upper waypoint

AIDS at 30: Interview - What Were the Earliest Days of the Epidemic Like?

Save ArticleSave Article
Failed to save article

Please try again

In the earliest days of the epidemic, doctors and nurses could offer little but compassion for patients who were suffering from a virus that didn’t even have a name. (Photo:GLBT Historical Society)

Part 2 of Scott Shafer's series of interviews surrounding the 30th anniversary of HIV/AIDS is with San Francisco community activist Paul Boneberg, who lived through the epidemic when it first struck in the early 1980s. The interview is summarized directly below the audio.

Paul Boneberg on what the early days of the AIDS epidemic were like

When the epidemic hit, very rapidly by the end of the year everyone in the community knew people who were dying.

We began to organize. In 1982, the Stonewall Gay Democratic club hosted a forum with Bobbi Campbell, who showed us his Kaposi sarcoma lesions. Community groups realized we needed to pay attention to this. There was great fear. Every gay man at that time thought he was infected. We didn't know what the agent was. But people understood that people just like them were getting sick and dying very quickly. You could know someone and very quickly he'd become sick and die.

First you get the fear, then you try to take care of people. Then you realize people aren't being treated right, that your friends and partners couldn't get the care they needed. And there were horrible proposals, like calling for people to be locked up. The same people who hated us before AIDS hated us after, but after they were particularly vicious in attacking the LGBT community.

People were forced out of the closet when they were sick. Roy Cohn, Liberace, Rock Hudson. A series of very prominent people were suddenly known to be gay. And people came out to their families too, introducing them to their caregivers.

Community activists had to shift course. It was an entirely different discussion than in in the 1970s. Suddenly you had to meet with appropriators to ask for money. There was no infrastructure to respond to AIDS, and we learned how to get drugs approved and create structures. The community was transformed and is stronger and more vibrant than it was 30 years ago because of our response to AIDS. We became the community we always thought we would be.

I would certainly hope Americans are proud of the community's response to HIV/AIDS and San Franciscans are proud of how they took care of each other and stood against bigotry. This isn't the last catastrophe that will affect mankind. There's a lesson here as to how to respond to a great disaster; there's something here of a model about how people who were legally discriminated against and despised took care of themselves.

Sponsored

lower waypoint
next waypoint
Stunning Archival Photos of the 1906 Earthquake and FireWhy Nearly 50 California Hospitals Were Forced to End Maternity Ward ServicesSan Francisco Sues Oakland Over Plan to Change Airport NameCould Protesters Who Shut Down Golden Gate Bridge Be Charged With False Imprisonment?Democrats Again Vote Down California Ban on Unhoused EncampmentsFederal Bureau of Prisons Challenges Judge’s Order Delaying Inmate Transfers from FCI DublinFirst Trump Criminal Trial Underway in New YorkJail Deaths Prompt Calls To Separate Coroner And Sheriff's Departments In Riverside CountyDespite Progress, Black Californians Still Face Major Challenges In Closing Equality GapThe Beauty in Finding ‘Other People’s Words’ in Your Own