightboard.com/meet-the-board/\" target=\"_blank\" rel=\"noopener noreferrer\">20 prominent experts\u003c/a> from around the world.) The board recently announced its biggest decision yet, \u003ca href=\"https://www.npr.org/2021/05/07/994436847/what-we-learned-about-facebook-from-trump-decision\" target=\"_blank\" rel=\"noopener noreferrer\">siding with the company\u003c/a> on its decision to suspend former President Donald Trump from the platform.\u003c/p>\n\u003cp>Two other researchers NPR spoke with say they received a similar meeting request. One did not wish to be named in this story.\u003c/p>\n\u003cp>The request says Facebook is “currently working on speaking with a range of experts who study algorithms and virality,” but it doesn’t specify whether the company is planning to assemble a more organized public- or private-facing group of experts focused on the mental health effects of the platform.\u003c/p>\n\u003cp>Facebook declined to provide more detail about the requests, but a spokesperson did note that a company as large as Facebook reaches out to a variety of subject-matter experts frequently.\u003c/p>\n\u003cp>The email does, however, allude to the company having relevant internal information regarding the mental health effects of its platforms.\u003c/p>\n\u003cp>“The team would like to share some insights about what we’re working on internally and ask for your input,” the email says.\u003c/p>\n\u003cp>In the March hearing on Capitol Hill, Zuckerberg told McMorris Rodgers that the company has specifically researched the mental health effects that his company’s platforms have on children. But when McMorris Rodgers’ staff \u003ca href=\"https://www.reuters.com/article/ctech-us-usa-congress-tech-idCAKBN2BM2UI-OCATC\" target=\"_blank\" rel=\"noopener noreferrer\">followed up\u003c/a> after the hearing, she says the company declined to share any of its research.\u003c/p>\n\u003cp>“I believe that they have done the research. They’re not being transparent,” McMorris Rodgers told NPR in an interview. “They seem to be more concerned about their current business model, and they have become very wealthy under their current business model. But the fact of the matter is we’re seeing more and more evidence … that their current business model is harming our kids.”\u003c/p>\n\u003cp>Generally in response to these kinds of questions, Facebook \u003ca href=\"https://about.fb.com/news/2017/12/hard-questions-is-spending-time-on-social-media-bad-for-us/\" target=\"_blank\" rel=\"noopener noreferrer\">has pointed to research\u003c/a> indicating that poor mental health outcomes like depression stem from how people use the platforms and specifically whether they are “active” users who post and message people or “passive” users who mostly consume content.\u003c/p>\n\u003cp>The implication is that people have control over whether they feel bad from using the platforms, since users have a choice in whether they message their friends on Instagram, for instance, or whether they choose to scroll endlessly.\u003c/p>\n\u003cp>But Melissa Hunt, a psychology professor at the University of Pennsylvania, says it’s not so simple.\u003c/p>\n\u003cp>[aside postid='arts_13867167']The company’s success is dependent on keeping people engaged and selling advertisements based on that engagement, so Facebook, she says, is motivated to create systems that keep people on its platforms no matter the effect to their long-term well-being.\u003c/p>\n\u003cp>Hunt was another one of the researchers who received an inquiry from Facebook about \u003ca href=\"https://penntoday.upenn.edu/news/social-media-use-increases-depression-and-loneliness\" target=\"_blank\" rel=\"noopener noreferrer\">her work\u003c/a> linking social media use and depression.\u003c/p>\n\u003cp>“Basically all of the things that would contribute to these platforms being healthier for people to use, which is basically spend less time, don’t follow strangers, don’t spend time passively scrolling through this random feed that’s being suggested to you,” Hunt says. “That completely undermines their whole business model.”\u003c/p>\n\u003cp>When she got a request for her time from the company, she says she thought about it. Then she also thought about what Facebook is currently valued at: close to a trillion dollars.\u003c/p>\n\u003cp>“I decided that if they were serious about that, they could pay me a nominal consulting fee,” Hunt says. “So I let them know what my consulting fee was. I said I’d be delighted to weigh in and share my expertise with you.”\u003c/p>\n\u003cp>She never heard back.\u003c/p>\n\u003cp>Similarly, Twenge responded to the request from the company and said she was interested in setting up a time to talk, but after a few back-and-forth messages, she has yet to hear back again.\u003c/p>\n\u003cp>Twenge feels strongly that while the research on the psychological impact of social media is relatively new, there are takeaways that can already be drawn, even as some insist on labeling it all “inconclusive.”\u003c/p>\n\u003cp>“It’s similar to the way that climate deniers can point to a few people in that field and say, ‘There’s a few people who still doubt this.’ It’s that false equivalence that happens too often,” Twenge said. “In this case, that small but vocal group has been very skilled at getting that message out, perhaps because these companies are very receptive to it.”\u003c/p>\n\u003cp>\u003cstrong>Questions without answers\u003c/strong>\u003c/p>\n\u003cp>In recent years, \u003ca href=\"https://www.huffpost.com/entry/why-social-media-is-more-_b_11297988\" target=\"_blank\" rel=\"noopener noreferrer\">some\u003c/a> have \u003ca href=\"https://www.businessinsider.com/salesforce-ceo-marc-benioff-said-at-davos-that-facebook-should-be-regulated-like-cigarettes-2018-1\" target=\"_blank\" rel=\"noopener noreferrer\">taken\u003c/a> to comparing social media to something else that previous generations used to fill idle moments to the detriment of their health: smoking cigarettes.\u003c/p>\n\u003cp>After smoking became \u003ca href=\"https://ourworldindata.org/grapher/sales-of-cigarettes-per-adult-per-day?time=1900..2014\" target=\"_blank\" rel=\"noopener noreferrer\">nearly universal\u003c/a>, cigarette companies \u003ca href=\"https://www.npr.org/transcripts/89114979\" target=\"_blank\" rel=\"noopener noreferrer\">famously\u003c/a> muddied the waters on research about how their products were harming people.\u003c/p>\n\u003cp>“Policy making is facilitated by consensus. However, scientific research is characterized by uncertainty,” wrote researcher Lisa Bero in \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1497700/pdf/15842123.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a paper\u003c/a> about how cigarette companies manipulated research. “It is often to the benefit of interest groups to generate controversy about data because the controversy is likely to slow or prevent regulation of a given product.”\u003c/p>\n\u003cp>But Brian Primack, who leads the College of Education and Health Professions at the University of Arkansas, says comparing the current research situation around social media and cigarettes is too simplistic.\u003c/p>\n\u003cp>Primack used to study tobacco. (“If it kills a lot of people, I want to study it,” he says about how he has chosen what to focus on throughout his career.)\u003c/p>\n\u003cp>Now, he spends his time investigating the effects of social media. And he sees a clear connection between depression and the online platforms.\u003c/p>\n\u003cp>A study \u003ca href=\"https://news.uark.edu/articles/55480/increased-social-media-use-linked-to-developing-depression-research-finds\" target=\"_blank\" rel=\"noopener noreferrer\">he published last year\u003c/a> found that young adults who increased their social media usage over a period of time were also found to be significantly more likely to become depressed over that same time period.\u003c/p>\n\u003cp>[aside postid='arts_13883979']“There is an association between the two,” Primack says. “Just meaning that if you put people into equal buckets in terms of how much social media they use, the people who use the most social media are also the people who are the most depressed.”\u003c/p>\n\u003cp>But unlike cigarettes, which he says have no useful purpose, some people have shown positive health outcomes from using social media.\u003c/p>\n\u003cp>\u003ca href=\"https://www.npr.org/sections/health-shots/2018/06/19/621136346/a-look-at-social-media-finds-some-possible-benefits-for-kids\" target=\"_blank\" rel=\"noopener noreferrer\">Brain development research\u003c/a> in recent years, for instance, found benefits in 9- and 10-year-olds from using social media.\u003c/p>\n\u003cp>“Social media is very heterogeneous. In some kids it can be very beneficial, and in other kids it can be very detrimental,” said the author of that study, Dr. Martin Paulus of the Laureate Institute for Brain Research. “But we still don’t understand which group of kids benefit from it and which group of kids may be harmed by it.”\u003c/p>\n\u003cp>Paulus is not confident the social media companies truly want to get to the bottom of that question either.\u003c/p>\n\u003cp>Several years ago, Paulus gave a presentation at Facebook with a few other researchers who were looking at the effects of social media. He came away from the meeting feeling like the company wasn’t serious about actually having objective research.\u003c/p>\n\u003cp>“It was more like a face-saving activity,” Paulus said. “Those companies, whether it’s Facebook or other companies as well, they say they want research… But they’re not necessarily interested in research that potentially would show that some of the things that they do are bad for kids.”\u003c/p>\n\u003cp>It’s a thorny issue to wade into. The company says that it employs hundreds of researchers and that it also supports efforts like Boston Children’s Hospital’s newly formed \u003ca href=\"https://www.childrenshospital.org/newsroom/news-and-events/2021/digital-wellness-lab-launch\" target=\"_blank\" rel=\"noopener noreferrer\">Digital Wellness Lab\u003c/a> and the Aspen Institute’s \u003ca href=\"https://csreports.aspeninstitute.org/Lessons-in-Loneliness/2020/report\" target=\"_blank\" rel=\"noopener noreferrer\">roundtables on loneliness and technology\u003c/a>.\u003c/p>\n\u003cp>But it has also been criticized for using its platforms for research purposes. In 2012, the company allowed researchers to change what people saw on the platform in order to see how that would affect the nature of what they then chose to post.\u003c/p>\n\u003cp>The \u003ca href=\"https://www.pnas.org/content/111/24/8788.full\" target=\"_blank\" rel=\"noopener noreferrer\">study\u003c/a> did show evidence that people’s moods are affected by what they see other people posting, but some saw the exercise as emotional manipulation, and one of the authors seemed to express \u003ca href=\"https://www.theatlantic.com/technology/archive/2014/06/everything-we-know-about-facebooks-secret-mood-manipulation-experiment/373648/\" target=\"_blank\" rel=\"noopener noreferrer\">regret\u003c/a> about conducting it after the backlash.\u003c/p>\n\u003cp>For a company with one of the largest data troves on the human population, this question of how best to conduct research expands to other sectors too. Disinformation researchers, for instance, have long been frustrated by what the company chooses and chooses not to share.\u003c/p>\n\u003cp>“They could answer questions that we desperately need answered any time they want, and they just won’t do it,” said Ben Scott, executive director at Reset, an initiative aimed at tackling digital threats to democracy. “They’ve chosen, for public relations reasons, not to participate in helping the public interest… And that’s outrageous.”\u003c/p>\n\u003cp>\u003cstrong>“God only knows what it’s doing to our children’s brains”\u003c/strong>\u003c/p>\n\u003cp>The potential dangers of kids spending hours hypnotized by their screens has been apparent essentially since the social media platforms were created.\u003c/p>\n\u003cp>Founding Facebook President Sean Parker once described, in \u003ca href=\"https://www.axios.com/sean-parker-unloads-on-facebook-god-only-knows-what-its-doing-to-our-childrens-brains-1513306792-f855e7b4-4e99-4d60-8d51-2775559c2671.html\" target=\"_blank\" rel=\"noopener noreferrer\">an interview with Axios\u003c/a>, the company’s algorithms as “exploiting a vulnerability in human psychology.”\u003c/p>\n\u003cp>“God only knows what it’s doing to our children’s brains,” Parker said. “The inventors, creators—it’s me, it’s Mark [Zuckerberg], it’s Kevin Systrom on Instagram, it’s all of these people—understood this consciously. And we did it anyway.”\u003c/p>\n\u003cp>The problem is compounded by how little government funding is going toward studying the effects of these platforms, relative to \u003ca href=\"https://www.npr.org/2021/03/05/971767967/trump-is-no-longer-tweeting-but-online-disinformation-isnt-going-away\" target=\"_blank\" rel=\"noopener noreferrer\">how much of each day\u003c/a> many Americans spend engaged with the technology.\u003c/p>\n\u003cp>Funding from the National Institutes of Health (NIH) is mostly focused on curing diseases, but because there is no specific disease officially associated with screen time, experts say it’s difficult to get studies funded by the federal government.\u003c/p>\n\u003cp>In 2019, Sen. Ed Markey, D-Mass., introduced \u003ca href=\"https://www.markey.senate.gov/imo/media/doc/CAMRA%20Act.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a bill\u003c/a> that would have provided a mechanism for more NIH research on the subject. The legislation had bipartisan co-sponsors and the support of Facebook, but it never made it to a vote.\u003c/p>\n\u003cp>Without more of that sort of research, parents are essentially left in the dark guessing exactly how much is too much for their kids when it comes to their devices.\u003c/p>\n\u003cp>“The truth of it, quite frankly, is we are probably living through one of the biggest natural experiments that we’ve gone through with our kids,” said Paulus.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Editor’s note:\u003c/strong>\u003c/em>\u003cem> Facebook is among NPR’s financial supporters.\u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2021 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Facebook+Calls+Links+To+Depression+Inconclusive.+These+Researchers+Disagree&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"Facebook has reached out to a few researchers for input recently, but those researchers are skeptical about Facebook's motivations.","status":"publish","parent":0,"modified":1705008367,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":79,"wordCount":2801},"headData":{"title":"Facebook Calls Links to Depression Inconclusive. These Researchers Disagree | KQED","description":"Facebook has reached out to a few researchers for input recently, but those researchers are skeptical about Facebook's motivations.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Facebook Calls Links to Depression Inconclusive. These Researchers Disagree","datePublished":"2021-05-18T20:23:17.000Z","dateModified":"2024-01-11T21:26:07.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"nprImageCredit":"Daniel Acker","nprByline":"Miles Parks","nprImageAgency":"Bloomberg via Getty Images","nprStoryId":"990234501","nprApiLink":"http://api.npr.org/query?id=990234501&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"https://www.npr.org/2021/05/18/990234501/facebook-calls-links-to-depression-inconclusive-these-researchers-disagree?ft=nprml&f=990234501","nprRetrievedStory":"1","nprPubDate":"Tue, 18 May 2021 10:37:00 -0400","nprStoryDate":"Tue, 18 May 2021 05:13:00 -0400","nprLastModifiedDate":"Tue, 18 May 2021 10:37:44 -0400","templateType":"standard","featuredImageType":"standard","path":"/arts/13897329/facebook-calls-links-to-depression-inconclusive-these-researchers-disagree","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Rep. Cathy McMorris Rodgers’ biggest fear as a parent isn’t gun violence, or drunk driving, or anything related to the pandemic.\u003c/p>\n\u003cp>It’s social media.\u003c/p>\n\u003cp>And specifically, the new sense of “brokenness” she hears about in children in her district, and nationwide. Teen depression and suicide rates have been \u003ca href=\"https://www.pewresearch.org/fact-tank/2019/07/12/a-growing-number-of-american-teenagers-particularly-girls-are-facing-depression/\" target=\"_blank\" rel=\"noopener noreferrer\">rising for over a decade\u003c/a>, and she sees social apps as a major reason.\u003c/p>\n\u003cp>At a hearing this March on Capitol Hill, the Republican congresswoman from Washington confronted Facebook CEO Mark Zuckerberg, Twitter CEO Jack Dorsey and Google CEO Sundar Pichai with a list of statistics: From 2011 to 2018, \u003ca href=\"https://pubmed.ncbi.nlm.nih.gov/31415993/\" target=\"_blank\" rel=\"noopener noreferrer\">rates\u003c/a> of teen depression increased by more than 60%, and from 2009 to 2015, emergency room admissions for self-harm among 10- to 14-year-old girls \u003ca href=\"https://jamanetwork.com/journals/jama/fullarticle/2664031\" target=\"_blank\" rel=\"noopener noreferrer\">tripled\u003c/a>.\u003c/p>\n\u003cfigure id=\"attachment_13897332\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13897332\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-800x529.png\" alt=\"Source: CDC National Youth Risk Behavior Surveys.\" width=\"800\" height=\"529\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-800x529.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-1020x674.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-160x106.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-768x508.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM-1536x1015.png 1536w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/05/Screen-Shot-2021-05-18-at-12.57.10-PM.png 1616w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Source: CDC National Youth Risk Behavior Surveys. \u003ccite>(Credit: Zach Levitt/NPR)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>“It’s a battle for their development. It’s a battle for their mental health—and ultimately a battle for their safety,” McMorris Rodgers told the tech leaders.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>But when she pointed a question specifically to Zuckerberg, about whether he acknowledged a connection between children’s declining mental health and social media platforms, he demurred.\u003c/p>\n\u003cp>“I don’t think that the research is conclusive on that,” replied Zuckerberg.\u003c/p>\n\u003cp>It’s a position that he and his company, which is working on expanding its offerings to even younger children, have held for years. But mental health researchers whom NPR spoke with disagree.\u003c/p>\n\u003cp>They describe an increasingly clear correlation between poor mental health outcomes and social media use, and they worry that Facebook (which also owns Instagram and WhatsApp) in particular may be muddying the waters on that connection to protect its public image.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13886630","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>“The correlational evidence showing that there is a link between social media use and depression is pretty definitive at this point,” said Jean Twenge, a psychology professor at San Diego State University. “The largest and most well-conducted studies that we have all show that teens who spend more time on social media are more likely to be depressed or unhappy.”\u003c/p>\n\u003cp>Correlation is not causation, and one area of further study is whether greater social media usage leads to poor mental health outcomes or whether those who are depressed and unhappy are drawn to spend more time on social media. But researchers also worry that not enough government funding is going toward getting objective data to answer these sorts of questions.\u003c/p>\n\u003cp>Facebook also almost certainly knows more than it has publicly revealed about how its products affect people.\u003c/p>\n\u003cp>NPR spoke with Twenge and two other academics whose work has focused on the links between depression and social media use and who say Facebook’s public affairs team reached out to them for the first time ever in recent months for input on internal information related to the issue.\u003c/p>\n\u003cp>The company declined to comment about the meeting requests and about its stance on research about its platforms. But the outreach comes at a pivotal time for Facebook and its plans for growth.\u003c/p>\n\u003cp>Government regulation is \u003ca href=\"https://www.npr.org/2021/03/25/981203566/5-takeaways-from-big-techs-misinformation-hearing\" target=\"_blank\" rel=\"noopener noreferrer\">closer than ever\u003c/a> before, and the issue of children’s mental health is one of the few concerns about Big Tech that Republicans and Democrats seem to agree on.\u003c/p>\n\u003cp>After it was revealed that Facebook was working on a version of Instagram for children under 13, a bipartisan group of 44 attorneys general \u003ca href=\"https://ag.ny.gov/sites/default/files/naag_letter_to_facebook_-_final.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">wrote a letter\u003c/a> to Zuckerberg this month with a simple message: Stop.\u003c/p>\n\u003cp>“Use of social media can be detrimental to the health and well-being of children, who are not equipped to navigate the challenges of having a social media account,” the letter reads. “Further, Facebook has historically failed to protect the welfare of children on its platforms.”\u003c/p>\n\u003cp>Shortly after McMorris Rodgers spoke at the March congressional hearing, Rep. Kathy Castor, a Florida Democrat, asked Zuckerberg whether he was familiar with a \u003ca href=\"https://jamanetwork.com/journals/jamapediatrics/fullarticle/2737909\" target=\"_blank\" rel=\"noopener noreferrer\">2019 study\u003c/a> that found the risk of depression in children rises with each hour spent daily on social media. He said he was not.\u003c/p>\n\u003cp>“You enjoy an outdated liability shield that incentivizes you to look the other way or take half-measures,” Castor said, “while you make billions at the expense of our kids, our health and the truth.”\u003c/p>\n\u003cp>\u003cstrong>Internal “insights”\u003c/strong>\u003c/p>\n\u003cp>Twenge has been studying and writing about technology’s effects on people born between 1995 and 2012 for much of the last decade.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13885533","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>She dubbed the generation “iGen” in a 2017 book that features an abundance of charts showing huge drop-offs in happiness among teens in the last decade compared with previous generations and huge increases in loneliness and suicide risk, especially in teens who are on their phones more than an hour or two a day.\u003c/p>\n\u003cp>And since 2017, those trends have mostly gotten worse.\u003c/p>\n\u003cp>“For depression and anxiety and self-harm, those increases have continued,” Twenge said. “As smartphones became even more pervasive, social media became even more pervasive.”\u003c/p>\n\u003cp>In the four years since her book came out, no one from any of the major social media companies reached out to her.\u003c/p>\n\u003cp>Until about three months ago.\u003c/p>\n\u003cp>“I got an email from someone at Facebook who said they were putting together an advisory panel,” Twenge said.\u003c/p>\n\u003cp>The email came from a lower-level employee at the company on behalf of Heather Moore, a public affairs executive at Facebook who helped create the company’s Oversight Board. (That panel, which is funded by Facebook through a $130 million independent trust, is made up of \u003ca href=\"https://oversightboard.com/meet-the-board/\" target=\"_blank\" rel=\"noopener noreferrer\">20 prominent experts\u003c/a> from around the world.) The board recently announced its biggest decision yet, \u003ca href=\"https://www.npr.org/2021/05/07/994436847/what-we-learned-about-facebook-from-trump-decision\" target=\"_blank\" rel=\"noopener noreferrer\">siding with the company\u003c/a> on its decision to suspend former President Donald Trump from the platform.\u003c/p>\n\u003cp>Two other researchers NPR spoke with say they received a similar meeting request. One did not wish to be named in this story.\u003c/p>\n\u003cp>The request says Facebook is “currently working on speaking with a range of experts who study algorithms and virality,” but it doesn’t specify whether the company is planning to assemble a more organized public- or private-facing group of experts focused on the mental health effects of the platform.\u003c/p>\n\u003cp>Facebook declined to provide more detail about the requests, but a spokesperson did note that a company as large as Facebook reaches out to a variety of subject-matter experts frequently.\u003c/p>\n\u003cp>The email does, however, allude to the company having relevant internal information regarding the mental health effects of its platforms.\u003c/p>\n\u003cp>“The team would like to share some insights about what we’re working on internally and ask for your input,” the email says.\u003c/p>\n\u003cp>In the March hearing on Capitol Hill, Zuckerberg told McMorris Rodgers that the company has specifically researched the mental health effects that his company’s platforms have on children. But when McMorris Rodgers’ staff \u003ca href=\"https://www.reuters.com/article/ctech-us-usa-congress-tech-idCAKBN2BM2UI-OCATC\" target=\"_blank\" rel=\"noopener noreferrer\">followed up\u003c/a> after the hearing, she says the company declined to share any of its research.\u003c/p>\n\u003cp>“I believe that they have done the research. They’re not being transparent,” McMorris Rodgers told NPR in an interview. “They seem to be more concerned about their current business model, and they have become very wealthy under their current business model. But the fact of the matter is we’re seeing more and more evidence … that their current business model is harming our kids.”\u003c/p>\n\u003cp>Generally in response to these kinds of questions, Facebook \u003ca href=\"https://about.fb.com/news/2017/12/hard-questions-is-spending-time-on-social-media-bad-for-us/\" target=\"_blank\" rel=\"noopener noreferrer\">has pointed to research\u003c/a> indicating that poor mental health outcomes like depression stem from how people use the platforms and specifically whether they are “active” users who post and message people or “passive” users who mostly consume content.\u003c/p>\n\u003cp>The implication is that people have control over whether they feel bad from using the platforms, since users have a choice in whether they message their friends on Instagram, for instance, or whether they choose to scroll endlessly.\u003c/p>\n\u003cp>But Melissa Hunt, a psychology professor at the University of Pennsylvania, says it’s not so simple.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13867167","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>The company’s success is dependent on keeping people engaged and selling advertisements based on that engagement, so Facebook, she says, is motivated to create systems that keep people on its platforms no matter the effect to their long-term well-being.\u003c/p>\n\u003cp>Hunt was another one of the researchers who received an inquiry from Facebook about \u003ca href=\"https://penntoday.upenn.edu/news/social-media-use-increases-depression-and-loneliness\" target=\"_blank\" rel=\"noopener noreferrer\">her work\u003c/a> linking social media use and depression.\u003c/p>\n\u003cp>“Basically all of the things that would contribute to these platforms being healthier for people to use, which is basically spend less time, don’t follow strangers, don’t spend time passively scrolling through this random feed that’s being suggested to you,” Hunt says. “That completely undermines their whole business model.”\u003c/p>\n\u003cp>When she got a request for her time from the company, she says she thought about it. Then she also thought about what Facebook is currently valued at: close to a trillion dollars.\u003c/p>\n\u003cp>“I decided that if they were serious about that, they could pay me a nominal consulting fee,” Hunt says. “So I let them know what my consulting fee was. I said I’d be delighted to weigh in and share my expertise with you.”\u003c/p>\n\u003cp>She never heard back.\u003c/p>\n\u003cp>Similarly, Twenge responded to the request from the company and said she was interested in setting up a time to talk, but after a few back-and-forth messages, she has yet to hear back again.\u003c/p>\n\u003cp>Twenge feels strongly that while the research on the psychological impact of social media is relatively new, there are takeaways that can already be drawn, even as some insist on labeling it all “inconclusive.”\u003c/p>\n\u003cp>“It’s similar to the way that climate deniers can point to a few people in that field and say, ‘There’s a few people who still doubt this.’ It’s that false equivalence that happens too often,” Twenge said. “In this case, that small but vocal group has been very skilled at getting that message out, perhaps because these companies are very receptive to it.”\u003c/p>\n\u003cp>\u003cstrong>Questions without answers\u003c/strong>\u003c/p>\n\u003cp>In recent years, \u003ca href=\"https://www.huffpost.com/entry/why-social-media-is-more-_b_11297988\" target=\"_blank\" rel=\"noopener noreferrer\">some\u003c/a> have \u003ca href=\"https://www.businessinsider.com/salesforce-ceo-marc-benioff-said-at-davos-that-facebook-should-be-regulated-like-cigarettes-2018-1\" target=\"_blank\" rel=\"noopener noreferrer\">taken\u003c/a> to comparing social media to something else that previous generations used to fill idle moments to the detriment of their health: smoking cigarettes.\u003c/p>\n\u003cp>After smoking became \u003ca href=\"https://ourworldindata.org/grapher/sales-of-cigarettes-per-adult-per-day?time=1900..2014\" target=\"_blank\" rel=\"noopener noreferrer\">nearly universal\u003c/a>, cigarette companies \u003ca href=\"https://www.npr.org/transcripts/89114979\" target=\"_blank\" rel=\"noopener noreferrer\">famously\u003c/a> muddied the waters on research about how their products were harming people.\u003c/p>\n\u003cp>“Policy making is facilitated by consensus. However, scientific research is characterized by uncertainty,” wrote researcher Lisa Bero in \u003ca href=\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1497700/pdf/15842123.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a paper\u003c/a> about how cigarette companies manipulated research. “It is often to the benefit of interest groups to generate controversy about data because the controversy is likely to slow or prevent regulation of a given product.”\u003c/p>\n\u003cp>But Brian Primack, who leads the College of Education and Health Professions at the University of Arkansas, says comparing the current research situation around social media and cigarettes is too simplistic.\u003c/p>\n\u003cp>Primack used to study tobacco. (“If it kills a lot of people, I want to study it,” he says about how he has chosen what to focus on throughout his career.)\u003c/p>\n\u003cp>Now, he spends his time investigating the effects of social media. And he sees a clear connection between depression and the online platforms.\u003c/p>\n\u003cp>A study \u003ca href=\"https://news.uark.edu/articles/55480/increased-social-media-use-linked-to-developing-depression-research-finds\" target=\"_blank\" rel=\"noopener noreferrer\">he published last year\u003c/a> found that young adults who increased their social media usage over a period of time were also found to be significantly more likely to become depressed over that same time period.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13883979","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>“There is an association between the two,” Primack says. “Just meaning that if you put people into equal buckets in terms of how much social media they use, the people who use the most social media are also the people who are the most depressed.”\u003c/p>\n\u003cp>But unlike cigarettes, which he says have no useful purpose, some people have shown positive health outcomes from using social media.\u003c/p>\n\u003cp>\u003ca href=\"https://www.npr.org/sections/health-shots/2018/06/19/621136346/a-look-at-social-media-finds-some-possible-benefits-for-kids\" target=\"_blank\" rel=\"noopener noreferrer\">Brain development research\u003c/a> in recent years, for instance, found benefits in 9- and 10-year-olds from using social media.\u003c/p>\n\u003cp>“Social media is very heterogeneous. In some kids it can be very beneficial, and in other kids it can be very detrimental,” said the author of that study, Dr. Martin Paulus of the Laureate Institute for Brain Research. “But we still don’t understand which group of kids benefit from it and which group of kids may be harmed by it.”\u003c/p>\n\u003cp>Paulus is not confident the social media companies truly want to get to the bottom of that question either.\u003c/p>\n\u003cp>Several years ago, Paulus gave a presentation at Facebook with a few other researchers who were looking at the effects of social media. He came away from the meeting feeling like the company wasn’t serious about actually having objective research.\u003c/p>\n\u003cp>“It was more like a face-saving activity,” Paulus said. “Those companies, whether it’s Facebook or other companies as well, they say they want research… But they’re not necessarily interested in research that potentially would show that some of the things that they do are bad for kids.”\u003c/p>\n\u003cp>It’s a thorny issue to wade into. The company says that it employs hundreds of researchers and that it also supports efforts like Boston Children’s Hospital’s newly formed \u003ca href=\"https://www.childrenshospital.org/newsroom/news-and-events/2021/digital-wellness-lab-launch\" target=\"_blank\" rel=\"noopener noreferrer\">Digital Wellness Lab\u003c/a> and the Aspen Institute’s \u003ca href=\"https://csreports.aspeninstitute.org/Lessons-in-Loneliness/2020/report\" target=\"_blank\" rel=\"noopener noreferrer\">roundtables on loneliness and technology\u003c/a>.\u003c/p>\n\u003cp>But it has also been criticized for using its platforms for research purposes. In 2012, the company allowed researchers to change what people saw on the platform in order to see how that would affect the nature of what they then chose to post.\u003c/p>\n\u003cp>The \u003ca href=\"https://www.pnas.org/content/111/24/8788.full\" target=\"_blank\" rel=\"noopener noreferrer\">study\u003c/a> did show evidence that people’s moods are affected by what they see other people posting, but some saw the exercise as emotional manipulation, and one of the authors seemed to express \u003ca href=\"https://www.theatlantic.com/technology/archive/2014/06/everything-we-know-about-facebooks-secret-mood-manipulation-experiment/373648/\" target=\"_blank\" rel=\"noopener noreferrer\">regret\u003c/a> about conducting it after the backlash.\u003c/p>\n\u003cp>For a company with one of the largest data troves on the human population, this question of how best to conduct research expands to other sectors too. Disinformation researchers, for instance, have long been frustrated by what the company chooses and chooses not to share.\u003c/p>\n\u003cp>“They could answer questions that we desperately need answered any time they want, and they just won’t do it,” said Ben Scott, executive director at Reset, an initiative aimed at tackling digital threats to democracy. “They’ve chosen, for public relations reasons, not to participate in helping the public interest… And that’s outrageous.”\u003c/p>\n\u003cp>\u003cstrong>“God only knows what it’s doing to our children’s brains”\u003c/strong>\u003c/p>\n\u003cp>The potential dangers of kids spending hours hypnotized by their screens has been apparent essentially since the social media platforms were created.\u003c/p>\n\u003cp>Founding Facebook President Sean Parker once described, in \u003ca href=\"https://www.axios.com/sean-parker-unloads-on-facebook-god-only-knows-what-its-doing-to-our-childrens-brains-1513306792-f855e7b4-4e99-4d60-8d51-2775559c2671.html\" target=\"_blank\" rel=\"noopener noreferrer\">an interview with Axios\u003c/a>, the company’s algorithms as “exploiting a vulnerability in human psychology.”\u003c/p>\n\u003cp>“God only knows what it’s doing to our children’s brains,” Parker said. “The inventors, creators—it’s me, it’s Mark [Zuckerberg], it’s Kevin Systrom on Instagram, it’s all of these people—understood this consciously. And we did it anyway.”\u003c/p>\n\u003cp>The problem is compounded by how little government funding is going toward studying the effects of these platforms, relative to \u003ca href=\"https://www.npr.org/2021/03/05/971767967/trump-is-no-longer-tweeting-but-online-disinformation-isnt-going-away\" target=\"_blank\" rel=\"noopener noreferrer\">how much of each day\u003c/a> many Americans spend engaged with the technology.\u003c/p>\n\u003cp>Funding from the National Institutes of Health (NIH) is mostly focused on curing diseases, but because there is no specific disease officially associated with screen time, experts say it’s difficult to get studies funded by the federal government.\u003c/p>\n\u003cp>In 2019, Sen. Ed Markey, D-Mass., introduced \u003ca href=\"https://www.markey.senate.gov/imo/media/doc/CAMRA%20Act.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">a bill\u003c/a> that would have provided a mechanism for more NIH research on the subject. The legislation had bipartisan co-sponsors and the support of Facebook, but it never made it to a vote.\u003c/p>\n\u003cp>Without more of that sort of research, parents are essentially left in the dark guessing exactly how much is too much for their kids when it comes to their devices.\u003c/p>\n\u003cp>“The truth of it, quite frankly, is we are probably living through one of the biggest natural experiments that we’ve gone through with our kids,” said Paulus.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>\u003cstrong>Editor’s note:\u003c/strong>\u003c/em>\u003cem> Facebook is among NPR’s financial supporters.\u003c/em>\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2021 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Facebook+Calls+Links+To+Depression+Inconclusive.+These+Researchers+Disagree&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13897329/facebook-calls-links-to-depression-inconclusive-these-researchers-disagree","authors":["byline_arts_13897329"],"categories":["arts_1","arts_75"],"tags":["arts_6325","arts_1934","arts_2098","arts_4773","arts_2137","arts_1935","arts_2391"],"affiliates":["arts_137"],"featImg":"arts_13897336","label":"arts_137"},"arts_13891014":{"type":"posts","id":"arts_13891014","meta":{"index":"posts_1591205157","site":"arts","id":"13891014","score":null,"sort":[1610662512000]},"guestAuthors":[],"slug":"trial-by-yelp-the-internet-targets-the-businesses-of-dc-riot-attendees","title":"Trial by Yelp: The Internet Targets the Businesses of DC Riot Attendees","publishDate":1610662512,"format":"standard","headTitle":"Trial by Yelp: The Internet Targets the Businesses of DC Riot Attendees | KQED","labelTerm":{"site":"arts"},"content":"\u003cp>The Yelp post was forceful. “This THUG, this TERRORIST & White Supremacist joined, organized and terrorized the capital building last night (Jan. 6th) in a Trump Supporter failed coup,” read the review of \u003ca href=\"https://www.yelp.com/biz/sugar-shack-menlo-park?osq=sugar+shack\" target=\"_blank\" rel=\"noopener noreferrer\">Sugar Shack\u003c/a>. “If you have a sweet tooth for racism, arrogance & ounces and ounces of blind audacity, this is your spot.”\u003c/p>\n\u003cp>The Menlo Park candy store is just one of many businesses inundated with bad Yelp reviews after Trump supporters invaded the Capitol building last week. Sugar Shack received nine pages of one-star reviews after a photo emerged of its owner Suzi Tinsley outside the Capitol the day of the attack, draped in a Trump flag and giving the thumbs up. That photo—one Tinsley says she only texted to “a few friends”—now dominates her business’ Yelp page. (\u003ca href=\"https://abc7news.com/9455397/\" target=\"_blank\" rel=\"noopener noreferrer\">Tinsley says\u003c/a> she left the rally “long before the agitators stormed the building.”)\u003c/p>\n\u003cfigure id=\"attachment_13891031\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891031\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-800x334.png\" alt=\"Sugar Shack's Yelp page is currently dominated by photos of its owner at the Trump rally in DC that turned violent.\" width=\"800\" height=\"334\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-800x334.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-1020x426.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-160x67.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-768x321.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM.png 1362w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sugar Shack’s Yelp page is currently dominated by photos of its owner at the Trump rally in DC that turned violent. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Sugar Shack is not alone. A Yelp spokesperson told KQED Arts that in the five days that followed Jan. 6, 50 “unusual activity” alerts, all directly related to the violence in Washington, were issued for Yelp business pages. “To be clear,” the spokesperson said via email, “Yelp condemns the violent actions at the Capitol last week. That said, we remove reviews that are not based on a first-hand consumer experience, even in situations where we may agree with views expressed in these reviews.”\u003c/p>\n\u003cp>In the hours during and after the Capitol invasion, the rush to social media was swift. For many people watching, feelings of horror crept in as they witnessed rioters seemingly getting away with the attack. And the frustration of seeing too few officers either \u003ca href=\"https://www.cnn.com/2021/01/09/us/officer-crushed-capitol-riot-video/index.html\" target=\"_blank\" rel=\"noopener noreferrer\">overwhelmed\u003c/a> or somehow \u003ca href=\"https://abc7ny.com/capitol-police-under-investigation-fbi-bulletin-state-capitals-how-did-the-officer-die-arrests-today/9568912/\" target=\"_blank\" rel=\"noopener noreferrer\">complicit \u003c/a>had to manifest somewhere. In the aftermath, the desire to see justice served fanned out from Twitter and onto the pages of Yelp.\u003c/p>\n\u003ch2>‘She’s a terrorist’\u003c/h2>\n\u003cp>Examples of businesses targeted because their Trump-supporting owners were in Washington that day are not particularly hard to find. In Midland, Texas, the \u003ca href=\"https://www.yelp.com/biz/beckys-flowers-midland?osq=becky%27s+flowers\" target=\"_blank\" rel=\"noopener noreferrer\">Yelp page\u003c/a> of \u003ca href=\"http://www.beckysflowersmidland.com/about-me.html\" target=\"_blank\" rel=\"noopener noreferrer\">Becky’s Flowers\u003c/a> received an influx of nearly eight pages of one-star reviews after its owner, Jenny Cudd, gleefully went \u003ca href=\"https://twitter.com/Cleavon_MD/status/1347334743323394048\" target=\"_blank\" rel=\"noopener noreferrer\">live on Facebook\u003c/a> from inside the Capitol. At the time of writing, the florist’s Yelp page is disabled pending investigation. One of the last posted reviews states: “Flowers were dying and the colors didn’t match. Also she’s a terrorist.”\u003c/p>\n\u003cfigure id=\"attachment_13891039\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891039\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-800x422.png\" alt=\"The Becky's Flowers Yelp page is currently dominated by a photo that appears to show owner, Jenny Cudd, inside the Capitol Building, draped in a Trump flag.\" width=\"800\" height=\"422\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-800x422.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-1020x538.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-160x84.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-768x405.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM.png 1309w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Becky’s Flowers Yelp page is currently dominated by a photo that appears to show owner, Jenny Cudd, inside the Capitol Building, draped in a Trump flag. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>This meting out of Yelp justice is, in an immediate sense, undoubtedly satisfying for those doling it out. But since Yelp’s policy is to “remove reviews that are not based on a first-hand consumer experience” it’s unlikely the recent onslaught of negative comments will do much permanent damage to the businesses’ ratings on the site. And it’s by no means guaranteed that this attention will spell their economic downfall.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>At least two of the businesses targeted by Yelp users in the past week have previously received negative attention for the political views of their owners, yet the businesses remain operational. \u003ca href=\"https://www.yelp.com/biz/rileys-farm-oak-glen\" target=\"_blank\" rel=\"noopener noreferrer\">Riley’s Farm\u003c/a> in Oak Glen, California currently has a disabled Yelp page because of an influx of 21 negative reviews. Owner \u003ca href=\"https://www.yelp.com/biz_photos/rileys-farm-oak-glen?select=J_CDq8VjeBSO227TY2Fzsw\" target=\"_blank\" rel=\"noopener noreferrer\">James Patrick Riley\u003c/a>, who was present at the Capitol on Jan. 6, is already well-known in his community. Last year, the Claremont Unified School District said they would no longer send field trips to Riley’s Farm because of Riley’s social media outbursts concerning nonbinary gender issues and what he called “BLACK supremacy,” among other things. Coverage of the story even reached the \u003cem>\u003ca href=\"https://www.latimes.com/local/california/la-me-rileys-farm-lawsuit-oak-glen-20190219-story.html\" target=\"_blank\" rel=\"noopener noreferrer\">Los Angeles Times\u003c/a>\u003c/em>, a readership far larger than the Riley’s Farm Yelp page.[aside postid='arts_13890905']\u003c/p>\n\u003cp>Similarly, Nathan Nickerson III, owner of \u003ca href=\"https://www.yelp.com/biz/arnolds-lobster-and-clam-bar-eastham-6?osq=Arnold%27s+Lobster+and+Clam+Bar\" target=\"_blank\" rel=\"noopener noreferrer\">Arnold’s Lobster & Clam Bar\u003c/a> in Cape Cod, has come under fire on Yelp for participating in a \u003ca href=\"https://www.boston.com/food/restaurants/2021/01/11/nathan-nickerson-iii-arnolds-lobster-clam-bar-eastham-trump-riot-dc\" target=\"_blank\" rel=\"noopener noreferrer\">phone interview\u003c/a> with a radio show while he was in Washington, in which he referred to nearby clouds of tear gas as “kind of pretty actually.” Twelve one-star reviews subsequently arrived on his restaurant’s page, prompting it to be disabled. But prior to the recent influx, Arnold’s had already received bad Yelp reviews, written by patrons who objected to \u003ca href=\"https://www.yelp.com/biz_photos/arnolds-lobster-and-clam-bar-eastham-6?select=bGluk6RG3qPEpvuMvHz2zw\" target=\"_blank\" rel=\"noopener noreferrer\">political table signs\u003c/a> at the restaurant.\u003c/p>\n\u003cp>Troublingly, the negative Yelp reviews seem to have only further solidified the beliefs of some of the participants in the Jan. 6 riot. The Yelp page of \u003ca href=\"https://peninsulacompany.com/\">Peninsula Company\u003c/a>, a Redwood City property management and real estate business, is still active despite being significantly impacted by reviews relating to the Jan. 6 riot, and a report to Yelp from the owner. Posts there specifically target Maria Rutenburg, an attorney and landlord for the company. Four reviewers have posted screenshots of recent social media posts by Rutenburg, including this one:\u003c/p>\n\u003cp>https://twitter.com/maria_rutenburg/status/1347005574861434883\u003c/p>\n\u003cp>That tweet now dominates Peninsula Company’s Yelp profile.\u003c/p>\n\u003cfigure id=\"attachment_13891032\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891032\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-800x412.png\" alt=\"The Yelp page associated with Peninsula Company in Redwood City has been targeted by critics because of links to the invasion of the Capitol Building.\" width=\"800\" height=\"412\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-800x412.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-1020x525.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-160x82.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-768x395.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM.png 1362w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Yelp page associated with Peninsula Company in Redwood City has been targeted by critics because of links to the invasion of the Capitol Building. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Rutenburg told KQED Arts via email that she did not engage in any “trespassing or violence” at the Capitol, but has since been harassed and threatened online and over the phone. Callers to her office have requested she be fired. “All these vicious attacks on me were provoked and encouraged at the highest level of leadership of the Democratic party,” Rutenburg said. “I will always stand up for this exceptional country to make sure that the light of liberty does not die on my watch. I will not be silenced.”\u003c/p>\n\u003ch2>Boycott or boost?\u003c/h2>\n\u003cp>The pro-Trump community exults in the infamy of negative attention. When those outraged by the attack share images of Trump’s supporters at the Capitol—especially their smiling selfies—it plays directly into their hands. In some ways, we’re doing their work for them. That horned QAnon guy (a conscious choice has been made here to not use his name) solidified his place as a minor right-wing celebrity last week, precisely because his image was shared so widely in mainstream media.\u003c/p>\n\u003cp>Look no further than Riley. He told the \u003ci>Los Angeles Times\u003c/i> that the attention brought by the calls for boycott actually benefitted his business, with private schools and parents organizing trips to the farm in support.\u003c/p>\n\u003cp>Running to Yelp to go after individuals who participated in the Capitol siege and the pro-Trump rally that preceded it has obviously been a source of catharsis for frustrated Americans who see that day’s events as a threat to our democracy. It’s a means to vent and mock and a clear attempt to kick the pro-Trump crowd where it hurts—their livelihoods. But soon, those bad reviews and the photos that accompany them will likely be scrubbed by Yelp. That they haven’t already probably speaks to the number of accounts under review since Jan. 6.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>Negative Yelp reviews aren’t a perfect solution to the current political turmoil—neither is doxxing, or aiding \u003ca href=\"https://tips.fbi.gov/digitalmedia/aad18481a3e8f02\" target=\"_blank\" rel=\"noopener noreferrer\">FBI investigations\u003c/a>—but it remains one of the few ways those who felt powerless watching the mob’s actions have had to express their condemnation of those actions. And in combination, these online efforts are a rebuttal to the lack of resistance the rioters met on their way to disrupt the Electoral College.\u003c/p>\n\n","blocks":[],"excerpt":"Going after people on Yelp might feel satisfying, but we have yet to see evidence that it brings down their businesses.","status":"publish","parent":0,"modified":1705019653,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":17,"wordCount":1332},"headData":{"title":"Trial by Yelp: The Internet Targets the Businesses of DC Riot Attendees | KQED","description":"Going after people on Yelp might feel satisfying, but we have yet to see evidence that it brings down their businesses.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Trial by Yelp: The Internet Targets the Businesses of DC Riot Attendees","datePublished":"2021-01-14T22:15:12.000Z","dateModified":"2024-01-12T00:34:13.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"templateType":"standard","featuredImageType":"standard","excludeFromSiteSearch":"Include","articleAge":"0","path":"/arts/13891014/trial-by-yelp-the-internet-targets-the-businesses-of-dc-riot-attendees","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>The Yelp post was forceful. “This THUG, this TERRORIST & White Supremacist joined, organized and terrorized the capital building last night (Jan. 6th) in a Trump Supporter failed coup,” read the review of \u003ca href=\"https://www.yelp.com/biz/sugar-shack-menlo-park?osq=sugar+shack\" target=\"_blank\" rel=\"noopener noreferrer\">Sugar Shack\u003c/a>. “If you have a sweet tooth for racism, arrogance & ounces and ounces of blind audacity, this is your spot.”\u003c/p>\n\u003cp>The Menlo Park candy store is just one of many businesses inundated with bad Yelp reviews after Trump supporters invaded the Capitol building last week. Sugar Shack received nine pages of one-star reviews after a photo emerged of its owner Suzi Tinsley outside the Capitol the day of the attack, draped in a Trump flag and giving the thumbs up. That photo—one Tinsley says she only texted to “a few friends”—now dominates her business’ Yelp page. (\u003ca href=\"https://abc7news.com/9455397/\" target=\"_blank\" rel=\"noopener noreferrer\">Tinsley says\u003c/a> she left the rally “long before the agitators stormed the building.”)\u003c/p>\n\u003cfigure id=\"attachment_13891031\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891031\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-800x334.png\" alt=\"Sugar Shack's Yelp page is currently dominated by photos of its owner at the Trump rally in DC that turned violent.\" width=\"800\" height=\"334\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-800x334.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-1020x426.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-160x67.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM-768x321.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-2.38.21-PM.png 1362w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">Sugar Shack’s Yelp page is currently dominated by photos of its owner at the Trump rally in DC that turned violent. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Sugar Shack is not alone. A Yelp spokesperson told KQED Arts that in the five days that followed Jan. 6, 50 “unusual activity” alerts, all directly related to the violence in Washington, were issued for Yelp business pages. “To be clear,” the spokesperson said via email, “Yelp condemns the violent actions at the Capitol last week. That said, we remove reviews that are not based on a first-hand consumer experience, even in situations where we may agree with views expressed in these reviews.”\u003c/p>\n\u003cp>In the hours during and after the Capitol invasion, the rush to social media was swift. For many people watching, feelings of horror crept in as they witnessed rioters seemingly getting away with the attack. And the frustration of seeing too few officers either \u003ca href=\"https://www.cnn.com/2021/01/09/us/officer-crushed-capitol-riot-video/index.html\" target=\"_blank\" rel=\"noopener noreferrer\">overwhelmed\u003c/a> or somehow \u003ca href=\"https://abc7ny.com/capitol-police-under-investigation-fbi-bulletin-state-capitals-how-did-the-officer-die-arrests-today/9568912/\" target=\"_blank\" rel=\"noopener noreferrer\">complicit \u003c/a>had to manifest somewhere. In the aftermath, the desire to see justice served fanned out from Twitter and onto the pages of Yelp.\u003c/p>\n\u003ch2>‘She’s a terrorist’\u003c/h2>\n\u003cp>Examples of businesses targeted because their Trump-supporting owners were in Washington that day are not particularly hard to find. In Midland, Texas, the \u003ca href=\"https://www.yelp.com/biz/beckys-flowers-midland?osq=becky%27s+flowers\" target=\"_blank\" rel=\"noopener noreferrer\">Yelp page\u003c/a> of \u003ca href=\"http://www.beckysflowersmidland.com/about-me.html\" target=\"_blank\" rel=\"noopener noreferrer\">Becky’s Flowers\u003c/a> received an influx of nearly eight pages of one-star reviews after its owner, Jenny Cudd, gleefully went \u003ca href=\"https://twitter.com/Cleavon_MD/status/1347334743323394048\" target=\"_blank\" rel=\"noopener noreferrer\">live on Facebook\u003c/a> from inside the Capitol. At the time of writing, the florist’s Yelp page is disabled pending investigation. One of the last posted reviews states: “Flowers were dying and the colors didn’t match. Also she’s a terrorist.”\u003c/p>\n\u003cfigure id=\"attachment_13891039\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891039\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-800x422.png\" alt=\"The Becky's Flowers Yelp page is currently dominated by a photo that appears to show owner, Jenny Cudd, inside the Capitol Building, draped in a Trump flag.\" width=\"800\" height=\"422\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-800x422.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-1020x538.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-160x84.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM-768x405.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-4.23.23-PM.png 1309w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Becky’s Flowers Yelp page is currently dominated by a photo that appears to show owner, Jenny Cudd, inside the Capitol Building, draped in a Trump flag. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>This meting out of Yelp justice is, in an immediate sense, undoubtedly satisfying for those doling it out. But since Yelp’s policy is to “remove reviews that are not based on a first-hand consumer experience” it’s unlikely the recent onslaught of negative comments will do much permanent damage to the businesses’ ratings on the site. And it’s by no means guaranteed that this attention will spell their economic downfall.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>At least two of the businesses targeted by Yelp users in the past week have previously received negative attention for the political views of their owners, yet the businesses remain operational. \u003ca href=\"https://www.yelp.com/biz/rileys-farm-oak-glen\" target=\"_blank\" rel=\"noopener noreferrer\">Riley’s Farm\u003c/a> in Oak Glen, California currently has a disabled Yelp page because of an influx of 21 negative reviews. Owner \u003ca href=\"https://www.yelp.com/biz_photos/rileys-farm-oak-glen?select=J_CDq8VjeBSO227TY2Fzsw\" target=\"_blank\" rel=\"noopener noreferrer\">James Patrick Riley\u003c/a>, who was present at the Capitol on Jan. 6, is already well-known in his community. Last year, the Claremont Unified School District said they would no longer send field trips to Riley’s Farm because of Riley’s social media outbursts concerning nonbinary gender issues and what he called “BLACK supremacy,” among other things. Coverage of the story even reached the \u003cem>\u003ca href=\"https://www.latimes.com/local/california/la-me-rileys-farm-lawsuit-oak-glen-20190219-story.html\" target=\"_blank\" rel=\"noopener noreferrer\">Los Angeles Times\u003c/a>\u003c/em>, a readership far larger than the Riley’s Farm Yelp page.\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13890905","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Similarly, Nathan Nickerson III, owner of \u003ca href=\"https://www.yelp.com/biz/arnolds-lobster-and-clam-bar-eastham-6?osq=Arnold%27s+Lobster+and+Clam+Bar\" target=\"_blank\" rel=\"noopener noreferrer\">Arnold’s Lobster & Clam Bar\u003c/a> in Cape Cod, has come under fire on Yelp for participating in a \u003ca href=\"https://www.boston.com/food/restaurants/2021/01/11/nathan-nickerson-iii-arnolds-lobster-clam-bar-eastham-trump-riot-dc\" target=\"_blank\" rel=\"noopener noreferrer\">phone interview\u003c/a> with a radio show while he was in Washington, in which he referred to nearby clouds of tear gas as “kind of pretty actually.” Twelve one-star reviews subsequently arrived on his restaurant’s page, prompting it to be disabled. But prior to the recent influx, Arnold’s had already received bad Yelp reviews, written by patrons who objected to \u003ca href=\"https://www.yelp.com/biz_photos/arnolds-lobster-and-clam-bar-eastham-6?select=bGluk6RG3qPEpvuMvHz2zw\" target=\"_blank\" rel=\"noopener noreferrer\">political table signs\u003c/a> at the restaurant.\u003c/p>\n\u003cp>Troublingly, the negative Yelp reviews seem to have only further solidified the beliefs of some of the participants in the Jan. 6 riot. The Yelp page of \u003ca href=\"https://peninsulacompany.com/\">Peninsula Company\u003c/a>, a Redwood City property management and real estate business, is still active despite being significantly impacted by reviews relating to the Jan. 6 riot, and a report to Yelp from the owner. Posts there specifically target Maria Rutenburg, an attorney and landlord for the company. Four reviewers have posted screenshots of recent social media posts by Rutenburg, including this one:\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1347005574861434883"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>That tweet now dominates Peninsula Company’s Yelp profile.\u003c/p>\n\u003cfigure id=\"attachment_13891032\" class=\"wp-caption alignnone\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13891032\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-800x412.png\" alt=\"The Yelp page associated with Peninsula Company in Redwood City has been targeted by critics because of links to the invasion of the Capitol Building.\" width=\"800\" height=\"412\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-800x412.png 800w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-1020x525.png 1020w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-160x82.png 160w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM-768x395.png 768w, https://cdn.kqed.org/wp-content/uploads/sites/2/2021/01/Screen-Shot-2021-01-11-at-3.53.17-PM.png 1362w\" sizes=\"(max-width: 800px) 100vw, 800px\">\u003cfigcaption class=\"wp-caption-text\">The Yelp page associated with Peninsula Company in Redwood City has been targeted by critics because of links to the invasion of the Capitol Building. \u003ccite>(Yelp)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>Rutenburg told KQED Arts via email that she did not engage in any “trespassing or violence” at the Capitol, but has since been harassed and threatened online and over the phone. Callers to her office have requested she be fired. “All these vicious attacks on me were provoked and encouraged at the highest level of leadership of the Democratic party,” Rutenburg said. “I will always stand up for this exceptional country to make sure that the light of liberty does not die on my watch. I will not be silenced.”\u003c/p>\n\u003ch2>Boycott or boost?\u003c/h2>\n\u003cp>The pro-Trump community exults in the infamy of negative attention. When those outraged by the attack share images of Trump’s supporters at the Capitol—especially their smiling selfies—it plays directly into their hands. In some ways, we’re doing their work for them. That horned QAnon guy (a conscious choice has been made here to not use his name) solidified his place as a minor right-wing celebrity last week, precisely because his image was shared so widely in mainstream media.\u003c/p>\n\u003cp>Look no further than Riley. He told the \u003ci>Los Angeles Times\u003c/i> that the attention brought by the calls for boycott actually benefitted his business, with private schools and parents organizing trips to the farm in support.\u003c/p>\n\u003cp>Running to Yelp to go after individuals who participated in the Capitol siege and the pro-Trump rally that preceded it has obviously been a source of catharsis for frustrated Americans who see that day’s events as a threat to our democracy. It’s a means to vent and mock and a clear attempt to kick the pro-Trump crowd where it hurts—their livelihoods. But soon, those bad reviews and the photos that accompany them will likely be scrubbed by Yelp. That they haven’t already probably speaks to the number of accounts under review since Jan. 6.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>Negative Yelp reviews aren’t a perfect solution to the current political turmoil—neither is doxxing, or aiding \u003ca href=\"https://tips.fbi.gov/digitalmedia/aad18481a3e8f02\" target=\"_blank\" rel=\"noopener noreferrer\">FBI investigations\u003c/a>—but it remains one of the few ways those who felt powerless watching the mob’s actions have had to express their condemnation of those actions. And in combination, these online efforts are a rebuttal to the lack of resistance the rioters met on their way to disrupt the Electoral College.\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13891014/trial-by-yelp-the-internet-targets-the-businesses-of-dc-riot-attendees","authors":["11242"],"categories":["arts_1","arts_2303"],"tags":["arts_2767","arts_10342","arts_1934","arts_10278","arts_2391","arts_1553"],"featImg":"arts_13891077","label":"arts"},"arts_13886391":{"type":"posts","id":"arts_13886391","meta":{"index":"posts_1591205157","site":"arts","id":"13886391","score":null,"sort":[1600280643000]},"guestAuthors":[],"slug":"celebrities-boycott-facebook-for-a-day-over-disinformation-hate-speech","title":"Celebrities Boycott Facebook For a Day Over Disinformation, Hate Speech","publishDate":1600280643,"format":"standard","headTitle":"Celebrities Boycott Facebook For a Day Over Disinformation, Hate Speech | KQED","labelTerm":{"term":137,"site":"arts"},"content":"\u003cp>A small—though prominent—group of public figures is taking a 24-hour break from the platforms that magnify their celebrity to protest what they see as Facebook’s failure to control disinformation and hate speech.\u003c/p>\n\u003cp>The campaign, \u003ca href=\"https://twitter.com/hashtag/StopHateForProfit?src=hashtag_click\" target=\"_blank\" rel=\"noopener noreferrer\">#StopHateForProfit\u003c/a>, is aimed at Facebook and Instagram and has attracted such disparate individuals as Kim Kardashian West, Sacha Baron Cohen and Mark Ruffalo.\u003c/p>\n\u003cp>All have said they will not post to their accounts on Wednesday. Collectively they reach millions of followers.\u003c/p>\n\u003cp>Cohen is a longtime outspoken critic of Mark Zuckerberg, Facebook’s chief executive, arguing the platform is a publisher and as such should be held responsible for the material on its site.\u003c/p>\n\u003cfigure id=\"attachment_13886392\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13886392\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/09/zuckerberg_wide-1de283525ca328ac194a111d9d1fb976dcb0a961-800x450.jpg\" alt=\"Facebook CEO Mark Zuckerberg speaks via video conference during a House Judiciary subcommittee hearing on antitrust on Capitol Hill in July.\" width=\"800\" height=\"450\">\u003cfigcaption class=\"wp-caption-text\">Facebook CEO Mark Zuckerberg speaks via video conference during a House Judiciary subcommittee hearing on antitrust on Capitol Hill in July. \u003ccite>(Graeme Jennings/AP)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003ca href=\"https://www.theguardian.com/technology/2019/nov/22/sacha-baron-cohen-facebook-propaganda\" target=\"_blank\" rel=\"noopener noreferrer\">In remarks\u003c/a> last November to the Anti-Defamation League, Cohen said, “It’s time to finally call these companies what they really are—the largest publishers in history. And here’s an idea for them: abide by basic standards and practices just like newspapers, magazines and TV news do every day.”\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“Facebook—stop spreading the hate, lies and conspiracies that inflame our societies!” Cohen \u003ca href=\"https://twitter.com/SachaBaronCohen\" target=\"_blank\" rel=\"noopener noreferrer\">tweeted\u003c/a> in advance of the boycott.\u003c/p>\n\u003cp>https://twitter.com/KimKardashian/status/1305942213667557378\u003c/p>\n\u003cp>Kardashian West, another near-constant presence on social media, tweeted: “I love that I can connect directly with you through Instagram and Facebook, but I can’t sit by and stay silent while these platforms continue to allow the spreading of hate, propaganda and misinformation—created by groups to sow division and split America apart—only to take steps after people are killed. Misinformation shared on social media has a serious impact on our elections and undermines our democracy. Please join me tomorrow when I will be ‘freezing’ my Instagram and FB account to tell Facebook to \u003ca href=\"https://twitter.com/hashtag/StopHateForProfit?src=hashtag_click\" target=\"_blank\" rel=\"noopener noreferrer\">#StopHateForProfit\u003c/a>.” [aside postid='arts_13882749']\u003c/p>\n\u003cp>The immediate impact on Facebook is sure to be minimal, as is the sacrifice the celebrities are making to show their support. But the campaign is part of a larger effort by civil rights organizations such as the NAACP, Color of Change and the ADL to draw attention to Facebook’s policies as calls mount for the social media behemoth be regulated or even broken apart in an antitrust action.\u003c/p>\n\u003cp>“Facebook’s \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/08/26/906145086/3-shot-1-fatally-in-kenosha-wis-as-protests-continue-over-police-shooting\" target=\"_blank\" rel=\"noopener noreferrer\">role in the Kenosha shooting\u003c/a>—which was flagged as violating their policies hundreds of times—is a reminder that changing policies without changing enforcement means little. It reinforces the fact that lives are on the line,” the coalition says on its website.\u003c/p>\n\u003cp>Facebook removed accounts and pages belonging to both the shooter and a group called the Kenosha Guard, which discussed possible violence, but only after they had received much attention.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>An advertising “\u003ca href=\"https://www.npr.org/2020/07/01/885853634/big-brands-abandon-facebook-threatening-to-derail-a-70b-advertising-juggernaut\" target=\"_blank\" rel=\"noopener noreferrer\">pause\u003c/a>” in July, led by the same coalition, involved nearly 1,100 companies. That same month, Facebook released the results of an \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/07/08/888888476/report-slams-facebook-for-vexing-and-heartbreaking-decisions-on-political-speech\" target=\"_blank\" rel=\"noopener noreferrer\">independent audit\u003c/a> that it had commissioned. The report faulted the company for “vexing and heartbreaking decisions,” including \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/06/05/871302687/facebook-will-review-policies-on-posts-about-state-violence-voting\" target=\"_blank\" rel=\"noopener noreferrer\">leaving up posts\u003c/a> by President Trump that “clearly violated” the company’s policies on hate and violent speech and voter suppression; exempting politicians from third-party fact-checking; and being reluctant to limit misinformation about voting.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2020 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Celebrities+Boycott+Facebook+And+Instagram+For+A+Day+Over+Disinformation%2C+Hate+Speech&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n","blocks":[],"excerpt":"Stars including Kim Kardashian West, Mark Ruffalo and Sacha Baron Cohen are part of the #StopHateForProfit campaign.","status":"publish","parent":0,"modified":1705020125,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":13,"wordCount":574},"headData":{"title":"Celebrities Boycott Facebook For a Day Over Disinformation, Hate Speech | KQED","description":"Stars including Kim Kardashian West, Mark Ruffalo and Sacha Baron Cohen are part of the #StopHateForProfit campaign.","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Celebrities Boycott Facebook For a Day Over Disinformation, Hate Speech","datePublished":"2020-09-16T18:24:03.000Z","dateModified":"2024-01-12T00:42:05.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"nprByline":"Mark Katkov","nprStoryId":"913466191","nprApiLink":"http://api.npr.org/query?id=913466191&apiKey=MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004","nprHtmlLink":"https://www.npr.org/2020/09/16/913466191/celebs-disdain-facebook-and-instagram-for-a-day?ft=nprml&f=913466191","nprRetrievedStory":"1","nprPubDate":"Wed, 16 Sep 2020 10:56:00 -0400","nprStoryDate":"Wed, 16 Sep 2020 09:35:30 -0400","nprLastModifiedDate":"Wed, 16 Sep 2020 10:56:33 -0400","templateType":"standard","featuredImageType":"standard","path":"/arts/13886391/celebrities-boycott-facebook-for-a-day-over-disinformation-hate-speech","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>A small—though prominent—group of public figures is taking a 24-hour break from the platforms that magnify their celebrity to protest what they see as Facebook’s failure to control disinformation and hate speech.\u003c/p>\n\u003cp>The campaign, \u003ca href=\"https://twitter.com/hashtag/StopHateForProfit?src=hashtag_click\" target=\"_blank\" rel=\"noopener noreferrer\">#StopHateForProfit\u003c/a>, is aimed at Facebook and Instagram and has attracted such disparate individuals as Kim Kardashian West, Sacha Baron Cohen and Mark Ruffalo.\u003c/p>\n\u003cp>All have said they will not post to their accounts on Wednesday. Collectively they reach millions of followers.\u003c/p>\n\u003cp>Cohen is a longtime outspoken critic of Mark Zuckerberg, Facebook’s chief executive, arguing the platform is a publisher and as such should be held responsible for the material on its site.\u003c/p>\n\u003cfigure id=\"attachment_13886392\" class=\"wp-caption aligncenter\" style=\"max-width: 800px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-13886392\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/09/zuckerberg_wide-1de283525ca328ac194a111d9d1fb976dcb0a961-800x450.jpg\" alt=\"Facebook CEO Mark Zuckerberg speaks via video conference during a House Judiciary subcommittee hearing on antitrust on Capitol Hill in July.\" width=\"800\" height=\"450\">\u003cfigcaption class=\"wp-caption-text\">Facebook CEO Mark Zuckerberg speaks via video conference during a House Judiciary subcommittee hearing on antitrust on Capitol Hill in July. \u003ccite>(Graeme Jennings/AP)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>\u003ca href=\"https://www.theguardian.com/technology/2019/nov/22/sacha-baron-cohen-facebook-propaganda\" target=\"_blank\" rel=\"noopener noreferrer\">In remarks\u003c/a> last November to the Anti-Defamation League, Cohen said, “It’s time to finally call these companies what they really are—the largest publishers in history. And here’s an idea for them: abide by basic standards and practices just like newspapers, magazines and TV news do every day.”\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“Facebook—stop spreading the hate, lies and conspiracies that inflame our societies!” Cohen \u003ca href=\"https://twitter.com/SachaBaronCohen\" target=\"_blank\" rel=\"noopener noreferrer\">tweeted\u003c/a> in advance of the boycott.\u003c/p>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"singleTwitterStatus","attributes":{"named":{"id":"1305942213667557378"},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\n\u003cp>Kardashian West, another near-constant presence on social media, tweeted: “I love that I can connect directly with you through Instagram and Facebook, but I can’t sit by and stay silent while these platforms continue to allow the spreading of hate, propaganda and misinformation—created by groups to sow division and split America apart—only to take steps after people are killed. Misinformation shared on social media has a serious impact on our elections and undermines our democracy. Please join me tomorrow when I will be ‘freezing’ my Instagram and FB account to tell Facebook to \u003ca href=\"https://twitter.com/hashtag/StopHateForProfit?src=hashtag_click\" target=\"_blank\" rel=\"noopener noreferrer\">#StopHateForProfit\u003c/a>.” \u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"aside","attributes":{"named":{"postid":"arts_13882749","label":""},"numeric":[]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>The immediate impact on Facebook is sure to be minimal, as is the sacrifice the celebrities are making to show their support. But the campaign is part of a larger effort by civil rights organizations such as the NAACP, Color of Change and the ADL to draw attention to Facebook’s policies as calls mount for the social media behemoth be regulated or even broken apart in an antitrust action.\u003c/p>\n\u003cp>“Facebook’s \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/08/26/906145086/3-shot-1-fatally-in-kenosha-wis-as-protests-continue-over-police-shooting\" target=\"_blank\" rel=\"noopener noreferrer\">role in the Kenosha shooting\u003c/a>—which was flagged as violating their policies hundreds of times—is a reminder that changing policies without changing enforcement means little. It reinforces the fact that lives are on the line,” the coalition says on its website.\u003c/p>\n\u003cp>Facebook removed accounts and pages belonging to both the shooter and a group called the Kenosha Guard, which discussed possible violence, but only after they had received much attention.\u003c/p>\n\u003cp>\u003c/p>\n\u003cp>An advertising “\u003ca href=\"https://www.npr.org/2020/07/01/885853634/big-brands-abandon-facebook-threatening-to-derail-a-70b-advertising-juggernaut\" target=\"_blank\" rel=\"noopener noreferrer\">pause\u003c/a>” in July, led by the same coalition, involved nearly 1,100 companies. That same month, Facebook released the results of an \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/07/08/888888476/report-slams-facebook-for-vexing-and-heartbreaking-decisions-on-political-speech\" target=\"_blank\" rel=\"noopener noreferrer\">independent audit\u003c/a> that it had commissioned. The report faulted the company for “vexing and heartbreaking decisions,” including \u003ca href=\"https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/06/05/871302687/facebook-will-review-policies-on-posts-about-state-violence-voting\" target=\"_blank\" rel=\"noopener noreferrer\">leaving up posts\u003c/a> by President Trump that “clearly violated” the company’s policies on hate and violent speech and voter suppression; exempting politicians from third-party fact-checking; and being reluctant to limit misinformation about voting.\u003c/p>\n\u003cdiv class=\"fullattribution\">\u003cem>Copyright 2020 NPR. To see more, visit \u003ca href=\"https://www.npr.org\" target=\"_blank\" rel=\"noopener noreferrer\">NPR\u003c/a>.\u003cimg decoding=\"async\" src=\"https://www.google-analytics.com/__utm.gif?utmac=UA-5828686-4&utmdt=Celebrities+Boycott+Facebook+And+Instagram+For+A+Day+Over+Disinformation%2C+Hate+Speech&utme=8(APIKey)9(MDAxOTAwOTE4MDEyMTkxMDAzNjczZDljZA004)\">\u003c/em>\u003c/div>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13886391/celebrities-boycott-facebook-for-a-day-over-disinformation-hate-speech","authors":["byline_arts_13886391"],"categories":["arts_1","arts_235","arts_75"],"tags":["arts_549","arts_1934","arts_2098","arts_11966","arts_2137","arts_1935","arts_2391"],"affiliates":["arts_137"],"featImg":"arts_13886395","label":"arts_137"},"arts_13879830":{"type":"posts","id":"arts_13879830","meta":{"index":"posts_1591205157","site":"arts","id":"13879830","score":null,"sort":[1588809626000]},"guestAuthors":[],"slug":"facebook-phishing-scams-hit-livestreamed-concerts","title":"Facebook Phishing Scams Hit Livestreamed Concerts","publishDate":1588809626,"format":"standard","headTitle":"Facebook Phishing Scams Hit Livestreamed Concerts | KQED","labelTerm":{"site":"arts"},"content":"\u003cp>Nearly two months into California’s shelter-in-place orders, livestreamed concerts via YouTube, Instagram and Facebook have turned into a lifeline for musicians whose gigs have evaporated. Some Bay Area artists are earning more than $1,000 per show with weekly performances.\u003c/p>\n\u003cp>But that silver lining is attracting online predators.\u003c/p>\n\u003cp>Last month, a Facebook-streamed concert by two well-known Oakland musicians was besieged by phishing scammers. Bombarding the Facebook event page with their own links, the scammers steered fans to another site posing as a livestreaming link where they sought to pocket fans’ donations. With Facebook’s April 28 \u003ca href=\"https://www.theverge.com/2020/4/28/21239863/facebook-live-paid-video-charge-stream-access-events\" target=\"_blank\" rel=\"noopener noreferrer\">announcement\u003c/a> that musicians will soon be able to charge admission to their pages for events streamed on the platform, some musicians fear that security concerns will only grow in the coming months.\u003c/p>\n\u003cp>Pianist \u003ca href=\"https://www.facebook.com/steveluckyrhumbabums/\">Steve Lucky and guitarist-vocalist Carmen Getit\u003c/a> have been mainstays of the Bay Area music scene for more than two decades, putting their own playful spin on a vast repertoire of jump blues, vintage jazz tunes, piano boogies and vintage R&B. It’s not surprising that the fanbase they’ve cultivated has responded generously during their Saturday night performances from their living room. On April 25, they kicked off their set with their theme song “Don’t You Want to Get Lucky?” while their 13-year-old daughter Monique served as their iPhone tech crew.\u003c/p>\n\u003cfigure id=\"attachment_13879891\" class=\"wp-caption alignright\" style=\"max-width: 750px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13879891\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/05/fake-lucky-getit-stream.png\" alt=\"\" width=\"750\" height=\"1334\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/fake-lucky-getit-stream.png 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/fake-lucky-getit-stream-160x285.png 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003cfigcaption class=\"wp-caption-text\">Scammers attempted to lead Steve Lucky and Carmen Getit’s fans to this fraudulent streaming site, where they were asked to sign up for a paid subscription to see their livestreamed concert.\u003c/figcaption>\u003c/figure>\n\u003cp>Usually they stream from their band’s Facebook page for \u003ca href=\"https://www.facebook.com/steveluckyrhumbabums/\" target=\"_blank\" rel=\"noopener noreferrer\">Steve Lucky & the Rhumba Bums featuring Miss Carmen Getit\u003c/a>, but this night the concert went out from Lucky’s personal profile. When fans on the band page started asking where to find the livestream, several Facebook profiles bombarded the comments with fraudulent links.\u003c/p>\n\u003cp>[ad fullwidth]\u003c/p>\n\u003cp>“They were using the identical artwork I created for our actual Facebook event,” Getit said. “When users clicked on the fake links, they were asked to buy a membership to view the live feed. The imposters posted over 100 times in our Facebook event with fake livestream links.”\u003c/p>\n\u003cp>The couple estimates that the confusion cost them more than $500, judging by the drop off in contributions compared to previous weeks. When they tried to report the attack to Facebook, they found that “their interface leaves no room for explanations,” Getit said. “Facebook responded by saying my reports of ‘violating Facebook’s guidelines’ didn’t actually fall within their definitions.”\u003c/p>\n\u003cp>Adding insult to injury, the couple had just started advertising their concerts on Facebook, “and I suspect the worldwide promotion I selected for our livestreams via payment to Facebook invited these imposters from other countries and actually cost us money,” Getit said, noting that the attacks seemed to emanate from profiles in India and some Middle Eastern countries. “So essentially I paid Facebook to get scammed.”\u003c/p>\n\u003cp>A Facebook spokesperson told KQED that the company took action, shutting down three accounts and removing six posts that Getit brought to the company’s attention. “We immediately removed several posts when they were reported to us, as well as the accounts that violated our policies against spam,” said the spokesperson.\u003c/p>\n\u003cp>The company has numerous tools in place to help fend off unwanted incursions, particularly for events livestreamed from a band or venue’s page. (The company recommends using pages rather than personal profiles for streaming.) Page settings allow a musician to block certain keywords from the comments ahead of time, like “link” or “click,” so an artist doesn’t have to try to monitor a broadcast while performing. But scammers don’t only target performances in progress.\u003c/p>\n\u003cp>On May 2, the Facebook page for the \u003ca href=\"https://www.facebook.com/events/612427872952769/\">Pittsburgh Bluegrass Festival\u003c/a> was hit by some of the same profiles that disrupted Lucky and Getit’s livestream. While the festival was rescheduled due to shelter in place weeks ago, last Saturday several of the same people who posted links on Lucky and Getit’s page also posted bogus links on the Pittsburgh Bluegrass page, including one user who goes by Rahad Islam Nasim. His profile identifies him as a marketing assistant for AdCenter, a click-harvesting “cost per acquisition” (CPA) network based in Montreal that the company’s website says “connects you with advertisers you want or traffic you need to make money on the internet.” And that seems to be true.\u003c/p>\n\u003cfigure id=\"attachment_13879892\" class=\"wp-caption alignright\" style=\"max-width: 750px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13879892\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/05/IMG-3517.png\" alt=\"\" width=\"750\" height=\"1000\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/IMG-3517.png 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/IMG-3517-160x213.png 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003cfigcaption class=\"wp-caption-text\">Musicians worry about cyber security as streaming becomes an important aspect of how they make a living during the pandemic. \u003ccite>(Pam Brandon)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>A message to Nasim’s profile page asking about the link-bombing attacks went unanswered. But in response to a query about Nasim’s practices, an AdCenter company spokesperson wrote “Rahad Islam Nasim is not an employee, but an AdCenter affiliate/publisher who promotes our advertiser’s offer. The practice you describe is not tolerated, and goes against our terms and conditions and as such, Rahad’s campaigns have been shut down.”\u003c/p>\n\u003cp>Getit reported the attacks to the FBI via the agency’s Internet Crime Complaint Center. More than the disruption caused by the attacks, what frustrates Getit is the lack of response from Facebook. Two weeks after she reported the profiles that posted the fake links, they were still active. (After KQED’s inquiries, the profiles were removed.) The couple has set up their own security by deputizing a friend or relative to serve as a virtual bouncer during live performances “to watch our Facebook livestreams and delete scammers’ posts,” Getit said.\u003c/p>\n\u003cp>Part of the problem is that the same force that sparked the livestreaming explosion—the pandemic—has been keeping Facebook’s content monitors busier than usual, a Facebook employee who works in security told KQED on background. The particular fake-link scam that hit Lucky and Getit doesn’t seem to be spreading. But as more musicians turn to streaming to reach audiences, transparent and easily deployable security will become increasingly essential.\u003c/p>\n\u003cp>Streaming services may have habituated a generation of music fans to freely access just about any song they might want to hear, but it turns out that plenty of listeners are willing and even eager to support livestreamed performances.\u003c/p>\n\u003cp>That’s one delicate thread that might help musicians weather this unprecedented disaster.\u003c/p>\n\u003cp>[ad floatright]\u003c/p>\n\u003cp>\u003cem>This story was updated to include a response from Facebook.\u003c/em>\u003c/p>\n\n","blocks":[],"excerpt":"The latest online security concern in the pandemic? Scammers attempting to pocket concert donations. ","status":"publish","parent":0,"modified":1705020793,"stats":{"hasAudio":false,"hasVideo":false,"hasChartOrMap":false,"iframeSrcs":[],"hasGoogleForm":false,"hasGallery":false,"hasHearkenModule":false,"hasPolis":false,"paragraphCount":19,"wordCount":1124},"headData":{"title":"Facebook Phishing Scams Hit Livestreamed Concerts | KQED","description":"The latest online security concern in the pandemic? Scammers attempting to pocket concert donations. ","ogTitle":"","ogDescription":"","ogImgId":"","twTitle":"","twDescription":"","twImgId":"","schema":{"@context":"http://schema.org","@type":"Article","headline":"Facebook Phishing Scams Hit Livestreamed Concerts","datePublished":"2020-05-07T00:00:26.000Z","dateModified":"2024-01-12T00:53:13.000Z","image":"https://cdn.kqed.org/wp-content/uploads/2020/02/KQED-OG-Image@1x.png"}},"sticky":false,"templateType":"standard","featuredImageType":"standard","path":"/arts/13879830/facebook-phishing-scams-hit-livestreamed-concerts","audioTrackLength":null,"parsedContent":[{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003cp>Nearly two months into California’s shelter-in-place orders, livestreamed concerts via YouTube, Instagram and Facebook have turned into a lifeline for musicians whose gigs have evaporated. Some Bay Area artists are earning more than $1,000 per show with weekly performances.\u003c/p>\n\u003cp>But that silver lining is attracting online predators.\u003c/p>\n\u003cp>Last month, a Facebook-streamed concert by two well-known Oakland musicians was besieged by phishing scammers. Bombarding the Facebook event page with their own links, the scammers steered fans to another site posing as a livestreaming link where they sought to pocket fans’ donations. With Facebook’s April 28 \u003ca href=\"https://www.theverge.com/2020/4/28/21239863/facebook-live-paid-video-charge-stream-access-events\" target=\"_blank\" rel=\"noopener noreferrer\">announcement\u003c/a> that musicians will soon be able to charge admission to their pages for events streamed on the platform, some musicians fear that security concerns will only grow in the coming months.\u003c/p>\n\u003cp>Pianist \u003ca href=\"https://www.facebook.com/steveluckyrhumbabums/\">Steve Lucky and guitarist-vocalist Carmen Getit\u003c/a> have been mainstays of the Bay Area music scene for more than two decades, putting their own playful spin on a vast repertoire of jump blues, vintage jazz tunes, piano boogies and vintage R&B. It’s not surprising that the fanbase they’ve cultivated has responded generously during their Saturday night performances from their living room. On April 25, they kicked off their set with their theme song “Don’t You Want to Get Lucky?” while their 13-year-old daughter Monique served as their iPhone tech crew.\u003c/p>\n\u003cfigure id=\"attachment_13879891\" class=\"wp-caption alignright\" style=\"max-width: 750px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13879891\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/05/fake-lucky-getit-stream.png\" alt=\"\" width=\"750\" height=\"1334\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/fake-lucky-getit-stream.png 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/fake-lucky-getit-stream-160x285.png 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003cfigcaption class=\"wp-caption-text\">Scammers attempted to lead Steve Lucky and Carmen Getit’s fans to this fraudulent streaming site, where they were asked to sign up for a paid subscription to see their livestreamed concert.\u003c/figcaption>\u003c/figure>\n\u003cp>Usually they stream from their band’s Facebook page for \u003ca href=\"https://www.facebook.com/steveluckyrhumbabums/\" target=\"_blank\" rel=\"noopener noreferrer\">Steve Lucky & the Rhumba Bums featuring Miss Carmen Getit\u003c/a>, but this night the concert went out from Lucky’s personal profile. When fans on the band page started asking where to find the livestream, several Facebook profiles bombarded the comments with fraudulent links.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"fullwidth"},"numeric":["fullwidth"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>“They were using the identical artwork I created for our actual Facebook event,” Getit said. “When users clicked on the fake links, they were asked to buy a membership to view the live feed. The imposters posted over 100 times in our Facebook event with fake livestream links.”\u003c/p>\n\u003cp>The couple estimates that the confusion cost them more than $500, judging by the drop off in contributions compared to previous weeks. When they tried to report the attack to Facebook, they found that “their interface leaves no room for explanations,” Getit said. “Facebook responded by saying my reports of ‘violating Facebook’s guidelines’ didn’t actually fall within their definitions.”\u003c/p>\n\u003cp>Adding insult to injury, the couple had just started advertising their concerts on Facebook, “and I suspect the worldwide promotion I selected for our livestreams via payment to Facebook invited these imposters from other countries and actually cost us money,” Getit said, noting that the attacks seemed to emanate from profiles in India and some Middle Eastern countries. “So essentially I paid Facebook to get scammed.”\u003c/p>\n\u003cp>A Facebook spokesperson told KQED that the company took action, shutting down three accounts and removing six posts that Getit brought to the company’s attention. “We immediately removed several posts when they were reported to us, as well as the accounts that violated our policies against spam,” said the spokesperson.\u003c/p>\n\u003cp>The company has numerous tools in place to help fend off unwanted incursions, particularly for events livestreamed from a band or venue’s page. (The company recommends using pages rather than personal profiles for streaming.) Page settings allow a musician to block certain keywords from the comments ahead of time, like “link” or “click,” so an artist doesn’t have to try to monitor a broadcast while performing. But scammers don’t only target performances in progress.\u003c/p>\n\u003cp>On May 2, the Facebook page for the \u003ca href=\"https://www.facebook.com/events/612427872952769/\">Pittsburgh Bluegrass Festival\u003c/a> was hit by some of the same profiles that disrupted Lucky and Getit’s livestream. While the festival was rescheduled due to shelter in place weeks ago, last Saturday several of the same people who posted links on Lucky and Getit’s page also posted bogus links on the Pittsburgh Bluegrass page, including one user who goes by Rahad Islam Nasim. His profile identifies him as a marketing assistant for AdCenter, a click-harvesting “cost per acquisition” (CPA) network based in Montreal that the company’s website says “connects you with advertisers you want or traffic you need to make money on the internet.” And that seems to be true.\u003c/p>\n\u003cfigure id=\"attachment_13879892\" class=\"wp-caption alignright\" style=\"max-width: 750px\">\u003cimg loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-13879892\" src=\"https://ww2.kqed.org/app/uploads/sites/2/2020/05/IMG-3517.png\" alt=\"\" width=\"750\" height=\"1000\" srcset=\"https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/IMG-3517.png 750w, https://cdn.kqed.org/wp-content/uploads/sites/2/2020/05/IMG-3517-160x213.png 160w\" sizes=\"(max-width: 750px) 100vw, 750px\">\u003cfigcaption class=\"wp-caption-text\">Musicians worry about cyber security as streaming becomes an important aspect of how they make a living during the pandemic. \u003ccite>(Pam Brandon)\u003c/cite>\u003c/figcaption>\u003c/figure>\n\u003cp>A message to Nasim’s profile page asking about the link-bombing attacks went unanswered. But in response to a query about Nasim’s practices, an AdCenter company spokesperson wrote “Rahad Islam Nasim is not an employee, but an AdCenter affiliate/publisher who promotes our advertiser’s offer. The practice you describe is not tolerated, and goes against our terms and conditions and as such, Rahad’s campaigns have been shut down.”\u003c/p>\n\u003cp>Getit reported the attacks to the FBI via the agency’s Internet Crime Complaint Center. More than the disruption caused by the attacks, what frustrates Getit is the lack of response from Facebook. Two weeks after she reported the profiles that posted the fake links, they were still active. (After KQED’s inquiries, the profiles were removed.) The couple has set up their own security by deputizing a friend or relative to serve as a virtual bouncer during live performances “to watch our Facebook livestreams and delete scammers’ posts,” Getit said.\u003c/p>\n\u003cp>Part of the problem is that the same force that sparked the livestreaming explosion—the pandemic—has been keeping Facebook’s content monitors busier than usual, a Facebook employee who works in security told KQED on background. The particular fake-link scam that hit Lucky and Getit doesn’t seem to be spreading. But as more musicians turn to streaming to reach audiences, transparent and easily deployable security will become increasingly essential.\u003c/p>\n\u003cp>Streaming services may have habituated a generation of music fans to freely access just about any song they might want to hear, but it turns out that plenty of listeners are willing and even eager to support livestreamed performances.\u003c/p>\n\u003cp>That’s one delicate thread that might help musicians weather this unprecedented disaster.\u003c/p>\n\u003cp>\u003c/p>\u003c/div>","attributes":{"named":{},"numeric":[]}},{"type":"component","content":"","name":"ad","attributes":{"named":{"label":"floatright"},"numeric":["floatright"]}},{"type":"contentString","content":"\u003cdiv class=\"post-body\">\u003cp>\u003c/p>\n\u003cp>\u003cem>This story was updated to include a response from Facebook.\u003c/em>\u003c/p>\n\n\u003c/div>\u003c/p>","attributes":{"named":{},"numeric":[]}}],"link":"/arts/13879830/facebook-phishing-scams-hit-livestreamed-concerts","authors":["86"],"categories":["arts_1"],"tags":["arts_10126","arts_10342","arts_1934","arts_10278","arts_10318","arts_10416"],"featImg":"arts_13879890","label":"arts"}},"programsReducer":{"possible":{"id":"possible","title":"Possible","info":"Possible is hosted by entrepreneur Reid Hoffman and writer Aria Finger. 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You ask the questions. You decide what Bay Curious investigates. And you join us on the journey to find the answers.","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Bay-Curious-Podcast-Tile-703x703-1.jpg","imageAlt":"\"KQED Bay Curious","officialWebsiteLink":"/news/series/baycurious","meta":{"site":"news","source":"kqed","order":"4"},"link":"/podcasts/baycurious","subscribe":{"apple":"https://podcasts.apple.com/us/podcast/bay-curious/id1172473406","npr":"https://www.npr.org/podcasts/500557090/bay-curious","rss":"https://ww2.kqed.org/news/category/bay-curious-podcast/feed/podcast","google":"https://podcasts.google.com/feed/aHR0cHM6Ly93dzIua3FlZC5vcmcvbmV3cy9jYXRlZ29yeS9iYXktY3VyaW91cy1wb2RjYXN0L2ZlZWQvcG9kY2FzdA","stitcher":"https://www.stitcher.com/podcast/kqed/bay-curious","spotify":"https://open.spotify.com/show/6O76IdmhixfijmhTZLIJ8k"}},"bbc-world-service":{"id":"bbc-world-service","title":"BBC World Service","info":"The day's top stories from BBC News compiled twice daily in the week, once at weekends.","airtime":"MON-FRI 9pm-10pm, TUE-FRI 1am-2am","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/BBC-World-Service-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.bbc.co.uk/sounds/play/live:bbc_world_service","meta":{"site":"news","source":"BBC World Service"},"link":"/radio/program/bbc-world-service","subscribe":{"apple":"https://itunes.apple.com/us/podcast/global-news-podcast/id135067274?mt=2","tuneIn":"https://tunein.com/radio/BBC-World-Service-p455581/","rss":"https://podcasts.files.bbci.co.uk/p02nq0gn.rss"}},"code-switch-life-kit":{"id":"code-switch-life-kit","title":"Code Switch / Life Kit","info":"\u003cem>Code Switch\u003c/em>, which listeners will hear in the first part of the hour, has fearless and much-needed conversations about race. Hosted by journalists of color, the show tackles the subject of race head-on, exploring how it impacts every part of society — from politics and pop culture to history, sports and more.\u003cbr />\u003cbr />\u003cem>Life Kit\u003c/em>, which will be in the second part of the hour, guides you through spaces and feelings no one prepares you for — from finances to mental health, from workplace microaggressions to imposter syndrome, from relationships to parenting. The show features experts with real world experience and shares their knowledge. Because everyone needs a little help being human.\u003cbr />\u003cbr />\u003ca href=\"https://www.npr.org/podcasts/510312/codeswitch\">\u003cem>Code Switch\u003c/em> offical site and podcast\u003c/a>\u003cbr />\u003ca href=\"https://www.npr.org/lifekit\">\u003cem>Life Kit\u003c/em> offical site and podcast\u003c/a>\u003cbr />","airtime":"SUN 9pm-10pm","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Code-Switch-Life-Kit-Podcast-Tile-360x360-1.jpg","meta":{"site":"radio","source":"npr"},"link":"/radio/program/code-switch-life-kit","subscribe":{"apple":"https://podcasts.apple.com/podcast/1112190608?mt=2&at=11l79Y&ct=nprdirectory","google":"https://podcasts.google.com/feed/aHR0cHM6Ly93d3cubnByLm9yZy9yc3MvcG9kY2FzdC5waHA_aWQ9NTEwMzEy","spotify":"https://open.spotify.com/show/3bExJ9JQpkwNhoHvaIIuyV","rss":"https://feeds.npr.org/510312/podcast.xml"}},"commonwealth-club":{"id":"commonwealth-club","title":"Commonwealth Club of California Podcast","info":"The Commonwealth Club of California is the nation's oldest and largest public affairs forum. As a non-partisan forum, The Club brings to the public airwaves diverse viewpoints on important topics. The Club's weekly radio broadcast - the oldest in the U.S., dating back to 1924 - is carried across the nation on public radio stations and is now podcasting. Our website archive features audio of our recent programs, as well as selected speeches from our long and distinguished history. This podcast feed is usually updated twice a week and is always un-edited.","airtime":"THU 10pm, FRI 1am","imageSrc":"https://cdn.kqed.org/wp-content/uploads/2024/04/Commonwealth-Club-Podcast-Tile-360x360-1.jpg","officialWebsiteLink":"https://www.commonwealthclub.org/podcasts","meta":{"site":"news","source":"Commonwealth Club of California"},"link":"/radio/program/commonwealth-club","subscribe":{"apple":"https://itunes.apple.com/us/podcast/commonwealth-club-of-california-podcast/id976334034?mt=2","google":"https://podcasts.google.com/feed/aHR0cDovL3d3dy5jb21tb253ZWFsdGhjbHViLm9yZy9hdWRpby9wb2RjYXN0L3dlZWtseS54bWw","tuneIn":"https://tunein.com/radio/Commonwealth-Club-of-California-p1060/"}},"considerthis":{"id":"considerthis","title":"Consider This","tagline":"Make sense of the day","info":"Make sense of the day. Every weekday afternoon, Consider This helps you consider the major stories of the day in less than 15 minutes, featuring the reporting and storytelling resources of NPR. 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